Incontinentia Pigmenti Community

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We have 3 generations of IP.. my mom has it, I have it and 1 of my daughters have it.. Anyone else out there that have generations with i...
Is there anything you can do in the middle of a seizure if you know that is what they are having.
The dermatologist that dx my daughter with IP has never seen it before and she is trying to refer us to another Ped. Dermatologist but he...
My nerves are about shot after going to see several specialist and being told very little. My daughter( 18 months) has a MRI scheduled in...
I have IP and my husband and I are contemplating having a child, but we're worried about the potential medical issues that may arise. Do...
If my baby is having skin problems, how can I treat it? It's called Incontinentia pigmenti!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
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