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Just a quick note to say hi!
You deserve a big bear hug!
You're in my thoughts all the time, but especially today.
Thank you for everything!
Welcome to our community!
You are in my thoughts and prayers.
Hope you feel better soon!
Congratulations! Time for a celebration...
Happy Birthday!
198419 tn?1360242356
04/12
How you been Addi Girl? Thinking of you! - shell
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198419 tn?1360242356
11/11
You're in my thoughts all the time, but especially today! Been thinking about you, and wondering if you are ok! Hope this note finds you well :) ((((Hugs)))) -shell
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739070 tn?1338603402
10/11
You're in my thoughts all the time, but especially today. Hope the testing at the Mayo is worth your while. I am hoping that someone, somewhere has the magic key to unlock all the mysteries your body holds. Sorry to hear about the new pain. Have had before myself and I just froze in the fetal position until it passed (a VERY LONG hour). Let us know how tings are going!!!

Hugs!!
Ren
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1827123 tn?1383865276
10/11
Best of Wishes for all your testing today! :)
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198419 tn?1360242356
10/11
You Rock, Addii Girl. You really do :)
(((((Hugs))) - shell
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1312898 tn?1314568133
09/11
Just a quick note to say hi!  Hey girlfriend!!  I think of you so often and just haven't called.  I'm always afraid I will call at the wrong time when you are busy with family etc.  I'm going to call you this week.  During the day most likely.  I finally bought a military grade phone that picks up reception fairly well out here in the boonies.  We will talk this week hunny bunch!

XXOO
Red

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739070 tn?1338603402
09/11
Thank you for  the advice!!!!!!!!!!!!!!! I will be contacting soon. Thanks for the support and advice!

Ren
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707563 tn?1587576687
08/11
Hi there - I disabled the note for you.  

Have a great day!

~ Emily
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739070 tn?1338603402
08/11
Thank you for the note. Where is your pump implanted, what part of the abdomen? I'm willing to try it because I'm on 15 meds to keep me functioning and that really isn't functioning just getting by. No driving, too much speech slurring, still have bone pain. DH says no but we haven't watched the DVD. I need ot decide soon since I'm on Tysabri and my blood counts were down from other meds before I started. I don't want to get an infection or meningitis. Guess being a former nurse, I know too much,lol.  I will probably ask more questions along the way if you don't mind.

Enough about me, how are doing?? Still happy in AZ? Tell me how things are going in your life..I think about you often. I'm happy that things are going well for you!

Thanks again,
Ren
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1312898 tn?1314568133
08/11
Just a quick note to say hi!  Thank you for being such a good friend Addi!  I'm doing OK, just have been busy with selling all my studio things.  How are you?  I think of you often and would really like to talk, I just don't know when to call because I know you have been in rehab.  Love ya pretty lady
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1253197 tn?1331209110
07/11
Yes it has been a tough few months and the relapse has lasted for over 10 weeks but i am beginning to feel much better now so hoping that it is at last on the way out. Love Sarah x
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1225331 tn?1333365769
07/11
Hi Addi. :-)  
Yes, you had responded back to me on my comment for your Dx.  I did see that there is genetic testing that they can do for the Hereditary Spastic Paraplegia.  I'm so glad that you finally have a Dx. I hope the walking/rehab is going good for you.
Hugs,
Kelly
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1253197 tn?1331209110
07/11
Just a quick note to say hi!  It was lovely to return home after a week by the sea to find your lovely message. I hope you are doing ok and thanks for thinking of me. Much love Sarah xxxxxx
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1312898 tn?1314568133
07/11
You deserve a big bear hug!  I have been thinking of you Addi, I hope you are still on the road to recovery.  hugs
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1045086 tn?1332126422
06/11
I do believe your rampaging ITB therapist has the look of a rocket's red glare.  She is the perfect reminder that you are NOT alone even when there's too much light to see my rockets.  I trust there are very few needles looming around to threaten you in this particular hospital.  Hope I'm right.  Keep up the good work.  Oh yeah, seen any razors yet?  ~Mary
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1045086 tn?1332126422
06/11
OMG, I'm so glad to hear from you!  Slow happens (just like the other "S" word stuff) but any movement toward increased function and less pain is an improvement.  Can you believe I now know two other people with recent ITB pump insertion?  Your report of slo-mo improvement with ups and downs is sounding familiar to me now.  These guys also had inpatient rehab stays after the surgery to help with the adjustments and reconditioning.  Both saw improvement with the rehab so hang in there girl!  I have to go get my license renewed this afternoon (it will expire before Monday) or I would call you right this minute.  I'll be SURE to call before your admit.  I'm glad we have a good supply of rockets :)  ~Mary
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1045086 tn?1332126422
06/11
Seen any rockets lately?  I sure hope you're well on the way to rolling along smoothly.  ~Mary
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562511 tn?1285904160
06/11
Gentle hugs to you.  Hoping they get you to a dosage that will relieve your pain soon.  Hang in there.  It will be wonderful to arrive at your new home greatly relieved of pain.  Nice to have more space to move around easily too.  
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1045086 tn?1332126422
05/11
I'm doing a little happy dance that this day is finally here for you.  I'll do the BIG happy dance later when I hear everything went well.  Just hug your ride and think about how the pain will NOT be returning this time!!  Love ya, GF.  ~Mary
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198419 tn?1360242356
05/11
Hi Addi - Wanted you to know I'm thinking about you :)) and sending you hugs - you sure have a lot going on.
- shell
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1045086 tn?1332126422
05/11
I'm a little worried that we haven't heard from you lately.  Hopefully you are busy with preparations for the move and just have forum activity on hold.  Did you see my rocket during test #2 on Friday?  I'm counting days with you.  Remember, pockets are very fashion forward these days!  ~Mary
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1580434 tn?1378596528
05/11
just wanted to say i'm thinking about ya and hope you get help and answers on monday.
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559187 tn?1330782856
04/11
You have an adorable grandson.  I can't wait till it is my turn.  Glad to hear you had a good trip.  When are you going back?  :)
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198419 tn?1360242356
03/11
How you doing, Addi?
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1045086 tn?1332126422
03/11
Hi Addi.  Seems like big hugs would be the best thing I can offer at the moment.  Sorry you haven't heard from me before now.  I wanted to be able to say something helpful.  I figured out I can only send positive healing energy.  You and your daughter have both been in my thoughts big time.  Hoping you both get answers this week that move you along toward wellness.  {{{{HUGS}}}}  ~Mary
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739070 tn?1338603402
03/11
You're in my thoughts all the time, but especially today. I have touched base with you in forever. Everyday I tell myself to write Addi then it never gets done. But today I am following through!

I've been reading your entries and wanted to send you a big cyber hug for all that you are going through. You're tough and I know in the end you will make it, but the road is often so rough to travel down. Keep your spirits up and vent when you need to. I'm always here with a ear to listen and a shoulder to lean on.

Hugs,
ren
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1225331 tn?1333365769
03/11
Oh don't worry, you didn't pull any memories that aren't already always there anyway.  I'm sorry about your sister, too. So young....
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1225331 tn?1333365769
03/11
Thanks. Actually Mar 15 was the 6 yr anniversary of my mom passing away.
Take Care of yourself
-Kelly
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Avatar universal
03/11
Aww.  Thank you for checking in.  It's been kind of rough lately, but I'm pushing through.  I just keep telling myself that my neuro appt is Friday and that I can make it until then!  Hope you're doing well!
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620923 tn?1452915648
03/11
Welcome to our  Chiari community! : ) "selma"
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198419 tn?1360242356
03/11
ooooops - I think i criss-crossed you on your last post - been taking me forever to finish a response and before I know it, I hit post and then wam, looks like I repeat what was already said! So sorry!
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645390 tn?1338555377
03/11
Congrats Addi!
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