Thank you for accepting my friend request. How are you today, Doll?
You are with good people here; we can all for the most part relate to what you are saying. The winter is the worst time for me as I live in a cold winter area for 3 months of the year. The brutal cold is not fun at all; I hope that you do not have to deal with this.
Hope you feel better soon!....chiari is a life altering condition...and I feel the only thing rare about it is the Drs that r well informed on it : )
I just read ur post and I feel u I wanted u to go read my last journal entry I think we all get to that point. There isn't much I could say that I didn't say there. And hugs. I know where u are I have been there for a year now. Some days are good nut never great. And the bad days are beyond bad any more. I feel ur pain
Just a quick note to say hi! and glad you found this forum. I myself have been on this long neurological journey for 2 yrs and neuro has just noticed swelling. Said possible ACM!!!!!! Do try ann conroy trust I have and there is a list of specialits for the uk that may b able to help. I am off to my GP tomorrow armed and dangerous with this list, so fingers crossed. Have been to hell and back with all of symptoms u describe huni, plus more and not going to take it any more. It has destroyed my life and home life for far to long now. Have added you as friend so stay in touch, stay strong and dont giv up the fight now!!!!!!!!!!!
Welcome to our Chiari community! : ) "selma"
Just a quick note to say hi!