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von Willebrand Disease
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von Willebrand Disease Community
WELCOME TO THE COMMUNITY: This Patient-To-Patient Community is for discussions relating to von Willebrand’s Disease (VWD), which is a bleeding disorder. It affects your blood's ability to clot.
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1 - 20 (of 28) questions
Question re high levels of factor 8 and vwf
Laila5678
Was tested for von willebrand and nurse told me referring to hematologist but lab work shows high levels of factor 8 and vwf?
1 answer
nose bleed
meleighmar
my 4 year old has VWD 2B and has bloody noses every so often. We give him aminocaproic (amicar) as prescribed but sometimes that doesn't...
2 answers
Von willebrand's diease ??
simplyfrustrated
Has anyone heard of this dieases? I've been having clotting problems for as long as I can remember. From long lasting regular nose bleeds...
7 answers
In need of help!
GabbyGal81
My name is Gabby, I'm 17 years old. I was diagnosed with vwd 5 years ago.I've struggled tremendously with this disease. I get infusions t...
2 answers
any thoughts
tigger9869
I have vwd and just turned 40. In july 2012 had d and c due to bleeding bleeding returned that nov. Use the nasal spray which helped a b...
1 answer
von willebrand
booboo1982
Things that you may not know about von willebrand .some food and medication like walnuts and ginger. walfren and some headache tables an...
Von Willebrand's and Intimacy Issues
jennymd18
Hi I was diagnosed with Von Williebrand's Disease five years ago due to bleeding during intercourse. After multiple tests (Paps, STD test...
7 answers
How did you find out you had VWD? What were your symptoms?
Pips80
Hi, I'm trying to decide whether I should see a doctor. Apologies in advance, this is a long post, but I'd really appreciate some advice ...
3 answers
Natural Baby Delivery
MandysBump
Hi! Im pregnant, my baby's due Feb 28th. I have VWD Type 1. The hematologist explained to me that since Im a type 1 that I shouldnt have...
5 answers
Von Willebrand 2B
countrylib
I was just diagnosed with what I believe the common name is Von Willebrand 2B disease. It is different from the rest because I actually ...
1 answer
Wow - theres no one here - I'm the very first one!
Boo25
Well, when any one gets here - Hi - I have VWD Type 2A. Dont have a question, just thought I'd introduce myself!
10 answers
Von Willebrand Disease deep bruising
shaetg
Recently I had an injury on my tibia. While there was obvious swelling (that went away with ice) and extreme pain, there is virtually no ...
1 answer
Von Willebrand and Fibromyalgia
cambee0513
So another topic I have been trying find people in the same predicament (sp) as me. I was diagnosed with von Willibreand disease recentl...
1 answer
Blood Count after my 3 year old's nose bleed
cambee0513
I am asking a strange question here because anyone who does NOT have VWD would automatically question why I did not bring my daughter to ...
1 answer
VWD support pages?
stacygiano
Hi, I was recently diagnosed with VWD after many years. I am trying to find support groups who can offer advice on living with this cond...
VMD or other bleeding disorder
ACGauthor
First of all, forgive me for posting this in the VMD forum, but there doesn't appear to be a forum for other bleeding disorders. Full ...
2 answers
Elevated Von Willebrand Factor/Activity
massivepesurvivor
Does anyone here have elevated level of Von Willebrand Factor and Von Willebrand Activity?
Please visit our new Stem Cell Research Community.. ..
MH Community Mgr
Please join us for discussion and support on our new Stem Cell Research Community Looking forward to seeing you soon! Memory Loss Co...
I'm 14 and my period has been going for about 3 weeks+ HELP
xXJessicaXx54
I'm 14 and my period wont stop, it started last month, and it's been going for a good month now, i havent went to the doctor cuz i havent...
1 answer
varicos vien medicine?
mirwais
Hello all: Scince 6 Years i am seeing a swelled vien in my right leg calf having lenght of 5 centimeter without discoloring and i did...
1 answer
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