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Just a quick note to say hi!
You deserve a big bear hug!
You're in my thoughts all the time, but especially today.
Thank you for everything!
Welcome to our community!
You are in my thoughts and prayers.
Hope you feel better soon!
Congratulations! Time for a celebration...
Happy Birthday!
1372734 tn?1309953837
07/11
Just a quick note to say hi chick how you doing, im ok back at work part time it difficult but im managing ok but it only 3 weeks in of a part time phased return!!!!  Just put a post on forum sort of explains where im at.  Same as you really tho honey.  Im goin to take a break from it all for a while, as it seriously getting me down now. Going away in 3 weeks and 5 days to gran canaria and it cannot come quck enough.  Stay in touch chick, I will pop on from time to time.

Hugs to you honey
Niki x x
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1372734 tn?1309953837
05/11
Just a quick note to say hi! Honey sorry you are feeling so low.  Keep your chin up chick
Hugs
Niki
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1451338 tn?1413478623
05/11
THINKING OF YOU! (((HUGS)))
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620923 tn?1452919248
05/11
Just a quick note to say hi!...and wanted u to know I am here if u need to talk....not sure what is going on with u at present,m and it can be quite frustrating to have this life altering condition.....let me know how I may help.

  "selma"
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1372734 tn?1309953837
01/11
Just a quick note to say hi Chick hope you are well and happy new year!!!!  Hope this is the year that we both get the recognition and treatment for whatever is going on in our bodies.

Have you heard from Dr Heffez yet Huni????

Hugs
Niki x x x
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1372734 tn?1309953837
11/10
You deserve a big bear hug! and a well deserved hug, I am keeping my apt for 13th and have thorasic,and full spinal mri on 9th so hey maybe the stupid NL will be able to review these, at least they being done at same hospital as apt, as this was his excuse for not reviewing my cervical and brain mri done in sept at diff hospital.  Then I am pulling out of this hospital and gong for referal by my gp to walton neurological centre in Liverpool, they have cm specialists,  I really think this is end of line its chiari 0 and thats all nothing can be done, but im convinced it not silent migraines, googled it and yes have few symptoms similar but more that fit in with chiari.  keep me posted on dr heffezz. keep well Honey
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1372734 tn?1309953837
11/10
Just a quick note to say hi! and congrats Honey thats amazing that you thought to do this, is that dr heffez in america that everybody on here highly recommend!  Im so glad you have not given up chick!! Im where you were a few weeks ago so ready to give up honey, dont want to live my life like this but think that is whats going to happen, seriously broke down tuesday after hearing DH tell his side of how this affects our family to my thick NL.  At leas im getting full spinal mri as my pain all lower back hips knees and mid back.  Hey he reckons this silent migraines??????? prat!!!!!!
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1372734 tn?1309953837
11/10
Just a quick note to say hi! and thanks Honey, how you doing, and did you fnd out much more about jhs!!!!!  hope you not giving up and still looking for chiari specialist.  Read a post from back and pain forum, that said you bf had suggested going abroad for a year!!!!  I say go for it Hun sounds like a great idea, and if it can be done you young enough to have this nice experience.   Stay in touch as I will you.

Hugs
Niki x x x
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Avatar universal
11/10
Thank you for the note, it's very thoughtful, hope things are going well or at least better for you as well.
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1324871 tn?1288985306
11/10
Just a quick note to say hi! I saw where you are having chest pains .I hope everything is okay. I will keep you in my prayers .Take care honey.
Melissa
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1372734 tn?1309953837
11/10
Hope you feel better soon Honey I no what the chest pains are like love these have come and gone for the past two years for me, I could only describe them as awful, they went in a circular movement around my bust area and felt like I had elephant sat on me, they lasted weeks but no only come and go, when I was being tested for ms I was informed it was an ms hug!!! but we now no it was not as I dont have ms.  You are not alone chick and always here for chat!!!

Hugs Niki x x
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1451338 tn?1413478623
10/10
Sorry you're feel so cruddy!!! Rest up & feel better soon!!! XOXO
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1372734 tn?1309953837
10/10
Hope you feel better soon and sorry that you having a bad day, hope the afternoon nap worked honey, you have most prob overdone things on your 4 good days, I do this all the time, just not got used to what I can and cannot do!!  like you more than likely a denial thing, hate not hitting life at 100 miles an hour like I am used to, god some days im just shatterd hoovering and doing light house work. Take care and take it easy.
Hugs
Niki x x
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1372734 tn?1309953837
10/10
Hope you feel better soon Chick, thinking of you and praying new meds help ease your symptoms.

Hugs
Niki x x x
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1372734 tn?1309953837
10/10
Thanks Honey, im so miserable, I no I only have to wait until 10th for contrast mri, but that 2 weeks feels like a year away, hospital ringing me today with the earliest appointment available for 2 weeks after mri done but they have told me I am looking at very late Nov early December!!!  Just knew it was to good to be true, they have told mild it chiari from last mri brain and cine but wont tell me anymore.  I have work on my back as want to go back but they want to no im safe to work with the children so dont want me back until I have seen NL, to be honest not sure if I am safe yet, had 2 collapses last week, that just came fron nowhere and these happened on good days??? dont no what they are, just go vacant,get shakes, legs go weak and buckle then I sleep for hrs after and wake up ok.
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1372734 tn?1309953837
10/10
Oh Honey I wish I could but alcohol just makes me feel worse, as I feel permanantly drunk anyway.  Honey go for 2nd opinion from a dr off ann conroy list that is on link on this forum.  I have already spoken to my gp about this, the letter is ready to post to them, we are just waiting now to see what is said on Monday, then letter for referal to chiari specialist is being posted Tuesday after I have talked to my GP.  Hope this helps you make a decision.  Go for it what have you got to loose.

Will let u no my outcome on Monday.

Chin up chick
Niki x x
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620923 tn?1452919248
10/10
Just a quick note to say hi!...I want u to know, this is the path we have all been on....I traveled this road yrs ago...then I stopped going to drs ....until the pain would flare so badly...tried diff drs....but it took 40 yrs to find out what was going on with me...and I was told in school it was anxiety and sent to a shrink, told it was depression....told it was stress...told  I needed to learn to relax....I knew this was all wrong, but could not find a dr that got it right....I know u need a break, but do know u r not alone.

"selma"
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1372734 tn?1309953837
10/10
You deserve a big bear hug Honey, im sending you all my love, dont give up hun, u no your not right and it aint just the HA so keep fighting, beta blockers what the hell all that about!!!!!!

Im seriously down today got my gp secretary to contact mri dept as was guaranteed my mri with contrast b4 my apt on 25th, well guess what, they let me down and sheduled it for 10th November so when I go see NL monday only part of results will be in.  Im so low now it has taken me 3yrs to  get to this point and am left waiting again.  

Hope beta blockers give you some relief then you can fight again for the truth!!!!!!
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1451338 tn?1413478623
10/10
Just wanted you to know that I'm thinking of you today. Good luck with your appt today and PLEASE let us know how it goes! (((HUGS)))
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1372734 tn?1309953837
10/10
Just a quick note to say hi Honey, hope all gone well at the hospital, and they did not give you the royal run around, been thinking of you for most of the morning, let me no how it goes chick!!!!!!

Hugs
Niki x x
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Avatar universal
10/10
No, you're not crazy for wanting surgery, a person gets tired of being in pain day after day. I'm sorry I haven't been on any of the forums in awhile, what kind of info are you looking for?

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620923 tn?1452919248
10/10
Just a quick note to say hi!...crossing my fingers as well!!!...let me know how it goes : )

"selma"
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620923 tn?1452919248
10/10
Congratulations! Time for a celebration...good luck Wednesday!!!

"selma"
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620923 tn?1452919248
10/10
Congratulations! Time for a celebration...good luck Wednesday!!!

"selma"
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1372734 tn?1309953837
10/10
You are in my thoughts on wednesday Honey, good luck and let me no how it goes.

Hugs

Niki x x
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Avatar universal
10/10
I'm still hurting pretty bad, but I'm okay. Thank you for asking. How are you? I haven't been on the forum much lately, I think I read somewhere that you were contemplating surgery, are you?
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1451338 tn?1413478623
10/10
saw your mood...HANG IN THERE!!!
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1451338 tn?1413478623
10/10
Just a quick note to say hi!
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1063386 tn?1287882169
10/10
My herniation is small it is only 4mm
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1372734 tn?1309953837
09/10
Hope you feel better soon Honey, thinking of you and hope today a better day than yesterday for you.  Not long now until yr apt with neuro, praying for answers for you.

Take care Hun
Niki x x
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1324871 tn?1288985306
09/10
Hope you feel better soon! I know how bad chronic headaches can be .I hope you find some relief soon .Maybe your Dr will help .
Hugs
Melissa
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1324871 tn?1288985306
09/10
Just a quick note to say hi! Thanks for the kind note ! I do miss my job so much .It was a tough but very rewarding job .I am sorry you are having health problems that may make you have to stop doing it .I had a very hard time after losing my job and I miss my people that I cared for .I sent you a friend invite .I hope you accept and we can become good friends .
Melissa
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