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SURVIVING NEUROLOGICAL LIMBO LAND - NO DX Group
This is a group for anyone who is currently living in limbo land with a neurological disorder but doesn't have a diagnosis.
Many people are living with chronic and disabling neurological problems which mirror such diseases as multiple sclerosis, lupus, M.E., Fibromyalgia, Lymes disease, Vitimin D deficiency, Migraines, Parkinsons yet have no diagnosis and are left to literally struggle on alone.
I have set up this group to help support people through their journey, whether its just for a moan, sharing a joke, experiences, advise on how to survive just plain anything.
I know there are a lot of us out there.
Anyone who feels lost, or needs to share or just wants a big hug please join, there will always be someone to give you support.
OUR MOTTO IS:
"we are still all in this together..no matter what point of our journey we are in...limbo, dx. or just joining...we are all here for a reason...to seek support, make a friend and find answers..."
Questions
Hi everyone you can introduce yourself on this thread.
What brought you here, how long you have been waiting for a diagnosis and a li...
last January Ive encountered right leg got swell, i go to my doctor and was diagnosed as cillulitis, the i took antibiotic for ten day th...
I spent 2 years trying to get a firm diagnosis - I even spent 5 months on antibiotics for Lyme. I had plenty of MRIs and blood tests. M...
Hi everyone,
I'm from the UK and getting increasingly frustrated with our system for getting a diagnosis and I've come to realise that t...
i am hoping the reason its been so quiet here is because everybody got a dx's. wondering were everyone is.
I am so glad to have come across this group! I have been suffering for almost a year with a number of things and no one has a clue so I f...
its been awhile. i needed to take a break from pure frustration. I have had it with my neuro and my muscular neuro. my neuro wants me wan...
A list of national and international resources and hotlines to help connect you to needed health and medical services.
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PrEP is used by people with high risk to prevent HIV infection.
