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von Willebrand Disease Community

WELCOME TO THE COMMUNITY: This Patient-To-Patient Community is for discussions relating to von Willebrand’s Disease (VWD), which is a bleeding disorder. It affects your blood's ability to clot.
1 - 20 (of 28) questions
Was tested for von willebrand and nurse told me referring to hematologist but lab work shows high levels of factor 8 and vwf?
my 4 year old has VWD 2B and has bloody noses every so often. We give him aminocaproic (amicar) as prescribed but sometimes that doesn't...
Has anyone heard of this dieases? I've been having clotting problems for as long as I can remember. From long lasting regular nose bleeds...
My name is Gabby, I'm 17 years old. I was diagnosed with vwd 5 years ago.I've struggled tremendously with this disease. I get infusions t...
I have vwd and just turned 40. In july 2012 had d and c due to bleeding bleeding returned that nov. Use the nasal spray which helped a b...
Things that you may not know about von willebrand .some food and medication like walnuts and ginger. walfren and some headache tables an...
Hi I was diagnosed with Von Williebrand's Disease five years ago due to bleeding during intercourse. After multiple tests (Paps, STD test...
Hi, I'm trying to decide whether I should see a doctor. Apologies in advance, this is a long post, but I'd really appreciate some advice ...
Hi! Im pregnant, my baby's due Feb 28th. I have VWD Type 1. The hematologist explained to me that since Im a type 1 that I shouldnt have...
I was just diagnosed with what I believe the common name is Von Willebrand 2B disease. It is different from the rest because I actually ...
Well, when any one gets here - Hi - I have VWD Type 2A. Dont have a question, just thought I'd introduce myself!
Recently I had an injury on my tibia. While there was obvious swelling (that went away with ice) and extreme pain, there is virtually no ...
So another topic I have been trying find people in the same predicament (sp) as me. I was diagnosed with von Willibreand disease recentl...
I am asking a strange question here because anyone who does NOT have VWD would automatically question why I did not bring my daughter to ...
Hi, I was recently diagnosed with VWD after many years. I am trying to find support groups who can offer advice on living with this cond...
First of all, forgive me for posting this in the VMD forum, but there doesn't appear to be a forum for other bleeding disorders. Full ...
Does anyone here have elevated level of Von Willebrand Factor and Von Willebrand Activity?
Please join us for discussion and support on our new Stem Cell Research Community Looking forward to seeing you soon! Memory Loss Co...
I'm 14 and my period wont stop, it started last month, and it's been going for a good month now, i havent went to the doctor cuz i havent...
Hello all: Scince 6 Years i am seeing a swelled vien in my right leg calf having lenght of 5 centimeter without discoloring and i did...
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