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Just a quick note to say hi!
You deserve a big bear hug!
You're in my thoughts all the time, but especially today.
Thank you for everything!
Welcome to our community!
You are in my thoughts and prayers.
Hope you feel better soon!
Congratulations! Time for a celebration...
Happy Birthday!
Avatar universal
08/14
Thank you brainfried  realise that you have sent a new note.  all the rest seem old.  28.08.14
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Avatar universal
08/14
Just a quick note to say hi!
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Avatar universal
08/14
Just a quick note to say hi!
I used to run an epilepsy board and a lot of the patients were from the UK. They had very similar issues. It's starting to get pretty socialized in the US also. I always made sure that the patients on my boards did as I do. Lots of water, nutrition, and meditation. It's hard to meditate when you feel so weak because meditation always brings out the worst of your symptoms, but it makes you more in-tune with your body. All I can say is that nervous system issues are just not well understood by even the best in the medical community. Sometimes it's up to us to dig down, feel your pain, and let your mind heal in its own way.
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1627868 tn?1333886342
12/11
You're in my thoughts all the time, but especially today.  I hope you are doing well!  May this new year bring you comfort, healing, and peace.  I pray that this year will bring you many blessings!!!  Happy New Year!
Love and hugs!!!
Sarah
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Avatar universal
12/11
thanks, suz.  i hope you are doing well these days.  xoxoxox
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956292 tn?1334054869
12/11
You are in my thoughts and prayers.
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956292 tn?1334054869
12/11
You deserve a big bear hug!
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956292 tn?1334054869
12/11
You deserve a big bear hug! Awwwee..I hope hubby feels better soon.....I know what you mean. I am so not ready for Christmas either... I bought gifts and changed my mind and have returned some already. I am such an idiot because I can not make up my mind...I am just not ready for it...Can I just go to sleep and wake up after New Year's please..REALLY!

I am just looking forward to Paisley's first Christmas for us. That is exciting...I know I know..she is a doggie but this will be her first Christmas in her "forever" home and I can not wait to see what she does with the tree...

LMAO...Take deep breathes...We will get through it...BAh Hum Bug works for me too though


Love ya...miss you
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956292 tn?1334054869
12/11
Thank you for everything! I miss you. I hope you are okay...Keep in touch. I have been crazy busy but am doing okay and looking forward to starting tx. in January..finally an answer and a step forward.
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956292 tn?1334054869
09/11
Thank you for everything! I will let you know when I hear tomorrow
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Avatar universal
09/11
thank you for the note suz.  i have been out of commission a bit these days, but am not down for the count.  i hope you are hanging in there.  hugs and prayers to you~
binx
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956292 tn?1334054869
09/11
Thank you for everything!
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956292 tn?1334054869
09/11
Thanks so much ;o)
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620923 tn?1452915648
09/11
Just a quick note to say hi!...U may want them to look at Ehlers-Danlos and HJS to get this taken care of correctly......some drs look at HJS just like chiari...it is something u were born with, and it can 't cause issues...we have to push for answers with all our conditions. : (
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620923 tn?1452915648
09/11
Welcome to our EDS community! : ) "selma"
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620923 tn?1452915648
09/11
Just a quick note to say hi!...there r rheumatoid Drs that specialize in EDS and hypermobile joints.....and there is testing for both! Having surgery and not taking precautions can lead to set backs....it is very important as we reject foreign matter.....like stitches, patches.....hardware...etc...

I know of 1 Dr in Baltimore , MD....but there must be more of them out there.

"selma"
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620923 tn?1452915648
09/11
Just a quick note to say hi! Yes and found out it is bcuz of the EDS dx.....we also run the risk of rejection when getting stitches and foreign matter  for things like hardware for disk repairs etc.....

"selma"
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620923 tn?1452915648
09/11
Just a quick note to say hi! Yes and found out it is bcuz of the EDS dx.....we also run the risk of rejection when getting stitches and foreign matter  for things like hardware for disk repairs etc.....

"selma"
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620923 tn?1452915648
09/11
Just a quick note to say hi!  HI Suz....I also have joint hypermobility but mine is related to Chiari malformation.....
May I ask, do u notice u have issues with meds, u can take them for a while and then u seem to be allergic?

  "selma"
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620923 tn?1452915648
09/11
Welcome to our EDS community! : ) "selma"
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956292 tn?1334054869
09/11
Oh, Paisley sends you sloppy kisses and furry hugs ;o) I am sending you big human hugs (sloppy kisses from me would be a bit weird) LMAO!

I am okay...hoping to get get doc to give me meds for symptoms if he is not able to start me on DMD..for MS..having a lot of cramping in hand and left side leg

Be well...Hate to hear you are down...

Jibs and Paisley
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956292 tn?1334054869
09/11
You deserve a big bear hug! I'm thinking of you sweetie!

Jibs
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572651 tn?1530999357
09/11
that is a scarey mood.  I hope you are up and moving again very soon.  hugs, L
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1627868 tn?1333886342
09/11
You are in my thoughts and prayers.  Oh, I hope everything is okay!
Sarah
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956292 tn?1334054869
08/11
You are in my thoughts and prayers. oh I am so sorry....I hope better days are headed your way sugarplum..thinking of you always
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956292 tn?1334054869
08/11
Just a quick note to say hi! Miss you ;o)

Jibs
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1627868 tn?1333886342
08/11
You're in my thoughts all the time, but especially today.  Hope all is well with you!
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1627868 tn?1333886342
07/11
Thank you for everything!  Still not feeling right, but trying to hang in there!
Thanks!
Sarah
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956292 tn?1334054869
07/11
Just a quick note to say hi! so very true LMAO
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956292 tn?1334054869
07/11
Thank you for everything!
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1627868 tn?1333886342
06/11
You're in my thoughts all the time, but especially today.  Hope you are doing well!
Sarah
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739070 tn?1338603402
06/11
Thank you for the thoughts and the hug!! Sending a big hug back to you! How are YOU doing? Let me know. I hope you are doing okay. Every time I eat chocolate I think of you!

Hugs!
Ren
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