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Rare Diseases Community
This patient support community is for discussions relating to rare diseases and disorders. Some example include: Aarskog syndrome, Acoustic Neuroma, Angelman Syndrome, Behcet Syndrome, Bell’s Palsy, Canavan Disease, Carbon Baby Syndrome, Charcot Marie Tooth Disease, Chromosome Monosomy Disorders, Chromosome Trisomy Disorders, Devic's Disease, Dystonia, Ewing’s Sarcoma, Fragile X Syndrome, Immune Thrombocytopenia, Kawasaki Syndrome,Maple Syrup Urine Disease, Mastocytosis, McCune Albright syndrome, Pachygyria, Polycystic Kidney Disease, Prader-Willi Syndrome, Reiter’s Syndrome, Sickle cell anemia, Sturge-Weber syndrome, Trisomy Disorders, Usher Syndrome, Xanthinuria, Zollinger-Ellison syndrome.
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Avatar universal
I am going to write a lot of information. A few months ago, I was having on and off stiffness in my right arm while I was at work. There ...
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I have muscle spasms, twitches, severe weakness in arms, legs, hands, feet, trouble swallowing, sinus and ear pain, with bladder pain, do...
2 answers | 1 comment |
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When I lay down my right calf will start burning and then it becomes a deep ache. And it is only in my right calf. Doctors have said they...
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Hello, I am a 32 year old male who was perfectly healthy and active as a child and adolescent. When I was 22 and Iin college I had t...
7 answers | 1 comment |
Avatar universal
I have had several instances where I have urinated a live worm. The first time, I thought it must have been in there prior. The second ...
6 answers |
Avatar universal
My daughter has had a sensitive stomach for as long as I can remember. She has always had a hard time keeping weight on. She is a profe...
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Had a protected sex with my partner during her cycle but 3 days after got a rash inside my mouth and penis so I went to the emergency roo...
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I'm 22 female and a college student. For approximately 6 years I have suffered from TMJD, which got worse about 4 years ago. Around two y...
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Hi. I keep getting a rapid dripping in my throat witch sounds and feels like it's letting out air and some sort of liquid in a rapid cli...
1 answer |
Avatar universal
When I exhale the air people around me feel very bad, disgusting smell similar to feces. Before this smell it was similar to the smell of...
1 answer |
Avatar universal
Last year in June or July my cat made a hole in the screen to the back porch, and he was getting out for about a week or so. One night I ...
Avatar universal
hello.I'm 39 years old woman.My Ca 19-9 blood marker is 125 and tumor m2-pk ondure is 25. No symptoms, which are painful. All other resu...
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Two months ago I got arose thorn in my eye. About 10 days later it ached, swelled and there was an infection. Had drops. The next week in...
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On july 13th 2016, a stray cat that has been around my house for a few years bumped into me accidentally trying to come to my house. Prob...
1 answer | 1 comment |
Avatar universal
EDS Hypermobility, familial. Finally getting the diagnosis at 40, have had signs & symptoms since birth, like reflux, hypermobility, vomi...
1 answer |
Avatar universal
It happened 4 years ago. I had a gf before, she just took a new baby dog (2months~3months old). When we played naked, we also touched t...
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I went to a water park in San Miguel de Allende (Mexico), about a week ago, and I got water up my nose four times. I had a frontal headac...
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I went to a water park, about a week ago, and I got water up my nose four times. I had a frontal headache recently and I am very worried ...
Avatar universal
I really need your help.The symptoms described below began in Feb 08. As yet, there has been no conclusive diagnosis and the ailment is i...
5 answers | 1 comment |
Avatar universal
I have a extremily rare orphan disease called Dercum's Disease. Is there any doctor on this site familiar with this disease or has treate...
68 answers | 1 comment |
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