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von Willebrand Disease Community

WELCOME TO THE COMMUNITY: This Patient-To-Patient Community is for discussions relating to von Willebrand’s Disease (VWD), which is a bleeding disorder. It affects your blood's ability to clot.
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1 - 6 (of 28) questions
Avatar universal

Question re high levels of factor 8 and vwf

Laila5678
Was tested for von willebrand and nurse told me referring to hematologist but lab work shows high levels of factor 8 and vwf?
1 answer   
Avatar universal

nose bleed

meleighmar
my 4 year old has VWD 2B and has bloody noses every so often. We give him aminocaproic (amicar) as prescribed but sometimes that doesn't...
2 answers   
Avatar universal

Von willebrand's diease ??

simplyfrustrated
Has anyone heard of this dieases? I've been having clotting problems for as long as I can remember. From long lasting regular nose bleeds...
7 answers   
Avatar universal

In need of help!

GabbyGal81
My name is Gabby, I'm 17 years old. I was diagnosed with vwd 5 years ago.I've struggled tremendously with this disease. I get infusions t...
2 answers   
Avatar universal

Von Willebrand's and Intimacy Issues

jennymd18
Hi I was diagnosed with Von Williebrand's Disease five years ago due to bleeding during intercourse. After multiple tests (Paps, STD test...
7 answers   
Avatar universal

How did you find out you had VWD? What were your symptoms?

Pips80
Hi, I'm trying to decide whether I should see a doctor. Apologies in advance, this is a long post, but I'd really appreciate some advice ...
3 answers   
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