Hi Rebecca: after 5 years of this chest pain I finally went to a Pain Management Specialist.At first he said there was nothing really 'out there' to help with the unpredictable nature of MVD especially when there is a concern that our symptoms need intervention with additional nitro and 'stopping' to get thru the SOB.The FDA just gave approval for the re-release of a drug that you take every day that masks the pain but not to the extent that you can't feel the chest pain or SOB; it just seriously diminshes the pain with out the drowsy, dopey,sluggish side effects that other drugs give.This has been a huge breakthru for me and my daily life.When I over-exert and a problem starts I do not have the following days of discomfort.I feel a whole lot better.Google it.
I was wondering why you weren't posting. This MVD is awful;like waiting for the other foot to drop.It's difficult to plan a thing or be relied upon for much as this is always on your mind.Medications are the best answer for us and learning to manage it.It took months for me to get it straight and remain calm in the face of pain.I really did make an appt with cardiologist and Emory to discuss emergency care.And I'm a cardiac nurse; but this beast is different.Joan
Just a quick note to say hi! I've posted an addition to my journal.Again, another implication with MVD.I've been told I've probably had sleep apnea for "DECADES"..that'll take me back 20-30 years. See what you think and if this could be an avenue for you to check out. Joan.
Good job! And another fine example of professional Journals' attempt to put everyone in the same category.Watch my site next couple of days and I'll provide another fine example of dumping in the same category.I'll admit up front about possible 'leading' but could 8 doctors ask a different question? Joan.
Here are some other things to help.Apply thru your state DMV web site and download application( to be signed by MD)for a handicap card for your vehicles.Those fewer steps getting into a store/movie makes a big difference.The other is to consider applying for SS Disability.Each state is different with rules/decisions.It also depends on what type of work you are able to do.Re:MVD: 2 nurses I know of applied:1 changed work load,other(OB)had to retire with SSD,she is 40.Another girl I know is in early 40s and rec'd disability.I tried but as I had retired,my benefit would only equal one month payment so I did not pursue.Just thoughts that may help.Joan.
What I didn't say regarding working is that I worked through my responsibilities with all the thumping, shortness of breath and great tiredness because I was told there was nothing wrong.Opportunity presented itself that I stopped working.Good thing, as my symptoms rapidly changed.You just keep doing until you can't, but get help with reducing periods of stress;just makes the heart work harder when IT can't work.Good job on posts but try to change them up a little for this forum from your other blog to reflect the consequences of MVD.I may be out of 'norm' for MVD,but no doctor knows if this is normal transition in the MVD process.Joan.
Good job!Just read your blog.I do need to qualify that Emory,U fo Fl, Mayo does not have another patient like me due to severity and response to therapies.I am a little cautious about having other women consider this diagnosis as I am "2 deviations from norm" with the NIH studies.But perhaps it's because of progression.I have MVD(dysfunction)but not disease:lipids great,no plaques,no narrowing or intralumen deposits.Researchers feel that my dysfunction is at a HEART MV cellular level and that my body has stopped or reduced production of nitric oxide,a precursor to relaxation of the single cell thickness MV,thereby my great response to nitro.No other MVD found in body.What are you able to do? Meds?Yeah,I got a scooter!Can you get my email form blog so I can send you articles?
I'd really like to hear from you and where you are in this process and how your diagnosis was made and how long you've had problems.I am very knowledgeable about this dysfunction (MVD) and have several articles I could share with you.