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Peripheral Nerve Hyperexcitability (PNH) Community

This patient support community is for discussions relating to Peripheral Nerve Hyperexcitability (PNH) and the various conditions related to it such as neuromyotonia (NMT), cramp fasciculation syndrome (CFS), benign fasciculation syndrome (BFS), Isaacs syndrome and others.
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PNH specialist is in UK?

rpb1971
Hello, anyone know who is the leading PNH expert in UK? I used to be under Dr Hart at Walton Centre until he sadly passed away. Was then ...
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ANY ONE HAVE EXPERIENCE WITH PERIPHERAL NEUOPOTHY?

ecurbs
I STOPPED COQ10 WHILE TAKING STATINS/LIPITOR. GOT PAIN IN L AND R ELBOWS L AND R HAND AND TO L AND R RING FINGER AND PINKIE. BURNS, ...
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Burning pain in both feet

Rchubermn
My feet feel as though I'm standing on ice without shoes or socks. The pain continues all day but seems to increase at night making it di...
4 answers | 2 comments   
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PERIPHERAL NERVE DAMAGE POST FOOT SURGERY

CCheryl
I SUFFER WITH CRPS POST FOOT SURGERY. MY FOOT HAS ATROPHIED. THE BONES IN MY TOES ARE FUSED TOGETHER. BURNING HORRIBLE. I GET KETAMINE I...
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Nerve damage after a blood draw??

violetchachki1
Exactly one week ago i went for a normal blood draw and saw the nurse move the needle while it was still in my vein. I did not feel an el...
1 answer   
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Possible BFS? Neurologist's best guess.

DutchSaffa
About 10 weeks ago I noticed small, rapid twitches in my calf but didn't think much of it since I could see them but couldn't feel them. ...
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