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Just a quick note to say hi!
You deserve a big bear hug!
You're in my thoughts all the time, but especially today.
Thank you for everything!
Welcome to our community!
You are in my thoughts and prayers.
Hope you feel better soon!
Congratulations! Time for a celebration...
Happy Birthday!
Avatar universal
11/10
Just a quick note to say hi! I hear you, glad you're Ok don't let them get to you tho   lizzy uk
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1375148 tn?1323170521
11/10
((((Hugs)))) saw your post, i hope that what ever the situation they still get the answers needed. Keeping my fingers crossed for you, sorry havnt been in touch much xx x
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620923 tn?1452919248
11/10
Just a quick note to say hi! that is good to hear...they do not bother me except for the length of time u have to lie there...it is not comfy....I am ok as long as I sit and do nothing...no fun...waiting on resu;ts of xrays to see what could be causing the pain.....

Let me know how ur goes
"selma"
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620923 tn?1452919248
11/10
Congratulations! Time for a celebration...good luck Wednesday!!!!!

"selma"
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1451338 tn?1413478623
11/10
Thank you for think of me today!!! I've just been getting my butt kicked by fatigue & lots of pressure! Thank the LORD the HAs haven't been bad, but I could literally sleep all day and all night!!! I can't even call out of work sick because I'm the only nurse and I don't have anyone to cover for me! UGH! Hoping you're feeling better soon! You're in my thoughts!! HUGS!!!
Steph
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Avatar universal
11/10
Just a quick note to say hi! Originally from the Northwest now in Wales the land of un-pronouncable's
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1422823 tn?1287682880
11/10
thanks for the thoughts. My surgery has be postponed due to infection
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620923 tn?1452919248
11/10
Just a quick note to say hi! Thanks Niki...this was by far the worst pain I ever had.....it was just awful...not sure if it was TC related or not but I saw my dr today and have some testing scheduled.....I do feel better but it took dilaudid and valium to calm it all down...I am still a little sore, but doing much better.
Thanks again : )
"selma"
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1451338 tn?1413478623
10/10
Hope you feel better soon Hun! XOXO
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1451338 tn?1413478623
10/10
Thank you for your words of encouragement! This has been such a frustrating journey, that we all have been on. It helps having people who truly understand just how much this affects me!
Thank you!!!
HUGS!!!!
Steph
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1386048 tn?1281015933
10/10
phew...well, i'm slightly relieved for you now that you have some firm dates in place.  and HUGE news that you now have a clinical diagnosis.  does this mean there are some treatments available to you that weren't before?  my aunt is in a terrible way these days...i may post on the chiari forum to ask for advice from anyone in canada living with it.  i'm wondering what kind of help is available to her.  anyway, i'm alright, but have a bunch of new numbness starting up again and my eyes are bothering me..diff. sized pupils.  time will tell...
xo michelle
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1386048 tn?1281015933
10/10
ah niki, i'm so sorry to have read your news!!!  ugh!!!!
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1375148 tn?1323170521
10/10
Just seen your status, i am simply gutted for you. so sorry hunie x  xx

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1375148 tn?1323170521
10/10
Nikki, we so need to get out and get drunken!!! then we can release some of our NHS stress! xxxxx  ((((Hugs))))
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1375148 tn?1323170521
10/10
Hi Nikki, just got back, erm, dunno really, i've been given beta blockers with an increase of dosage over an 8 week period in an attempt to prevent the migraines, i've been given a migraine diary to complete for 8 weeks.  continue woth physio, and she'll see me in feb.

Guess that's it. Don't know what to say really. I guess i'll take the pills and see how it goes, i seriously can not be bothered to fight anymore. My guess is that if i had something really wrong with me then they would sort sumin, so now i'll just go with it. If anything the pills are gonna chill me out and i won't feel so depressed.
Thanks so much for your message x x
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1375148 tn?1323170521
10/10
Thanks Nikki. This is one that she has requested so i'll be interested what she has to say. MAYBE just MAYBE she's finally gonna take things seriously, we can only hope!! xx
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1386048 tn?1281015933
10/10
hi niki,
my aunt hasn't joined yet to my knowledge, but i will keep encouraging her!  as for myself, i got my results from my MRI's back and there was absolutely nothing to be found...so i remain in limboland!  anyway, it's a much easier place to be now that things are so much better.  i do feel a whole new round of numbness beginning, but so long as it stays at just that, the numbness i can handle!
hope that back feels better soon and you can get some answers on the 25th!  
xo michelle
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1386048 tn?1281015933
10/10
hey niki!  how've you been gettng on?  any results yet?  managing ok back at work?  i'm quite well...a few odd things here and there but truly nothing that is interrupting my life dramatically.  my fingers are crossed it stays this way as i'm preparing for a trip to kenya w/fam. end of nov.  hope you are well!!
xo michelle
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1375148 tn?1323170521
10/10
Oh Nikki, just saw your status, xx message me if u want xxxx
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620923 tn?1452919248
10/10
Just a quick note to say hi!...I had no stress whatsoever....and am sitting with my balloon feet up....lol.....
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1063386 tn?1287882169
10/10
Just a quick note to say hi!
Thank u for ur comment and I pray things work for u. Your kiddie at work need you just like my patients needed me.  And our familys rely on us such a lot o pressure for us when we all feel so ill.   Best of luck to u.
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620923 tn?1452919248
09/10
Just a quick note to say hi!...awww thanks, I just saw ur Tuesday post from last week....I really appreciate ur kind words.

"selma"
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1063386 tn?1287882169
09/10
Thank u again for all the well wishes and thoughts.  It worked. And I so hope things work for u over there.   U are in my thoughts as well.
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1375148 tn?1323170521
09/10
Hey thanks chick! Yeah I got a letter and phone call from my neurologists secretary saying she wants me in to discuss last MRI results, we'll see. X. I'm pleased u got an appointment finally x
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1386048 tn?1281015933
09/10
HOORAYYYYY!!  so glad to hear about your appt. date niki!  you must feel so relieved.  it will sneak up on you before you know it.  my fingers are crossed that you get the answers and help that you need!
sooooo elated for you!!!!!  29th...i'll be thinking of you!!
xo michelle
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1336491 tn?1340623141
09/10
Hi Nicki

ahhh thank u  saying u would come with me hun if it was in leighton, no my appointment is on 21st october.. buy hey ho whats another month outta 9 month waiting.. x
u will have to tell me your e mail address - i got summit tell u about that old flame  ha ha   jan xx
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620923 tn?1452919248
09/10
Just a quick note to say hi!...thanks, but right now I am just placing the order for fresh flowers...kindda rusty as I have not done this is forever....nor since I got really bad symptoms, so we shall see what I can still do : )

"selma"
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1336491 tn?1340623141
09/10
Hi Nicki

wow at last hun, i went at that time its better u will be first in babe, its cause its a long procedure with you was with me..
ive had my LP results i have swelling it says causing arm numbness and i have o bands as well..  wait for appointment on 21st now   xxx sounds like it is ms xx

lots love jan xxx   ive posted lP results on medhelp to quix xxx
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620923 tn?1452919248
09/10
Congratulations! Time for a celebration...so glad u have ur scan set up...good luck!!!

"selma"
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1375148 tn?1323170521
09/10
Glad to hear you have a date now for your next scans xx
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620923 tn?1452919248
09/10
Just a quick note to say hi!...I wish there was a way of knowing...unfortunately there isn't.....I had vertigo for 2 weeks straight....that was with my other stuff.....but, I had flares that lasted months at a time....we r all different...and if u had a change in CSF flow that could be affecting ur flare.

"selma"
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620923 tn?1452919248
09/10
Just a quick note to say hi! I am so sorry u r in pain...hopefully ur flare will calm down soon.

This is the 3rd time for that thread.....it seems to help to vent like that...wait till u see the others....lol.....

"selma"
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