Did you ever get the chemo. I am in the same boat as your mom was with my 12 year old daughter.
I understand all that you are going through. Since I last was on here, my monthly pain has only increased, for two every month, I am in terrible pain. I did see a doctor and she thinks that I could be starting menopause. However, for the pain, she does think it could be endometriosis and cysts, but without an ultrasound she can't be sure. But all of that costs money, it is hard being an immigrant and not having health coverage.
glad you have a doctors appointment, keep me up to date on how you are doing. You take care as well..
Thanx for accepting my invitation to become friends thanx for ur help to mate lm making an appointment to see my GP hopefully for this thursday to see whats going on as lm still getting hot and cold flushes ect and the monthlys still havent come l really hope and wish its the menopause l would be overjoyed as lm so sick of this and the horrible pain lve suffered since 14 so are u born and bred in america mate what an interesting country u live in l know a fair bit about america as heaps of shows are american in my country plus l grew up watching sesame street the old school one not the one they have these days plus l also watch foxtel crime shows ect from ur country anyway mate take care.
Just a quick note to say hi!
Thank you for everything! would u like to be friends mate:)
Hi Kevin--Thank you for checking with your EP. I figured it was probably too late to call--I think you are 2 hours a head of me. What does you EP think based on the info I told you? I was thinking of going to John's Hopkins because of their ARVD program/research. Mayo would be closer.
Hi KCD--I looked through all of my test records--most of my tests are from 2 years ago with exception of MRI that was done in Dec. I THINK I had an echo and it looks like that came back ok. They did this before suspecting ARVD. All of my arteries etc are good/clear. (does that seem odd with what the MRI says?) It was the MRI that I wrote the info from in the last post. What about that makes you think an ICD is needed vs. meds? I'll admit you're causing a little alarm :->--My EP allowed me to go off meds a year ago when I told him I was not handling the side effects well--he didn't seem concerned with me going off--he said they were simply to make me more comfortable(?). (I've been questioning his judgments now that I've been looking at my results of some tests). Thank you!!
Thank you for everything! i have gotin a hole of the cancer treatment centers of amairca and they are now taking over my case.
Hi, Yes I wore a monitor for two weeks, nothing significant, I had one episode of bradycardia(pulse 55)and one tachycardia(pulse110). In NSR all the time. I was wrestling with my daughter in a store while she was having a fit, I knew my heart rate was elevated and then the monitor went off. lol) I see my regular cardio tomorrow, I have to have my yearly echo and stress test so I am sure I will get some answers. I think its no issues I just get worried over anything I notice with my heart, its mostly anxiety. My EP told me he got both AFIB and SVT during my ablation. I am on Atenolol to control my PVC's.
Thanks for taking the time to write me. I went to Dr Levine at St Francis. My ablation was for SVT and AFIB. My pulse has been lower since my ablation and the additonal of Atenolol. I just notice lately and it might have been happening for a while since I dont check my pulse often anymore that I can stand and my pulse is 80, then I sit for not even a minute and my pulse is 60 something. Seems like a quick drop to me. Also during the day my pulse will be in the 60's and at night in the 50's. I only take 12.5mg of Atenolol so not sure if that causes it. Thanks for any info
Just thought I would leave a note to say that I am back online. I hope all is well with you and that you wife is doing well.
Thank you for the response you gave. I will try and push to see if I can get a specialist to see me asap and then take it from there. Thanks Once Again Patma1
I am seeing a gyn/onc at MD Anderson in Houston on Thursday. I am fortunate I live in the Houston area where we have one of the best cancer centers in the world. I am in the medical field also, albeit on the business side of things but with over 20 years in the business it still gives me a little bit of a leg up on things. I am anxious but hopeful everything will be fine and that whatever it is we have found it early enough to take care of it. My GYN who did the surgery is really good too and she thinks that once my ovaries are removed things will be fine. But there is always that bit of unknown.
I hope and pray that your wife is doing well. I can see what a toll this has already taken on my husband and I hate that we have to go through this at this time of the year! Thanks again!
Thanks Kevin for your note. I am so confused about all of this. I spoke with my GYN yesterday and she said the bottom line is that I don't have cancer...that going to the GYN/ONC is to discuss my options for ovary removal since the cyst was only on my left side and this is were they found the "minimal borderline tumor". But when you look at all the posts here for those who have had them most of them are "staged" which I always associated with cancer. It is all so confusing and upsetting right now that I don't know what to think or understand.
I appreciate you post and note and any further info that you can provide would be great.
Thanks so much and many blessings to you and yours.
well i have a appt with an Oncologist next week, but this morning i have an appt with my regular gyno that i have had since i was a teen. it is not who did the surgery, i am just following up with them due to the surgeons carelessness. i spoke with the triage nurse yesterday and she was is a state of shock at how the surgery was performed and that he didnt do any followup tests. she wanted me to come in yesterday but, on top of all of this, my mother was put into the ICU and they induced a coma and intubated her due to breathing problems and heart issues. i will let u know what my regular OBGYN has to say thank you so much
thank you, i just am trying to inform myself on all of this because i feel like this doctor has not done his job right and i feel like he is not doing enough to inform me. he basically said that i have ovarian cancer, see you in 2 months.
Thanks for your reply. My onc is putting me back on chemo and I guess I will be having a further scan half way through the treatment.
All my blood work came back . Ca125 was low , and the last mri showed although my ovaries were a bit larger, the mri didnt find the calcifications but showed proteinious fluid. Going to still have my ovaries removed. possible laparotomy. I am going in tomorrow morning.
I live in Hauppauge. I just had my mri with and w/o contrast on my pelvis and lumbar spine. Still shows left adnexal mass. I have some stills of the mri but have not received the report yet as I just had it today. The tech did tell me not to lift anything over 5 lbs and refrain from sex till I hear from the dr. I told him of my onc/gyn and he gave me a cd with some still on it and they will be sending him the report on monday. I also had my blood drawn today. I will let you know of my results. I really appreciate you educating me. I have been reading up on it holistically, treatments, symptoms etc. I have started a vitamin regiment today that sloan kettering suggests. Awaiting my results to see how to deal with this. I will Im you on aol. I am sexybrunette4u2x on aim. TY Jo
Kevin I am not sure what my MRI report said ...when my gyn called he didn't have the written report only the oral . Since then he has had the written report faxed to Dr Brown so I will find out today . I guess I should have asked for a copy too . Thanks for the tips on where to eat ...my appetite was fine until I got the news Monday ...now I am forcing myself to eat but I am eating. Hubby loves a good burger though lol . OK my email is brenmaxatverizon.net
Hello Kevin & Debra,
I can't thank you enough for your replies . I feel so much better knowing that your experience with Dr Brown was a good one. My appointment today is at 2:30 and my husband is coming with me . I have already started a book to keep all my medical information logged . As you can imagine I am very nervous and my world has been turned upside down since the phone call from my doctor on Monday telling me what the MRI and CA125 showed. Thank you for your phone number I wrote it down and appreciate your giving it to me . I live in Dutchess County , NY so will be taking Metro North down into the City today. My son lives out on the Island ( Nassau County). My email is ***@****
Hi Kevin ...I am new to the forum. I left you a message earlier ...just wondering what you thought of Dr Carol Brown ...I have an appt with her tomorrow. Thanks in advance ...Brenda
Kevin, thank you for your response to my questions earlier in the week. Seems we both have some medical knowledge. I am a MRI Technologist. You seem to be very well versed in OV CA. In your opinion, what is the best hospital for treatment of OV CA in the US ? I'm looking for a dedicated program, tailored therapy, innovation. I'd appreciate any feedback you can offer.
Just a quick note to say hi!
Just dropping by to say, "Hello" and Welcome you to the Heart Rhythm Community! We are glad that you have joined us and trust that the benefits, of sharing your experiences as well as finding answers to your questions , will meet your expectations... ~Adrienne (Co-Community Leader)
thanks for the answer about cat's claw. i got some and wll see if it seems to be having a good effect. i don't know yet. all best gabe
Hi again; I hope your wife is doing well, and you too of course. I do have surgery booked for July 28th, soonest available apparently. I am having a laparotomy, the mass and left ovary removed and he will decide if anything else needs to come out while in there. I also have a general surgeon coming in to perform a colonoscopy as I have developed bowel issues as well(which my family doctor is trying to use as a reason to get my surgery bumped up). I was wondering what you think about the fact that my cyst/mass/tumour has not changed since it was originally found by TVUS in mid November. Should I be looking at that as a good sign? This waiting and not knowing is killing me. Any opinions?
I found out today that my CA125 test came back at 37 from my test on the 16th and my number from Feb 25th was 33. What would make that number change? Should I be more worried now?
Thank you for the offer and after my next appointment I may take you up on that.
It seems when cancer is a possibility you become quite knowledgable very quickly.