So sorry, i've only just noticed your note earlier this month, i've missed chatting with you too..ok we're still trying to renovate our investment unit so we can sell it and pay off our home mortgage but it was a totally stupid stupid thing to do 'prior' to actually having the inheritance money in hand first, the delay has caused more problems than it was suppose to solve. Working on it 7 days a week since mid Feb agh as you'd expect we're all exhausted, broke and totally over it lol but it's not finished so the saga continues....2016 has not been a good year for us but 2017 should be better. what's happening your way? HUGS!
Hey babe! Crazy busy with volunteering but now that May is over it will just be crazy. The new format here is a headache. Sometimes I still get the old format (don't ask) and I miss it. Once you click on the post you want to read there's a circle or bubble or something that you also have to click to see all of the answers. How are you doing?
Just a quick note to say hi! Candy, The trip was a fairy tale. It was amazing. Viking cruises are like the commercials. The towns we visited were amazing. Meeting the my god mother's nephew the Prince of Hohenlohe- Langenburg Germany was unreal. Her castle was so big.
Hi doll!! Hugs back atcha!!
Not much knew here and while I don't feel great, I don't feel awful. I hope things are going well with you.
Shocking right??? hahah Yes, I'm still going all natch, and doing well! oxoxoxoox Glad you popped back in too <3
Hi doll! I do live in NB and it has been hot and humid for quite a bit but I'm doing OK.
Rebif was good to me but I usually had a mild fever the morning after despite taking acetaminophen before the shot. My injection sites used to take a few days to get red and that lasted a few days too. I was very tired but that may not have been the Rebif so much as the MS. :-)
I heard this week that Plegridy was now available in Canada. It will be a while for the provincial plans to approve it but when I switched to Tecfidera it was not in the drug plans either and Biogen gave me the drug for free until it was covered.
Just a quick note to say hi! Candy, I am doing well. This summer has been okay. I swim for an hour each day even though it makes me tired. I am also walking. We are going to Europe next month so I want to be in shape. My feet are my biggest MS problem. They hurt all the time.
I am sorry about your sad day. That is the worst ever. Hang in there.
Hi doll! Big bear hug right back to you! :-)
The summer is getting downright hot here in NB.
I am so sorry Copaxone is still giving you issues. I never tried it but used Rebif for a year if you think that switch might be coming.
Thank you for your encouraging words. I will wait for a while .. but yes, if I must, I will pursue another opinion. My doctor just looked at me when I suggested I was done, and said, "No, you are not." How are things with you?
Just a quick note to say hi!
Hi Candy, thanks for dropping by. I just saw your note. Sorry you are not having a good experience either. Hope your clinic is better. I am in Windsor Ontario and there is not much of anything here medically. One has to go to London, 2 hrs away or further. Take care and it is good that we can have a group like this where we can support each other. :)
Just a quick note to say hi! Thanks for the note I think of you a lot. How is the UTI situation?
Just a quick note to say hi! I am on Facebook it is Alex or Alexandra Kirkbride O'Connor
Thanks for your caring thoughts Candy. This somebunny loves you too! :-)
Thanks for your caring Candy. I will send you a pm soon, after my MS Counsellor has been. Hugs OXOXO
Thank you for the welcome and friend invite. Bless your heart, I hope you get some pain relief soon! I had an older OT patient once who was really struggling, she asked for prayers, and we talked about God not giving us more than we can handle..she said, "I agree, but sometimes I think He maybe goofed with me.". We both had a lil chuckle at that..I try and keep my humor, tho I may be crying at the same time...
Happy New Year! I hope 2014 brings you much happiness & good health.
You're in my thoughts and prayers!
I am praying you have a speedy recovery. I really hope this is sorted for you soon. My thoughts are with you. Take Care, Karry.
Praying you recover quickly and are comfortable in the meantime.
Blessings to you and your family.
Hello, Candy. Thank you for the encouraging note. Been having sx for 8+ years but they would remit before I went to dr. Last Sept., a half dozen old and new sx ganged up on me so I went to dr. She ordered MRI which radiologist said was demyelination. After MRI and positive CSF, got confirmed RRMS dx in Feb. this year and now with 3rd neuro, more tests. Latest MRI showed 'no significant progression' in last 10 months but there's a new lesion on the brainstem. Neuro's notes in part say, lesions 'scattered throughout the juxtacortical' and lesions in 'periventicular'. I've seen in other posts that these are on the McDonald scale for positive dx. Thought sx would go away like they did before, but not all have. Tired all the time. But counting my blessings - which are legion!
Just a quick note to say hi! Sounds like you have been through a lot. I am just tired from the chemo.
Thanks Candy. How is everything going with you???? Hugs, Kelly
Just a quick note to say hi! Thanks I am better today. My friend took me to the Cancer Center today. It was good to have a friend. Thanks for the hug it helps. I hope you are hanging in there things have not been easy for you.
Thank you love. Miss you too. I'm keeping on-keeping on :( Heart hurts a bit, but I'm getting there. Thank you for thinking of me. I think of you too a lot, and hope we can catch up soon. xoxo
Thanks for thinking of me. I'm currently on short term disability & have filed paperwork to get on our gov't disability (social security). It seems like I'm always at the doctor. I've already had 82 appts this year - have to keep track for taxes. I'm glad it's benign for you; that's great news. I hope all the others are the same. :-)
Thank you for everything! I know that you are going thru your own trials and tribulations and I appreciate so muchthat you posted your support for me! It means so much.
I hope you are feeling better and know that I am sending you gentle hugs in return!!
You're in my thoughts all the time, but especially today. I hope the surgery went well.
Just a quick note to say hi! You have a lot going on. I am status quo right now.
You are in my thoughts and prayers. Thanks for your support and caring!!!!
Please let me know how it goes!
It's good that the surgery is over. I hope you get get news about the biopsy. Good luck with your next appt.and your surgery. I'll be thinking about you.
My MS doctor said that I should apply for social security disability. When I told my work that I needed to apply for short term/long term disability they let me go. I'm sure that's illegal. My attorney appt is on 12 June for my disability. Now I'm not sure about my medical benefits or anything. I'm waiting for further info from my employer or former employer. I'm still not sure if I'm employed or not.
You deserve a big bear hug! Thank you for the sweet note! I saw on the forum your surgery is over. I will pray for good results! I hate waiting! :(
I didn't go on the forum much in the last 2 months after the UofM neuro said I didn't have MS. Now I don't know what I have! I missed you too. You guys are like my family. I felt like I shouldn't be a part of the group since I didn't have MS. I didn't want to say the wrong thing to anyone. It was a lonely 2 months.
Adrenal test results...didn't come back yet. Hopefully tomorrow. Sunday was a HORRIBLE day, so I didn't take my prednisone (5mg) yesterday. (It seems like a get worse after I take it)
I felt a little better yesterday.....so I didn't take it again today. I feel pretty good. Not great, but better. Hmmm.
Hey -- thanks for the note! I'm just a 30-something wife and mom of three living in Washington State. Been on this neurological roller coaster for about 16 months...5 MRIs, two neuros, and countless other tests later I'm still undx. Waiting to see a neuro again here in June and hopefully get a round of higher powered MRIs that can maybe figure this out once and for all! Take care and I'll see ya on the forum!