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Just a quick note to say hi!
You deserve a big bear hug!
You're in my thoughts all the time, but especially today.
Thank you for everything!
Welcome to our community!
You are in my thoughts and prayers.
Hope you feel better soon!
Congratulations! Time for a celebration...
Happy Birthday!
1375148 tn?1323166921
07/11
Hi Nikkie, just passing through to say hey, xxxx miss talking to you, sorry havnt been around so much xxx
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620923 tn?1452915648
06/11
Just a quick note to say hi!...glad to hear it is going well, being tired is expected...u have to build back up ur stamina....I pray next week goes just as well : )
Ugh- we r going the route of a private ins adjuster and my dad is driving me crazy...I just want this all to be done with.....the contractors lost the check and we had to reissue a new one...sigh...it is never ending...but I am ok...just a little stressed today.

"selma"
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620923 tn?1452915648
06/11
Just a quick note to say hi! U r welcome Niki....I can not imagine going back to work....not sure how u do it, and I am amazed at all that can.....I know we r all diff and I am one that just is not there yet, hoping to be soon : )

"selma"
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620923 tn?1452915648
06/11
You deserve a big bear hug on ur first day back to work!! (((hugs)))) hope it all goes/went well : )

   "selma"
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1608330 tn?1298132998
05/11
Just a quick note to say hi! I havent been on here for a while i really hope that your ok I got for my cine flow studies tomorrow and yes back at Nstaffs  not very happy as they mess you about all the time lol well lets see how it goes
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Avatar universal
05/11
hi just got yr note,i havnt been on here for a while,im not doing to good to be honest,i need icp monotring again as these headaches are getting to much for me cant cope no more,they want to cheak for pressure and to see if i need a shunt,but when i had my pre op on 6th may i was told i couldnt have op as planned...i told them i had infection in wisdom teeth and was waiting to have them out.(need to be put out) and they said its too high risk of infection in brain to do icp until i have teeth out..so had to cancell op...sara the spec nrse took my dentist number to phone them to get me in asap...she said i need icp doing soon as because of pain and where it is...so im just waiting really...thanks xxx
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1608330 tn?1298132998
04/11
Thank you! he told me to hold my breathe apparently to cause pressure in my head but nothing happened?? he said he couldnt totally rule it out CM as north staffs hadnt sent any reports to him he wanted me to go for the spinal fluid flow to see if i had any restrictions first and in the mean time he would track my other notes im not sure where this doctor is from as ive never heard of him but he was better than what ive seen so far. I will see what he says next time before i ask for the second apinion they are putting everything down to the arthritis i have though shame that they dont do all the test then come up with the answers xx
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1608330 tn?1298132998
04/11
Just a quick note to say hi! I wanted to keep you posted on my visit today I went to a new neurologists he says he doesnt think the symptoms i have is Arnold Chiari but wont rule it out until he has checked the flow of my spinal fluid I am really please with this result as its a small step in the right direction Thank you for your note this morning xx I hope you are well and you are getting the treatment you deserve
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281565 tn?1295982683
04/11
I'm so glad your appointment went better today then the last one you had. At least you got some "real" answers today and I hope you get more coming. So is there anything they can do for the flow? I'm not familiar with this stuff so not sure if they can help you with that or not. Hang in there Niki, your going to get answers and it won't be psyche related!!! Thinking of you. Moki
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281565 tn?1295982683
04/11
I'm praying that things go well for you tomorrow Niki. I hear you about throwing in the towel but hang in there a bit yet. If it comes down to it, get the psyche eval and then tell them that now that you are declared mentally fit and that isn't causing your problems, then they can get their S**T together and find out what's wrong!!! I'll be thinking of you tomorrow and let me know how it goes. Hugs, Moki
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620923 tn?1452915648
04/11
Just a quick note to say hi!...I am sure u may learn something from the visit with the Dr 2morrow, even if it is not what u want to hear....I pray u do get something positive from it.

"selma"
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281565 tn?1295982683
04/11
Awww Niki, I'm so sorry you are going through all this crap again. I had a neuro basically tell me the same thing so I decided to get a psyche exam just to get it off the table. The guy I saw for it was livid that I was sent to him and he said there is nothing mentally wrong with me and that it seems a "fad" now with doctors who are too lazy to find out what is really wrong with someone. Maybe you should get that done just to get it out of the way and shove it in the neuro's nose. Right now I'm not on the neuro road as I just need to take a break from all of it and I still really don't have any avenues to pursue at the moment. I've been really busy as well as my sister is opening a cafe/health store and is renovating it right now. My thoughts are with you hon. Hugs Moki  
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281565 tn?1295982683
02/11
I wanted to say thank you for your note and I did find your post and it was uplifting and I'm happy you are getting answers finally. It can be very daunting being in limbo land and I'm always elated when others start getting somewhere. I'm not going to give up my fight but think I need to change my tactics on how I go about this. I'm working on a few ideas that are floating in my head so maybe it will pan out. Hugs Moki
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620923 tn?1452915648
02/11
Just a quick note to say hi!...no worries, just so glad all went well : )

"selma"
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198419 tn?1360242356
02/11
If you want to, you can highlight/select what you posted on the chiari forum, right click and click copy. Then click post a question on ours and right click and hit paste. Hollar if you have a problem, and I'll do it for you/from you, etc.  
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198419 tn?1360242356
02/11
Nikki! I think this would be inspiring on the MS forum too - so our members can feel hope from your current status and treatment! You very much deserve it :) - shell
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198419 tn?1360242356
02/11
Oh I'm so glad to hear this. I'll pop in the chiari forum to read it realtime.... happy for you! -shell
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620923 tn?1452915648
01/11
You are in my thoughts and prayers....sending good vibes~~~~~ the drs listen : )

"selma"
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198419 tn?1360242356
01/11
Wishing you all the best w/your appt. Niki. Hope it goes well :) - shell
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198419 tn?1360242356
01/11
Glad your appt. is almost here too. Wishing you the best of docs and answers. - shell
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620923 tn?1452915648
01/11
Happy Birthday!..so glad u r having a great Birthday weekend : )

"selma"
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620923 tn?1452915648
12/10
MERRY CHRISTMAS!!

Happy Holidays! You've been spotted under the mistetoe ! Go to MH Social and list 3 friends you sent your Holiday Note to! http://www.medhelp.org/posts/MedHelp-Social/-Holiday-Note-Game--Send-a-Holiday-Note-to-3-friends-then-come-back-and-post-who-you-sent-to--then-send-3-more-friends-to-this-post/show/1415356

List 3 friends you sent your note too and see if they'll come back to this post and add three more.

Before we know it HOLIDAY CHEER will fill our MH Social Community!
"selma"
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620923 tn?1452915648
12/10
Just a quick note to say hi!...will the hospital let u pick up the copies of the MRI's?...here they will not send , we have to pick them up, and is y I get copies right away....I understand y u feel u do not want to go, but changes  can happen even if u do not have a MRI to compare to. Go, get the results of this one, and try to get copies of the old one even if u can pick it up...but if not...it will not hurt to see what this one has to say.

Hang in there
"selma"
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620923 tn?1452915648
12/10
Just a quick note to say hi!...good luck with the MRI today : )

"selma"
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999891 tn?1407276076
11/10
No problem Niki, just make sure you request a copy of the MRI scan CD as this is what the Dr's will want to look at as well as the report.

Ray
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1375148 tn?1323166921
11/10
and she now thinks i have refereed spinal pain and Migraines. OoOoOo so MAD!!!

Lovely a whole 28 months since i got ill and i am still living with bad migraines,  2 very large disc prolapses in my neck, and stenosis! Lovely! obviously that's ok for me to live with forever along with the crap symtpons i have.

Sorry rant over. So what have you decided to do x?

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1375148 tn?1323166921
11/10
Hey Nikki, yeah sorry haven't been in touch much been really up and down, had a relapse last week and ended up in bed for 4 days straight, uurrrrg. getting on ok at the moment tho, yes sent my scans to Dr Heffez, he reviews them for free so i was like why not, it costs me £4.22 to send them to America lol, got nothing to loose really. He should recieve them in about 6 days so it's exciting to know that i could hear from him in a matter of weeks. I've given up hope with the NHS to be fair. I recieved a copy of the letter the rhuemotologist wrote my gp and it said i have 'Mild' Joint hypermobility - Not even the syndrome WTF!! it so not even worth being diagnosed with Mild Joint Hyper mobile cause ALOT of people are. So now my GP has hung on to that .............
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Avatar universal
11/10
Just a quick note to say hi! you're bound to be nervous coz we all know what it feels like( nl appointments) my advice stock up on chocolate for afterwards, hope you get some answers 1    
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1336491 tn?1340619541
11/10
Just a quick note to say hi! honey hope u ok,
im meeting up with some friends tomorrow  thank god im getting out first time in yonks - i will e mail you babe got loads tell u xxxx

speak soon hope u ok xxxxx   jan x
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620923 tn?1452915648
11/10
Just a quick note to say hi! Hi Niki...well the xrays did not show nething, so I go back tomorrow for a CT scan.....sigh....so nothing yet.....just like dxing chiari takes forever : P

Thanks
"selma"
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1451338 tn?1413475023
11/10
Ugh! The waiting for the results is horrible! I don't know what's worse...waiting for the procedure or waiting for the results! I hope you get answers from your MRI! I will be thinking of you!
Thank you for your thoughts. It's good to know that so many people will have me in their prayers as I'm laying in that blasted tunnel tomorrow! LOL!!!!
HUGS!!!!!
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Avatar universal
11/10
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