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Just a quick note to say hi!
You deserve a big bear hug!
You're in my thoughts all the time, but especially today.
Thank you for everything!
Welcome to our community!
You are in my thoughts and prayers.
Hope you feel better soon!
Congratulations! Time for a celebration...
Happy Birthday!
Avatar universal
11/10
Just a quick note to say hi!  I hope you are feeling better x
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1467965 tn?1288901625
11/10
hello and thanks
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1492608 tn?1308920473
11/10
Thank you for the note. I really love this website, you can find a lot of info and sweet people!
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Avatar universal
11/10
You're sweet. Thank you very much for your welcome message!
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1471920 tn?1286827537
10/10
Thanks for the welcome. I'm glad I found this site. I've been learning some timely info from other's experiences.
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Avatar universal
10/10
Thanks!  Can you help me?  What is Dysautonomia?  My doc says that he thinks I have it.  How serious is it?  I am going to get the stimulus test and I don't understand what that is either?  Any input would be so helpful!
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1451080 tn?1438527660
09/10
Thank you for your friendship!
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1448921 tn?1287789632
09/10
Thnx! I read on one of your posts that you were a nurse? That's encouraging to see some one with POTS be in nursing as I am wanting to continue with my RN degree and can't until they get me regulated on some meds. How hard was it for you to do this profession with POTS?
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Avatar universal
09/10
Thank you! I'm still learning about this site, but I can't tell you how phenomenal it is to find other people who understand this condition that my daughter has which is such a huge part of our lives.  :)
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1438638 tn?1304946457
09/10
Thank you...I hope to contribute as well as learn!
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1434905 tn?1283645103
09/10
Thank you
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1403819 tn?1282558340
08/10
Thank you for And nice to meet you. XX
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Avatar universal
08/10
Thank you!
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1403819 tn?1282558340
08/10
Thank you for everything! Im learning new stuff about ME/CFS and all te different things that seem to be goig hand in hand with these sort of immune disfunctions.
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1401877 tn?1288107639
08/10
Thanks for the note! Yes, I am definitely enjoying the forum. I haven't looked at it in a week or so, so I'm going to browse now and see how everyone's doing.  I'm headed up to the Cleveland Clinic in October so I'll let the group know how that experience goes and if it might be helpful for others.
Hope all is well!
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Avatar universal
08/10
Thank you for the welcome :)
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Avatar universal
08/10
Thanks for the warm welcome, it's great to find another place for support and answers. I wuldn't wish this disease on my worst enemies, yet it's nice to know I'm not alone with this.
Inspired,
Michele
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1401877 tn?1288107639
08/10
Thanks for the 'welcome'! I've already gone crazy posting stuff on here. I think it's going to be a very good resource :)
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560501 tn?1383612740
07/10
Just a quick note to say hi!
Hey You :)  I just wanted to let you know I was Thinking about you and hope all is going well.  Hope the Midodrine is still working for you :)
~Tonya
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1375380 tn?1278892326
07/10
Thanks. It has already been a great resource for me! - Betsy
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Avatar universal
06/10
Thank you for the kind note!  I am very happy to become party of this community and have already learned a lot.
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560501 tn?1383612740
06/10
Thank you!
I'm doing Ok....Just a little break.
Hope all is well w/ you also :)
~T
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Avatar universal
06/10
Just a quick note to say hi! Thanks for the welcome! Looking forward to learning more about POTS from others who suffer. I was in a car accident 2/5/10. Have been to neurologist,family doctor and cardiologist.  Numerous tests etc... Seems from what I've learned on dinet.org and other internet searches,I'm a likely candidate for pots. I have an appointment with the cardiologist again tomorrow and I'm going to bring up pots and my zillion symptons, if he doesn't first. Hope this leads to a tilt table test or diagnosis, etc  Wish me luck! Thanks So much again for the welcome!!!:)
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492869 tn?1285018933
06/10
Welcome to the Dysautonomia Community!  :)
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1323747 tn?1364806882
05/10
Just a quick note to say hi!  So great to have you as a friend in the community. :)  I think you are newly diagnosed as well.
Such a lot to sort through all at once.  I have seen three doctors and had some testing including the Tilt Table Test.  They told me to read up on my dx on the internet.  Doctors who actually treat this type of thing are only in a few places in the states and no where near where I live.  It is going to be an interesting journey to say the least.  At least I have company along the way...:)
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560501 tn?1383612740
05/10
Just a quick note to say hi!
Hey there.
No actually I have NCS and Multiple Sclerosis.
How long have you been dx compared to symptoms?
~Tonya

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1323747 tn?1364806882
05/10
Just a quick note to say hi! Hello to you across the waters!  It is wonderful to hear from you.  I noticed your sleep tracker. I want to start tracking sleep and temperature as well as BP.  I have trouble sleeping and only got about four hours last night.
I hope to learn some ways to get better sleep.
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560501 tn?1383612740
05/10
Just a quick note to say hi!
Hello :) I just wanted to take a minute to
Welcome You to the forum!
~Tonya
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Avatar universal
05/10
Hi, yeah I am in the UK and have found it hard here to find doctors and medical staff whom have knowledge of POTS. I 'crashed' last May and was given a POTS dx, then although I was being treated was documented as having 'probable POTS' it has taken a while to get my feet on the ground with it all, but being part of the dysautonomia community here has helped.  Feel free to post on the forum any questions you may have and also private message me if you would like to x
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