Hi, I'm not sure what happened to your notes..but I'm happy to hear from you! I've heard of that "condition" before, I bet you are so relieved to finally have a name to put with your symptoms! Are you going thru PT to help or is there a way to reverse it? My balance is still off but is now secondary to my ability to walk...my gait is real off and my left leg is weak and numb most of the time which makes getting around a nightmare. I'm going back to the Mayo for more testing on Monday, still no diagnosis...=( Glad you are getting support from others and hope it continues to help you!!
Happy New Year! Been thinking of you and hoping you had a great holiday season and that you are doing well!! Wishing you healthy days ahead in 2015!!
Hi there! Not sure how I missed your note, but what WONDERFUL news, so happy/relieved for you! You've been on my mind!! I hope the PT helps, I have good days and not as good days with the balance..it all depends on how much stimuli I'm dealing with...it's a struggle. I'm having great difficulty walking lately, there is miscommunication going on somewhere so now I'm worried that I have a motor neuron disease...the stress of this all is getting hard to deal with and yet trying to keep my chin up for the kids. Praying for answers soon!
Hi, just a note to let you know I've been thinking and praying for you!
Oh, I am so saddened to read this news, my heart just dropped! I hope that the biopsy goes ok and if it is what you fear it to be, that it was caught early enough to treat! So unfair, I'm so sorry! I will be praying for you as you go thru the next couple of days dealing with the unknown and will be thinking of you on Monday. Hang tight!!! (((hugs!!))
Hi there! Just a note to check in and see how you've been doing? We had our first snow of the year, the kids are loving it...me, not so much! ;-) I hope things are going well for you!! =)
Hi there! How have you been? I agree, this Medhelp site has been a blessing, so many kind and informative people who are either dealing with or diagnosed. Hope you friend is able to find the support she needs! It would be nice to have a local support group to help me with all that I'm dealing with....trying not to burden my husband with every little thing that appears to be going wrong with me and protecting my kids so they don't worry. I haven't told too many friends what I'm dealing with, because right now I haven't a clue what it is! I have an appt on Dec 8th at the Mayo where I hope they can take a look at my life these past 5 months and counting and make sense of it all! How have your symptoms been? Getting any steadier? Really hope you are finding your way back to "normal"!
Hello! Keep fighting!!!! What kind of weird explanation is that...a normal abnormal MRI?? Did he/she say what is on the MRI to mark it as abnormal? Seriously, sometimes I really wonder about these doctors!!?? Glad to hear some of it is getting better, I hope your GP doctor is a better advocate for you and can help sort all of it out. The Mayo called and the soonest they can get me into see them is Dec 8th...ugh...that's 2 months away! So in the mean time I will be doing PT and muddling thru with my Neuro to see if the mystery of ME can't get figured out! Praying that we both get answers and relief soon! Hang in there!
hello again! I had left you another message back in September, not sure what happened to it? Just didn't want you thinking I ignored you, I appreciate the friendship! =)
Hello! Thanks for the note...not getting any better =( I will be starting PT for the Vestibular deficit and am getting no where with the Neurologist I am seeing so my Internal Med doctor sent a referral to Mayo...won't hear back for a week or so if they will agree to see me and then not sure how long after that it will take to actually get an appt...so the saga continues. I'm usually a pretty easy going/positive person...but this is starting to get me down, not good! How have you been? It'd be so great to hear that you were getting better...fingers crossed!! :-)
Hang in there Diane.
I truly sensed you're feeling very challenged these days and listen, most of us have been in similar situations and we understand what it is like.
Your almost significant other, showed his true colors when he "bailed out" on you at a time you really needed him.
Better now than later though, even if you could use his support and help at the present time.
Don't hold any harsh feelings inside you because of that, just forget and forgive. Call it human nature, whatever, but
you definitely deserve better and you will be rewarded with improved health and love my dear.
Just have faith and stay strong.
Love and Light.
Absolutely, a friend for sure! =) Oh wow, that would be crazy if that is what it was...something you took to make you better only made you worse! =( But how great would it be if that was the solution, to get rid of the meds and get back to normal...I really hope that it is a quick and easy turn around for you!! Things still status quo..we went to the Apple Orchard on Saturday and I had to hold my husband's hand the whole time, I teased him that we haven't held hands this much since we first started dating! ;-) Another appt on Thursday at the Natl Dizzy and Balance Center, can't wait to hear what else they find is "off" with me! ;-) Hair appt was great, thanks for the encouragement to get it done! Hope today was steadier than yesterday and tomorrow is even better!
Hello! Hope the meds have kicked in and are providing you some relief!!
Oh man, I sure hope it is your sinuses and that they can straighten that out for you...that would be fantastic!! You are right, I made an hair appt for tomorrow while my 2 little ones are in preschool...at least my hair will look good while the rest of my body is falling apart! ;-) Never been to Oregon, seems like a nice place to live! Have a great weekend =)
Hi, thanks so much for the note, nice to hear from you! I went back and read that your VNG test came back normal and how quickly you were able to get that done!! That is good news! But, I feel your frustration in that you would like "something" to be found so you know what you are dealing with and can have a plan! Still waiting here...tests, tests, and more tests...symptoms. symptoms and still no diagnosis! Ugh! That's so nice that you have a lot of long term customers, must make it easier to work when you are not feeling well because at least they understand that you aren't feeling the best! I am 6 months past my haircut/color appt..just can't find the energy to go in! I don't suppose you make house calls! ;-)