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Myositis Community

WELCOME TO THE MYOSITIS COMMUNITY: This Patient-To-Patient Community is for discussions relating to Myositis which is an inflammation of skeletal muscles, which are also called the voluntary muscles. These are the muscles you consciously control that help you move your body. An injury, infection or autoimmune disease can cause myositis.
1 - 20 (of 33) questions
Hi, I am a rather concerned parent looking for some advice. December 2010 my then 5 year old son began complaining of "aching legs"...I ...
Can it take 8 yrs to diagnose dermatomyositis?? Can it be that slow progressing? First elevated liver enzymes 2006 with liver biopsy norm...
Alcohol consumption causes muscle atrophy, delays muscle healing Are temporal muscles affected specifically?
Hello everybody, I am a little bit confused about my diagnostical results so far and maybe anyone has an idea about it! The doctors sa...
I've been having some bizarre symptoms, mostly neurological, but some are muscular. I've had a number of tests and the only one abnormal ...
Hi All, I am representing a market research firm called Glocal Mind. We are looking for patients who have diagnosed with Sporadic incl...
What can be done about dropfoot?
I've been recently diagnosed with small fiber neuropathy and myopathy. I have worst weakness in my thighs and biceps. The Right leg whic...
I was diagnosed with polymyositis in 2005. My CPK was 17000 when they diagnosed. I've gone through methotraxate, 120mg prednisone, sinc...
Did anyone who was eventually dx'd with Polymyositis have just slightly elevated CPK in the beginning? I was just wondering because I hav...
I have been suffering from lower back pain, both quads are pain full and it I am afraid to put any weight on my legs for fear that I may ...
I had a steroid epideral shot a year ago in June, the dr had to stop administering the steroid when i woke up on the table screaming and ...
I was in the hepc forum on this site and I am glad Myositis is here. I was just diagnosed with myositis and interstitial lung disease ...
We have an appointment with a Rheumatoid specialist in Nashville TN at Vanderbuilt. My issue is the fact that his Doctor has done all kin...
hello !!! my friend's wife has been diagonised with myositis and polymyositis. what are the treatments for myositis, poly myositis , myo...
  
A family member in Europe was recently diagnosed with ' necrotising, immune mediated anti-signal receptor anti-body positive myopathy'. I...
what treatment direction can we derive from biopsy and whole body FDG PET test?
What is the treatment available for all 3 disease?
I was diagnosed with this auto-immune disease called Intertial Myositis. Anyone out there have this?
What are the symptoms of polymyositis?
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