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Peripheral Nerve Hyperexcitability (PNH) Community

This patient support community is for discussions relating to Peripheral Nerve Hyperexcitability (PNH) and the various conditions related to it such as neuromyotonia (NMT), cramp fasciculation syndrome (CFS), benign fasciculation syndrome (BFS), Isaacs syndrome and others.
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1 - 6 (of 403) questions
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Not sure why I'm having consistent muscle cramps.

Willdt
So I'm not sure where to start looking into what problem I have. I get severe cramps from basic movements with slight muscle stretching (...
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Electrical feeling in legs while resting/sleeping

Alaz84
Hi, I'm suffering from electrical shots feeling in my legs and hands since I had a severe bilateral muscle cramp episode which lasted mor...
1 answer   
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PNH specialist is in UK?

rpb1971
Hello, anyone know who is the leading PNH expert in UK? I used to be under Dr Hart at Walton Centre until he sadly passed away. Was then ...
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ANY ONE HAVE EXPERIENCE WITH PERIPHERAL NEUOPOTHY?

ecurbs
I STOPPED COQ10 WHILE TAKING STATINS/LIPITOR. GOT PAIN IN L AND R ELBOWS L AND R HAND AND TO L AND R RING FINGER AND PINKIE. BURNS, ...
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Burning pain in both feet

Rchubermn
My feet feel as though I'm standing on ice without shoes or socks. The pain continues all day but seems to increase at night making it di...
4 answers | 2 comments   
Avatar universal

PERIPHERAL NERVE DAMAGE POST FOOT SURGERY

CCheryl
I SUFFER WITH CRPS POST FOOT SURGERY. MY FOOT HAS ATROPHIED. THE BONES IN MY TOES ARE FUSED TOGETHER. BURNING HORRIBLE. I GET KETAMINE I...
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