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Just a quick note to say hi!
You deserve a big bear hug!
You're in my thoughts all the time, but especially today.
Thank you for everything!
Welcome to our community!
You are in my thoughts and prayers.
Hope you feel better soon!
Congratulations! Time for a celebration...
Happy Birthday!
620923 tn?1452915648
10/10
Just a quick note to say hi!..wanted to share my DD's wedding pics with u...I have them posted in my profile page.

"selma"
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Avatar universal
10/10
Just a quick note to say hi!  Red, it was not as bad as I thought, have not gotten the headache some back pain though. I am going back to get the results Thursday so I am hoping for the best. How are you doing? Thank you for all your kindness it means a lot! Have a great Sunday!  Jen
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1336491 tn?1340619541
10/10
Just a quick note to say hi!

Hi Red not spoke for a while hope you are ok, and keeping well as expected lots love thinking of you  jan xxxxxx
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Avatar universal
09/10
Thank you for everything!  Thank you for always answering my questions and making me feel better, you are kind and sweet person. I hope you get some rest.

Jen
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1307298 tn?1305946851
09/10
Hi!

I just wanted to let you know there will be an "Ask the Expert" event in Troy on the morning of October 23.  It is simply a session where you can bring your questions and ask a panel of 3 doctors.  One of them is my neurologist that I was telling you about before -- Dr. Mirela Cerghet from Henry Ford Hospital.

If you want more details you can see them here:
http://main.nationalmssociety.org/site/Calendar/991355731?view=Detail&id=221750

I'm not sure if I am able to go -- but if you go let me know how it is!

Take care,
Jean
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1168938 tn?1327154232
09/10
You deserve a big bear hug!
Just stopped by to give you a hug.
Suz
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1447542 tn?1318027081
09/10
Thank you for the kind welcome! I look forward to getting to know you better :)
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1396846 tn?1332459510
09/10
Thank you for everything!

Tomorrow I will have time to relax, I don't have my grandson, my son will be at school and I plan on sleeping all day lol. Hope you are feeling better.

Paula
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Avatar universal
09/10
Thank you for everything!  Thanks RedFlame, I am hoping to break the saddness and start to deal with whats going on with me!
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867582 tn?1311627397
09/10
Hi, again, Red,

I just looked at a couple of your MRI films.  One thing I note is that you may have volume loss (brain mass loss).  Did they say anything about that in their reports?  Brain volume loss is common in MS.

Hugs!  Hoping your day today is better.  I think Quix has a great idea about turning to mint chocolate chip ice cream!

WAF
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867582 tn?1311627397
09/10
Dear Red,

I just read and responded to your post about your horrible experience with your neurologist!  So sorry about that!!

Au courage!!!  Many here have had similar experiences and commiserate!!   We're all behind you here!!

WAF
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867582 tn?1311627397
09/10
Hey, RedFlame,  

Thanks so much for your kind words!!!  I think about you lots too, hoping your symptoms improve!!  #1 is to protect yourself from falling!! Don't hurry (invites falls).  Use canes etc - whatever is needed for stability.  I don't have the chance to be online every day, but I'd be honored to have you as a friend!  

From another redhead . . .

WAF
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1394601 tn?1328032308
09/10
Red, try not to forget, you are not alone.  Gee, how many of us have been run over by physicians (the GODS) that don't know jack!!!  I can so remember my son's wedding two years ago and not being able to walk down the aisle nor dance with him.  My only excuse?  A fricking nerve in my neck!  How I had tried!  How embarrassed I was!  How I didn't want my family or friends to see me!  How sorry I felt for my son!  

Just remember, so many of us have been through this bs.  Don't give.  Don't give for a moment!  Keep fighting!  Your body will suffer if you stop!!!
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1168938 tn?1327154232
09/10
Just a quick note to say hi!
Hope you are doing ok at the moment.
Thanks for your kind words.
They say there is strength in numbers well there's two of us and that's a good start.
Keep well.
Suz
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1396846 tn?1332459510
09/10
Thank you for everything! Thanks Red, I have my moments of sadness, but other times I am happy. I think that removing myself from the things that make me sad is the best option I have. I still have a couple of things to take care of then I should be set lol. I hope this is a good day for you and that you are pain free.

Paula
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1363810 tn?1279225671
09/10
Hey Red! Good to hear from you. I've had a good couple of weeks, relatively speaking. Crossing fingers! I've had the chance to get out of town several times, and that's been mentally refreshing. Lately, I've just been going with the flow, haven't done much in the way of research or going to the doctor, taking something of a break to just enjoy what I can. Occasionally, I lurk on the MS forum, but just read without jumping in. I hope you pray for me when I come to your mind. You are never far from my thoughts, though I don't know why that would be true. It must be that smile of yours on your profile photo! How are you? --faithHGL
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1168938 tn?1327154232
09/10
Just a quick note to say hi!
Hope you are having a good day today. I feel so lucky to have stumbled across this site, I have made some new friends and each and every one of them is supportive, it's so good to know that there are some lovely people out there in the world and I class you as one of them.
Thanks for your note.
Keep positive and keep your smile
Suz
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1253197 tn?1331209110
09/10
Lois I was deeply touched by your lovely message and thank you. I have had an incredibly busy few days just getting the children ready for school and running around doing a million things. Yesterday I saw my Consultant and he has said that I can start the screening once again in October for the drug trial. On an even more exciting note we are having a bedroom refit starting next week so it is going to be chaos for about 2 weeks and hopefully by the end of the month it will all be done. Take care and bless you for your lovely thoughts. Hugs, Sarah xxx
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560501 tn?1383612740
09/10
Just a quick note to say hi!
well Hey there :)   Thanks for the Note. it has been one of those weeks trying to recoupe (sp) from the weekend w/ terrrible TN Pain.....Now I am just exhausted!  Enough about me...How are you?  I hope all is going good both physically and emotionally.....Have a GREAT rest of the week!
~T
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620923 tn?1452915648
09/10
Just a quick note to say hi! Lois I think u hit the nail on the head...fear...of the unknown...of it could be them....of many things..we as humans avoid things that scare us...well most do.....not too many like to visit someone in a hospice.....and we do have to stick together....we at least face it all head on...and will not be afraid to wave and say hello...now that we understand : )

"selma"
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1406332 tn?1315962760
09/10
Thank you for everything, your comments are always very helpful! I hope things are going well for you!
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1336491 tn?1340619541
09/10
Just a quick note to say hi!

hi red hope u ok xxxxxx lots love thinkin of u  jan xxxx
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572651 tn?1530999357
09/10
Thanks! Yes, those are our grandchildren - #3, another girl, is due in late November.  My poor son - all those women in his house, even their dogs are female.  Clara just started kindergarten and will be 6 in December.  Madeline will be 3 in November.  they are so much fun, even when they are tiired and fussy!   I'm a horrible g'ma - the other night playing Candyland I actually made Clara play by the rules and not cheat!  She had a meltdown, tears and all, that she had to skip a turn.  How else do we learn?  :-)  Hope you are well today.  -L
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1168938 tn?1327154232
09/10
You deserve a big bear hug!  I too have a sister, she is lovely but when I told her and my nephew about my spinal myoclonus there was very little reaction. My nephew visited one day and I was having a bad jerky day and he looked at me and said is that what you told us about, I said yes and he said me and Mum didn't believe you had anything wrong with you! I've never tackled her about it, what's the point, it's happening to me and if I can be strong why bother asking for her help. It hurts when family show true colours but you can always rely on friends.
Big hugs ;o)
Suz
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1396846 tn?1332459510
09/10
Just a quick note to say hi! Here's to Hoping you are feeling better today :)

Paula
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620923 tn?1452915648
09/10
Just a quick note to say hi!...I am glad that I can be of some help...I could just relate to what u were going thru.....my sister just doesn't seem to get it either.....since my surgery she seems to think I am back to new...lol...she even said , "well some of us have to work for a living"....that hurt too, cuz I would be working right now if I could....I was working 70 plus hrs b4 I went on sick leave...then I was term after I used all my sick time....I don't want this, but have to deal with it...we all  do the best we can...and unfortunately, there r a few that just do not understand.

Praying u r having a better day : )

"selma"
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1382889 tn?1505071193
09/10
Thank you!  You are such a sweetie.  I appreciate your thoughts and support more than you can imagine.

Julie
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620923 tn?1452915648
08/10
You deserve a((((( big bear hug!))))))
I saw ur journal, and I am so sorry ur sister was unable to hear or see ur need and come to ur aid...as a family member u expect they will help, and I would expect a friend to as well....I pray that she is never in the same place of need and help that u r right now, no one should be....and to be ignored to put it bluntly (sorry) not only r u left with the same need, but now u r hurt as well.
Know we lift ur spirit up for loving guidance.
<3
"selma"
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620923 tn?1452915648
08/10
You deserve a((((( big bear hug!))))))
I saw ur journal, and I am so sorry ur sister was unable to hear or see ur need and come to ur aid...as a family member u expect they will help, and I would expect a friend to as well....I pray that she is never in the same place of need and help that u r right now, no one should be....and to be ignored to put it bluntly (sorry) not only r u left with the same need, but now u r hurt as well.
Know we lift ur spirit up for loving guidance.
<3
"selma"
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872566 tn?1283000816
08/10
Just a quick note to say hi!
this will take you to the forum for sure this time. sorry, still learning all this.

http://www.medhelp.org/groups/mitochondrial_disorders
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560501 tn?1383612740
08/10
Just a quick note to say hi!
hope you have a Great weekend :)
~Tonya
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1045086 tn?1332126422
08/10
Sweet dreams tonight.  ~Mary
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