von Willebrand Disease Community

WELCOME TO THE COMMUNITY: This Patient-To-Patient Community is for discussions relating to von Willebrand’s Disease (VWD), which is a bleeding disorder. It affects your blood's ability to clot.

Ask a question

1 - 20 (of 28) questions

Question re high levels of factor 8 and vwf

Laila5678

Was tested for von willebrand and nurse told me referring to hematologist but lab work shows high levels of factor 8 and vwf?

1 answer

nose bleed

meleighmar

my 4 year old has VWD 2B and has bloody noses every so often. We give him aminocaproic (amicar) as prescribed but sometimes that doesn't...

2 answers

Von willebrand's diease ??

simplyfrustrated

Has anyone heard of this dieases? I've been having clotting problems for as long as I can remember. From long lasting regular nose bleeds...

7 answers

In need of help!

GabbyGal81

My name is Gabby, I'm 17 years old. I was diagnosed with vwd 5 years ago.I've struggled tremendously with this disease. I get infusions t...

2 answers

any thoughts

tigger9869

I have vwd and just turned 40. In july 2012 had d and c due to bleeding bleeding returned that nov. Use the nasal spray which helped a b...

1 answer

von willebrand

booboo1982

Things that you may not know about von willebrand .some food and medication like walnuts and ginger. walfren and some headache tables an...

Von Willebrand's and Intimacy Issues

jennymd18

Hi I was diagnosed with Von Williebrand's Disease five years ago due to bleeding during intercourse. After multiple tests (Paps, STD test...

7 answers

How did you find out you had VWD? What were your symptoms?

Pips80

Hi, I'm trying to decide whether I should see a doctor. Apologies in advance, this is a long post, but I'd really appreciate some advice ...

3 answers

Natural Baby Delivery

MandysBump

Hi! Im pregnant, my baby's due Feb 28th. I have VWD Type 1. The hematologist explained to me that since Im a type 1 that I shouldnt have...

5 answers

Von Willebrand 2B

countrylib

I was just diagnosed with what I believe the common name is Von Willebrand 2B disease. It is different from the rest because I actually ...

1 answer

Wow - theres no one here - I'm the very first one!

Boo25

Well, when any one gets here - Hi - I have VWD Type 2A. Dont have a question, just thought I'd introduce myself!

10 answers

Von Willebrand Disease deep bruising

shaetg

Recently I had an injury on my tibia. While there was obvious swelling (that went away with ice) and extreme pain, there is virtually no ...

1 answer

Von Willebrand and Fibromyalgia

cambee0513

So another topic I have been trying find people in the same predicament (sp) as me. I was diagnosed with von Willibreand disease recentl...

1 answer

Blood Count after my 3 year old's nose bleed

cambee0513

I am asking a strange question here because anyone who does NOT have VWD would automatically question why I did not bring my daughter to ...

1 answer

VWD support pages?

stacygiano

Hi, I was recently diagnosed with VWD after many years. I am trying to find support groups who can offer advice on living with this cond...

VMD or other bleeding disorder

ACGauthor

First of all, forgive me for posting this in the VMD forum, but there doesn't appear to be a forum for other bleeding disorders. Full ...

2 answers

Elevated Von Willebrand Factor/Activity

massivepesurvivor

Does anyone here have elevated level of Von Willebrand Factor and Von Willebrand Activity?

Please visit our new Stem Cell Research Community.. ..

MH Community Mgr

Please join us for discussion and support on our new Stem Cell Research Community Looking forward to seeing you soon! Memory Loss Co...

I'm 14 and my period has been going for about 3 weeks+ HELP

xXJessicaXx54

I'm 14 and my period wont stop, it started last month, and it's been going for a good month now, i havent went to the doctor cuz i havent...

1 answer

varicos vien medicine?

mirwais

Hello all: Scince 6 Years i am seeing a swelled vien in my right leg calf having lenght of 5 centimeter without discoloring and i did...

1 answer

Ask a Question

VISUAL SNOW UPDATE: 2018

John C Hagan III, MD, FACS, FAAO

04/18

2018 General Information on Dry Eyes-Now known as Ocular Surface Disorder

John C Hagan III, MD, FACS, FAAO

03/18

TMJ – What a Pain in the Neck! “Elegant Ecology”

Hamidreza Nassery , DMD, FICOI, FAGD, FICCMO

01/18

Popular Resources

Nutritional Supplements and Heart Health

Fish oil, folic acid, vitamin C. Find out if these supplements are heart-healthy or overhyped.

Dabigatran: Better Blood Thinner Than Warfarin?

In this latest Missouri Medicine article, Richard J Weachter, MD, details the pros and cons of new blood thinner drug Dabigatran (Pradaxa).

Cuppa Joe: Friend or Foe?

Are there grounds to recommend coffee consumption? Recent studies perk interest.

Shake the Salt Habit

Salt in food can hurt your heart.

Angina (Chest Pain) FAQs

Get answers to your top questions about this common — but scary — symptom

Not a Heart Attack? Other Causes of Chest Pain

How to know when chest pain may be a sign of something else