Hey! Add me, we got simular problems!!! This was just a quick stop 2 say hi, really :)
Just a quick note to say hi! &if you'd add me, i have questions...
Thank you for everything!
Hi I hope everything is well with you. Just wanted you to know that i wound up doing the lunch 'n learn and it turned out to be a big success (I was very nervous). Everyone told me they felt comfortable asking difficult questions because they knew me.
I'm so sorry. I hope everything turns out ok. Please keep in touch.
I guess since our event is Wednesday and I haven't heard from you that neither you nor someone from your organization will be able to come.
It will be at noon. It is a lunch 'n learn so we definitely need a speaker. Can you let me know this week?
Hi. I just thought I'd try again re our event on September 15th. If you can't make it or can't find someone else, please let me know so I can plan. Thanks so much.
Hi. Looks like we're aiming for September 15th for the awareness event. Let me know if that's feasible for you or for someone from your organization. Thanks!
Hi. I had contacted you last year about coming to my job to speak about Ovarian Cancer. Somehow, it never happened.
but this year we're planning a joint breast and ovarian cancer awareness day, ending with a Battle of the Bands to Battle Cancer.
We've lined up someone from the Susan G. Komen foundation to speak, and I'm looking for someone to speak on behalf of us OVCA ladies. The event will be September 28 or 29. We'd love to have you, or if you can't, if you can suggest someone, that would be great.
Thanks, Gerri (gls2824)
Just a quick note to say hi!
I'd love to visit with your friend
I love learning...............thanks
Just a quick note to say hi!
Have had a rough couple days and needed to turn to someone with a possibly positive story.
My sister has just had a reoccurance. 2 spots on her liver and 1 on her spleen. From Oct. - jan Ca 125 went from 7-15. Feb it was unchanged but they did a scan cuz she was worried about her lungs due to some shoulder pain. Lungs were fine but these others showed up. She's in Minne now and will start a research drug which I dont know the name of yet. Know anyone with mets to liver and spleen??
Just a quick note to say hi! Pam thanks for note. I got the results from CT scan, no sign of cancer. Although I have a nodular lower right side which is ovarian vein remnant. Which I am hoping that does not mean the ovary is growing back. They are watching closely. At least I know I am not crazy and the pain I feel there is real. I was beginning to wonder....I hope this note finds you well. Write when you can....Love, Dawnlyn
Just a quick note to say hi! Wanted to say thank you. I read your post to Primary Peritenial Cancer regarding how you feel before exam. I am getting ready tomorrow to for CT Scan and this is my 2 year anniversary since DX..I have been a total wreck...And I have never been this way before, just trying to cope with this new me and simply being scared a lot of the time. Congratulations on being 10 years clear. Your words were comforting to me. Love, Dawnlyn
Thank you nyc lady for taking the time to post in response to my question about an MRI without the contrast agent. You make a very good point! I might go ahead and have the contrast, will see. Do you mind if I ask how you were diagnosed with ov ca (what tests had they done)? Also had you been experiencing symptoms for some time before that, and if so, what types of symptoms and for how long? I'm a bit worried that that's what might be going on with me. thanks again!
Just a quick note to say hi! You are very welcome Pam.
Thank you for everything! Catching up with all the notes, prayers and well wishes sent my way. I truly appreciate all of you. Hope you are doing well yourself?
Just a quick note to say hi! You are very welcome Pam..I would do anything Chris asked of me..the kid has stolen my heart, she means the world to me. I am just relieved to have some good news come out of it, and hopefully will hear good news again come Mondays doc appt and biopsy results.
Just a quick note to say hi and to say thanks very much for your note. This is the first occurance and was detected by a stray cell in a smear test - mum had no symptoms and as a PE and aerobics instructer was still working full time. The hospital also missed the liver/peritoneum tumours on her scans and found them during surgery but advised they couldn't remove them (not 100% sure exactly why) Her CA count was 300 and has come down after the surgery and first round of chemo to 65 (found out yesterday) which is good news but want to keep searching for the best advice as am determined we will beat this and still keen on getting them removed properly. I hope you are continuing to do well and wish you a great weekend. Jen
Hi Pam. The nurse from my office e-mailed you in February at the aol address about setting up a meeting but never heard anything. We really would like your organization come and speak at our company.
Hi. I've been posting on the forum since December when I was told I might have ovarian cancer. My outcome was good (I just found out today), but I read your profile that you do work on behalf of Ovarian Cancer awareness.
I am the North American Director of Benefit Programs for a large advertising agency in Manhattan. We have an RN and a medical department and are always bringing in screening programs and doing seminars on various health topics. I was wondering -- is that something your organization does? At the beginning of this journey I knew little or nothing about Ovarian Cancer and I'm sure a lot of employees are in the same situation.
The cancer that orangefuzzball has told me about is often misdiagnosed as ovca. It starts in the appendix. It is rare enough that the docs don't seem to know much about it. I guess I just have to wait for their final opinion and go from there. Thanks, Marie
Thank you for everything! Thanks for your reply on the Evista...I was researching it to see if I could find anything about it causing my Reynaud's symptoms when I came across the possible relation to ovarian cancer and then found this site...ahh the internet! Since I quit Evista when I had surgery and chemo I have not gone back to it and my Reynaud's symptoms have disappeared...very bad last winter when I was on it...Best to you...I am a survivor too!
Just a quick note to say hi! Thank you,one lady didn't take it that way.But she's sick and angry so I understand and know I can't fix it.I'm so happy you beat that icky disease and were diagnosed early.My Mom passed On Aug 14th,hasn't been easy by any means.Once I get a little better I would love to be as proactive as you are against the fight against ovarian cancer.My 5 year old keeps me hopping,though,he really misses his Nana,too.She was always so good to him..Anyway,God bless you and take care.Jen
As I sit here drinking coffee trying to think Christmas I keep thinking OV WALK!! How and when did you get your shirts out to everyone?
Have a Merry Christmas! We just found out my sister is BRCA neg, so changed the whole atmosphere around here!
Actually I'd appreciate any advice you can give me. As there is no chapter in this area I'm on my own. If you have any brochures, notes etc to copy and send me I'd pay ya for postage or whatever. I'd really like to see a phamlet on your registration and an agenda for your walk-I guess kind of a guidline to follow. Ideas etc.
As we are on the Canadian border and I was born in the US but now live in Canada we are planning a international walk with an exchange of the ovarian torch on the border. I have a couple of good friends battling OVCA here in Canada and my sister in the Us so thought this would be unique. Thanks
Just wanted to let you know that I'm going ahead with the walk in July!
Just a quick note to say hi! Dear Pam: Sorry to be so long in responding to your note. Your understanding means a lot as the decision to stop chemo is not an easy one. Ella is feeling stronger and enjoying life much more now. We hope all turns out well. Thanks again for journeying with us through all of this. Although it is all in print and long-distance, the relationship we share is important and helpful. We hope you are well also. Love, Paul & Ella
So glad you had beautiful weather the day of your walk . Maybe next year I will be able to walk with you. Withe
Just a quick note to say hi! Just a quick note to say hi! Hi Pam: In brief, Ella's chemotherapy was unsuccessful in ridding her of the tumours. We were left with two options: (1) do nothing, or (2) further chemo. We chose the latter, however, it was debilitating for Ella. In light of that and realizing nothing further could be done to alter the outcome, we decided to forego further chemotherapy and hope that, with her body free of the drugs, she will regain her strength enough to enjoy what time she has. In the last couple of days, she has started to feel better. The decision was a difficult one but we believe it was the right one. Love. Paul & Ella.