ok don't worry about it have u not read the other post WAKE UP
hello, my name is Kelley, i am an RN too, I live in Dayton Ohio, but grew up in southern California. After 1yr of dr's appts and mystery symptoms, I have come to believe I may have Lymes disease, and may have had it since I was 11yr old (trip to mountains in CA, very sick afterwards- told by docs was flu and 1st outbreak of herpes simple), Interestingly enough, i never had another bout of oral herpes, until the last 9 months- having reoccurences sometimes 2xmonth- accompanimg muscle pain, extreme fatigue, depression, ect.... So, my email is ***@****- please email me if ya would, i'd like to ask you some questions please. Thanks, Kelley
Just a quick note to say hi ! I see you wrote me a message, but for some reason.... I can't open it !!!!
Just a quick note to say hi! I still haven't heard back from Igenex regarding my question. My next one will be trying to undersand their comment on sensitivity/confidence of the test (that's another one that isnt clear to me)!
You're in my thoughts all the time, but especially today. Haven't "seen" you in awhile, hope you are ok and taking care of yourself.
Thanks for writing back. My story is that I've had Lymes in the past (but was treated for it) even though it never tested positive, just had major abdominal surgery, and now have L'hermitte's sign and numbness in fingers. I was looking long and hard for other possible diagnoses but believe on Tuesday (my next Dr. appt.) that they will diagnose me with MS. I was 'hoping" for something (anything) else.
I'm glad to hear that you are still working and exercising. Living where I do in NH where Lymes is endemic, doctors now seem to treat if there is any possibility of Lymes. Onward!
I am interested in hearing how you are doing now. I read one of your threads from 2006 when you were having L'Hermitte's sign and other neurological symptoms and it recurred after a major surgery. I have just gone through similar. I have had Lymes disease before (though it always tested negative). Anyways, I recently had major surgery and now I have L'Hermitte's sign. I'm looking for it to be something other than MS.
Patsy, you sent me an email and I am sorry, but I am not able to open it right now. I am not if I responded or not. Thanks for your help.
happy easter! happy spring!
Patsey I saw on someones thread you offered to find out an LLMD to do a Lyme test can you do that for me its around Temecula ,California , Thanks a lot
Hi Pasy! How are you feeling today? I wrote to you awhile ago when everything was going wrong well things seem to be getting worse. My doctor says one of the illness that I have is Fibromyalgia I am not the same person I was over a year ago. This all started after a rabie vaccination shot. Please take care and hope to hear from you....Peace, Love and Cheers to you and your family...mamak
Just wanted to thank you for all your helpful comments. How long have you been dx'd? Also how did you finally get a dx? I have found that you and I have a LOT of the same sx and experiences.
Have a great day and Thanks again!
Hi patsy10, I think it was you who posted that doxy can cause extreme sensitivity to sunlight/UV. (Sorry if I'm mixed up.) Do you know if that is the case with other antibiotics? I'm on minocylcine, which I think is the same class. Any advice you have would be appreciated.
Thank you for your devotion to the Lyme forum!
You're in my thoughts all the time, but especially today. Patsy my name is K and I saw you on another site a year ago in fact it was rfandy we are going through the same thing but I try to contact the person but with no response, You are going through so much. Please take care. Peace & Love to you....K
Happy Valentine's Day ! I hope you have a great day tomorrow.
I'm sorry about your bit of relapsing. This too will pass. Have faith.
My case of the dizzies has reared its ugly head...hope this is the worst of it.
Thanks for the info,I'll check him out :-)
hi patsy. Do you see Dr. B???
Hi Patsy. Just wanted to say Hi. I haven't been able to figure out the tag game, but will give it a shot. A little tired in the evenings right now!
Take good care!
Thank you for your post on the CDC scandal thread !
Happy Holidays! Hope everything is going good! Have a good Christmas! =)
Happy Holidays ! I hope you have a GREAT Christmas and Happy New Year !
Just a quick note to say hi! ???? just noticed spam abuse>>>by Alidora Have no idea where that came from. I certinly wouldn't report anyone esp. from the group for spam abuse....Bruce
Patsy10...I remember from reading your posts that you live in OH...My sister in law lives in Zanseville OH...She was DX'd with Lupus 8 years ago.Just recently she discussed in depth w me what symptoms she is exhibiting.through info I have given her, and her symptoms,she has come to the conclusion that she has LD. Would you mind if she contacted you?
I got your message about the lime disease. I thought OHH GREAT!!!!!!!!!! Something else to consider. I guess I need to find a doctor to test me for Lyme disease also. Thanks for the post.
Just a quick note to say hi!
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, Sep 27, 2008 01:27PM
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You can order a copy of the DVD here: www.underourskin.com/store.html
I bought it and it is worth every penny! It costs about $35.
The book "Cure Unknown" is also a very good addition to a Lymie's bookshelf.
Patsy...I AM SORRY...I gave you some misinformation...the DVD hasn't been officially released... went to my files. What was there was DVDs being released to gov. officials,NOT the public sector... I misread the message.
Just a quick note to say hi! patsy...here is a website that covers just about everything pertaining to Under Our Skin. If this Doesn't work for you, let me Know I have more sites stored somewhere in my files just have to remember where...I REALLY need to organize my files...Bruce