Just a note to let you know your thoughts and prayers are appreciated. ~eur
Thanks. I'm sure you're right.
I'm in the process of moving. Once that's done, I'll set up a pill box and put myself on some kind of routine.
Thank you very much for your encouraging reply to my post. I am taking all that you (and so many others have said) and am focusing on the long term. I really want to keep working as much as possible so hearing your story is very encouraging to me.
Thank you so much for your note. I've learned through reading here that when people relapse it's usually in the first 3 months so I feel pretty good about 2 years. You're getting close to that mark yourself, right? Glad to meet you : ) Lapis
Thanks Meakea! I've missed you, hope everything is well :)
Thanks for posting on my survey and sharing your point of view. Haven't seen you around as often, and it was good to see you post.
Just a quick note to say hi! thankyou for responding to my swollen eyes, I have had about every side effect except the weight loss go figure, I broke my back 3 years ago and put on 25 pounds, was hoping to lose it, no such luck, that is one side I would not have minded Thank You Mary Ann
Just wanted to say thank you for giving me good advice about my son without being judgmental or unkind.
Well here is the final news , as of 5/30/10 Apx. 1 yr of fighting the dragon I recieved my last blood work from my doctor CURED!!!!!!!!!! Thank God for all of you and this web site it was there when i needed it and man I needed it Love you and may God richly bless you
We don't do enough basic research in this country. Schering found that interferon dropped estrogen production in monkeys but never bothered to do any testing on humans. If not reported in human trials it ain't on the label. If it's not on the label it can't exist. Doctors stand by the label always. Had problems with side effects that never got reported because the PA on their team had never heard of them so did not write them down. What are you gonna do? Hoping I can make the endo understand. It would be awful if she another label stickler.
You saw where Great Bird said she was on hormone patch and thinks she had fewer problems on TX? I am seeing endo next Friday. Bloodwork yesterday so she will have for visit. She asked for a 24 hr. urine collection (weird to have a jug of urine in an ice chest behind shower curtain) to look for every possible cause of bone loss, but not estrogen. I will need to bring it up. Hope she is as good as everyone says. I'll let you know what she says.
Just a quick note to say hi!
my last Riba was Aug. 13, 09 that's pretty close to you. You must be near your 6 months post too. Good luck!! let me know when you get the good news. I've got confidence for both of us.
Congratulations! Time for a celebration...OH!!!'Im so happy for you! Wishing you the best day possible!!''
Thank you Mea! I was counting your days to 24 weeks post and it's January right? When are you getting it done? SVR to us all!
Sorry it took so long to reply, man it is nice to be off tx and feeling somewhat normal
Just a quick note to say hi! Thank you..Im
in another place for thr first time in over 25 years.feels good.
Hope you are doing well.
Havent seen you posting in awhile.
Happy new year and thank you.
Treatment Finished 12-9-09--- 6 long months,but worth it.
Mea, hope everything is going well!!!
Just a quick note to say hi!
Nice job, meakea on the pick up line thread. I might not be a brain....but I know how good it felt to be able to come here and goof when I was pre-tx and all during tx. Last I checked, 2 newcomers got a big LOL from that thread and that's a good thing. Big (((((HUG)))) to you, girl!!!!
I remember you bemoaning hair loss about the same time that I was complaining about it. I am 19 weeks post EOT and recently noticed that my hair is growing back. LOTS of hair 2 inches long, really noticeable in the part of my hair. A little Alfalfaish (he was a character in the old Little Rascals movies with a sprig of hair sticking straight up in back), but I'm also liking the spikey look a little bit.
Thanks Mea! I'm still tired and I've been a little out of it with my labs so low. But, I think I'm getting my mind back and I am feeling better, for sure. Per doc, I continued with my Procrit after stopping for two shots to help me along. My hubby has 4 shots left so I'm thinking we will be feeling great at the same time.
Hi there neighbor!
Hanging in there...good days and not so good ones...you know...:-) How's it feel to be done with tx and getting your life back?
Over half way done here and I can 'almost" see the finish line.
Nice to hear from you again....Pam
Thank you for everything, especially your well wishes! You've always impressed me by your thoughtfullness and kindness and I especially want to thank you for your support even when I upset you. I could blame it on the sx, but that wouldn't be taking personal responsibility. You are a lovely lady.
12 week result.......................UNDETECTABLE!!!!!! HCV RNA PCR Quant <43 , will continue next 2.5 months treatment, after that Doc said 6 months clean thereafter =CURED. Thanks for all your help and support, any questions please ask.
Yep yep, Mea, i'm still on Neupogen can you believe it... a lot of people on campus are sick these days and i feel a sore throat coming on. eep! how have you been?
This is my 3 1/2 month report: Treatment is tough, but manageble. 4 week result tommorow.Will post results. Sleep is # 1 concern (Taking Ambien). Hemoglobin staying steady(around 13) WBC and RBC have been out of range most of tratment, along with hematocrit,mch, platelet count, lymphocytes,and absolute neutrophil. Thyroid Stimulating Hormone test came back normal, Liver tests have shoul gradual decreasing levels the past three months to the normal range, last test result for liver enzymes showed slightly elevated levels of ALT-78 and AST-63 , I wonder if that is from the increased amount of tylenol? Will see Doc Tuesday. Hope you are doing great.
Same experience. God I wish I'd known they thought I was fat before! I work with a large volunteer group and taught the last 3 month training course while on TX. Saw them all today at a meeting and they remarked that I was now a completely different person than the one who taught them. They mentioned the color gray. It will take another week or two for the fuss to die down and I will be glad when it's over. I am resolved to take my work less seriously now. It is not my life, only the thing I do to finance my real life. Good luck with the 5 day week. I am thinking of making unscheduled days into sick days (still have tons of leave) so I can just catch up with my home life now that I am well.
I was off 3 1/2 mos. Worked 6 mos. on TX, took off and finished last month of TX and the 12 weeks following TX. I found recovery from chemo almost as challenging (and more confusing) than the TX. Last week I worked 4 days. Not too bad. EVERYBODY dropped by to see me and tell me how good I looked (not hard since I was a ghost-zombie when I left). Will have 4 days next week and suppose I will just slide back into the 5 day routine. I did tell my boss that I would still need days off here and there and would stay home if I had nothing scheduled and he is fine with that. After all what 's the use of having months of sick leave if you don't take it? Being so sick certainly affects your perspective on what's important. Hope your first week back goes well.
I wish someone would tell us how bumpy post-chemo is. I know chemo recovery is different for everyone, but we are all disappointed that stopping the meds does not make us instantly feel better. Sometimes weird side effects that you never had will pop up and pop away again. It can be hard to keep it all in perspective and not think we suddenly have some unrelated dread disease starting up. At 13 wks. post all I have left of a huge list of SX is a little occassional dry eye and slight GI still hanging on from the boceprevir. Sleep could be better but I can't really complain. I can promise you that it gets better. Keep hanging in there.
I meant to ask, how are things with you? You are finished tx now, right? It takes a while to feel better, so give it time.