Dear Drofi, so happy to hear from you and glad you are feeling better now that you are off the meds - we all do, that is for sure. You are a wise man keeping all black thoughts away. It is nice just to recover and enjoy getting your strength back. I have been having a period this fall when I felt very depressed and unmotivated, actually right after I got my SVR. My friend said it might be a reaction to the battle being over. Maybe that is so. Anyway, I feel much better now and have gotten my motivation back to do things. Hoping to hear good news from you, Za
How are you doing? Have you had any labs done yet? I am so eager to hear good news from you after your long tx. Isn't it good to be off the drugs? Best wishes, Za
Wow, drofi! 92 weeks and finally done! I so admire your endurance! You have been very wise and laid out your tx the very best way. Now it is time to wait for the result, and I pray it will be a good one, a reward for all your efforts. Keep an eye on your liver enzymes post tx, they can indicate what direction you are heading. I got my SVR 2 days ago! I still wake up with a sense of unbelief that it is all over. But it feels so good! Congratulations on finishing! Za
Drofi - When you look on someone's profile under the notes tab, you will see all of the notes that have been posted there (if the person allows 'everyone" to view/leave notes). Messages, on the other hand, are visible only to the person to whom they are addressed. So, the difference in "leaving a message" and "leaving a note" is that the note can usually be viewed by anyone. So don't post any information in a "Note" that you would not want to be very public.
This help? - Brent
Not sure what to explain, except that the people on this forum are fabulous. I get so much support here I feel guilty! Maybe you want me to explain the part about the "notes" being visible to friends only, or everyone?
Best wishes, friend!
By the way - my latest viral load test was a TMA also with a detection limit at 2 IU/ml. I had the same curiosity as you did about yours since my previous tests had been the Amplicor with a detection limit of around 50 IU/ml.
Are you a native German? I would never guess, based on your writing, that English was not your first language. Best wishes, Brent
Ironic ... I was just rereading the text of the full study you posted and came to the PC to send it my brother when I see your note. You are just about to the bitter end. I am glad you are not experiencing an increase in side effects. I am in week 57 now, and it has been getting more difficult the last few weeks. I will start Epogen this week. Did you need any rescue drugs (Epogen, Nuepogen)?
My bro. is a psych professor but basically he's a Phd in statistics. He may have some comments on the study. No comment from my hep doctor yet. Thanks - Brent
P.S. I had to give up the raceboat driving when I took the covert job with the CIA, but I still dance for Chippendale's when I am not busy on tour with my rock band or doing Brad Pitt stunt-double work in Hollywood. ;)
Thanks for the great post on the Japanese study (Treatment times based on UND TX)! What terrific information to have, though I'll have to go 84 instead of 72 weeks.
Hope you are well. Where are you in TX weeks? How is it going?
Fireworks for me today! I am UND 13 weeks post! 72 weeks work! Talking about work, how do you manage to work that much during tx? Unbelievable!
Just reread your notes to me. So if you are going for 84, you still have some distance left. Not much though compared to what you have accomplished already. You are almost there.
Hi Drofi, how are you doing? Finished tx'ing yet? You are one strong person to go past 72 weeks. I went for my 3 months post PCR today. Keep your fingers crossed for me! I have done two post tx liver enzyme tests and they look great, so I am hoping for the best. Best wishes, Zazza
I'm fine with that, Drofi! I know that is the principle of some of the people at the forum and I respect that. Just kind of feel there is a special bond amongst us slow responders, but the bond is there regardless of "the friends system". I seem to remember that you had that "detectable but not quantifiable" at week 24 that I had at week 12, but perhaps I am confusing you with someone else? Didn't we have a discussion about that once in the 72-weeker thread by Valtod? Anyways, I think you are very wise to continue those extra weeks beyond 72. Since we have gone this long, some extra weeks does not seem that much. Be sure to keep us posted here how it goes. I always enjoy the links you bring to the forum. Good stuff!
Hey, Drofi, how's it going? Which week are you in now of your 72? I am 1 month post and feeling great!