Just a quick note to say hi! good luck and pray it all goes your way, mine was cancelled 3 times and then on final attempt they put in iv line that was not needed for cine mri and said oh sorry about that we thought you were having contrast mri. Maybe now this begins to explain my frustrations and switch to another practice!!!!! let me no how it goes. Niki x x
Oh for goodness sake I was told to hold my breath and do the same thing, sounds like same dr and oh honey what a mess as this is what was happening to me it was oh dear staffs have not sent your mri through, so I would go away then have to wait 4 months to be told a pack of c..p. I went for my cine flow studies 3 times once they could not do it 2nd attemp radiologist was ill 3rd time they fit me with iv line for contrast put me in mri then pull me out saying sorry about iv line u did not need it our mistake and again radiologist off ill so they told me they had done it to the best of their ability. Seriously not good enough and this is why im now at walton. Nobody on this forum had ever heard of this breath test they laughed when I told them.... you may have to become your own advocate.
You deserve a big bear hug and glad it went well for you today on what grounds did they say they though it not chiari honey if it is there on the brain mri to see. Just dont let them give u the runaround as this is what happened to me, one min they say chiari then next no it not and this went on for nearly 18 months, this is why I asked for 2nd opinion as I was just so confused. Still am really, all I can say is that my new hospital have confirmed chiari with flow restrictions off the same scans my old hospital had that told me no chiari and NO flow restrictions. If you not satisfied check out ann conroy trust for neurosurgeon who specialises in cm. Stay in touch Honey.
Just a quick note to say hi and the very best of luck to you today at your appointment. Im praying that they listen and give you the correct advice, but if they dont, dont get disheartend, take a depp breath and try again. Please post and let us all no how it went. Thinking of you
Niki x x x
Welcome to our Chiari community! : ) "selma"