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von Willebrand Disease Community

WELCOME TO THE COMMUNITY: This Patient-To-Patient Community is for discussions relating to von Willebrand’s Disease (VWD), which is a bleeding disorder. It affects your blood's ability to clot.
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1 - 6 (of 28) questions
Avatar universal

Question re high levels of factor 8 and vwf

Laila5678
Was tested for von willebrand and nurse told me referring to hematologist but lab work shows high levels of factor 8 and vwf?
1 answer   
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nose bleed

meleighmar
my 4 year old has VWD 2B and has bloody noses every so often. We give him aminocaproic (amicar) as prescribed but sometimes that doesn't...
2 answers   
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Von willebrand's diease ??

simplyfrustrated
Has anyone heard of this dieases? I've been having clotting problems for as long as I can remember. From long lasting regular nose bleeds...
7 answers   
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In need of help!

GabbyGal81
My name is Gabby, I'm 17 years old. I was diagnosed with vwd 5 years ago.I've struggled tremendously with this disease. I get infusions t...
2 answers   
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any thoughts

tigger9869
I have vwd and just turned 40. In july 2012 had d and c due to bleeding bleeding returned that nov. Use the nasal spray which helped a b...
1 answer   
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von willebrand

booboo1982
Things that you may not know about von willebrand .some food and medication like walnuts and ginger. walfren and some headache tables an...
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