Just a quick note to say hi! I hope you are doing well since you started Tx.......keep up the good work and kick the dragon to the curb!
Happy New Year!!!
Happy Holidays! All the best to you in this coming New Year
Just a quick note to say hi!
Just a quick note to say hi! Ive taken more tests and my doctor said my liver is still functioning well. He wanted to start me on the medication but I told him I wanted to wait as long as possible for the new meds to come out. He said that could be up to two years but agreed to continue giving me tests every three months and only if things change will I go on the Incivek. Im right now in negotiations with my company on how they can help me get the meds without leaving my job or going bankrupt.Over three weeks and no word yet. Life goes on.
You deserve a big bear hug! thank you too Maria and i hope your long weekend trip is everything you wanted too.
it is always great to hear from you!
You're in my thoughts all the time, but especially today. I know you have had a hard three weeks and still have tomorrow to go but I wanted to let you know I am wishing you well and thinking of you. Don't worry because tomorrow is Finally Friday and that makes everything better, right?
talk to you later
How are you doing since you started the treatment...I hope all is well...
Hi Maria, I`m awaiting a fibrascan, but as you probably know, waiting times are long. It will be nice to share stories. I don`t know how I ended up at the JGH, I think I would have preferred the Vic, but I do have a great doctor, so I guess its all good. I suggested email only because we have limited writing space here,. If you end up on Incivik (Telepravir) I have a list of foods that cover the 20g of fat req. if you need it. I understand a lot of Drs don`t provide suggestions and it isn`t easy. It is 3 months only on that med tho, so it could be worse. Stay positive, I think that is the BEST advice you could ever get. Don`t stress, it`s gonna be a cakewalk and success rates are higher than ever!
Sorry, I'm a new member so I didn't realize I'm not supposed to give my email addy... If you do want to contact me and I can give you more detailed info if you'd like... the addy is my screen name without the 133 at the end. At (where the mail is hot) dot (then) com.
Hi Maria, I'm being followed at the JGH by Dr. Hilzenrat. At the end of 6 weeks tx, enzymes are down, but have always been normal. Was diagnosed almost 30 years ago (I'm 48). I'll know this week if I am non-detectable. Fingers crossed.
Are you going on Incivik or the Victrelis? I'm taking Incivik and the thing I find the most difficult is having to eat 20 grams of fat with the pills, 3 times a day. I'm not used to eating more than about 20 grams of fat a day, so it's VERY difficult. I eat an eskimo pie (20 g of fat) once a day and try to find other options for the rest of the pills. You also have to take the pills 8 hours apart, which basically boils down to having to eat 20 grams of fat immediately before going to bed and first thing in the am. My email is ***@**** Karen
You're in my thoughts all the time, but especially today.
I know you have had a rough week and I just wanted to let you know I am thinking about you. 8hrs and its D & D time!
I went through the same thing....self doubt, guilt, scared.......all that not so good stuff.
I guess thinking logically or trying to, with my head instead of the need to scream out.
That helped my a lot...right now, at shot 4/working on week 4, I think of things in weeks right now.
I have only 20 weeks left of treatment then 6 months for SVR.......hopefully that's it......
I just started & have taken my 4th shot this Friday........I'm Genotype 2 & use Peg & Rib for tx.
So far so good, but I have a long way to go......
If you're just started reading here, all the horror stories aren't true.....Be careful....one can do too much reading & get all nerved up......It's difficult, but IMHO, one has to stay focused & calm & what ever may happen, will....
Good luck Maria....the first step is always the most difficult.
You deserve a big bear hug! Thank you for everything!!!
Hope you are doing well, thinking of you
Hope your having a great day and talk to ya later!
I also thought of you when I saw that post. See my comment in that thread. I spoke with my trial coordinator this morning...
I just saw your post - sounds like we have a lot in common. I am turning 53 tomorrow, was diagnosed in 1993 and have put off treatment all of these years. I am all set to do it now, the doc has ordered Pegintron & Ribavirin for 6 months. I have all of the testing done and have my first set of meds, but now am probably going to wait until May to start tx so it will be closer to the end of the school year (I teach 3rd grade). Have you actually started treatment yet?
I know they are doing international testing as well.If you could stay in SF for 3 months, you could probably qualify here as it is a larger group than many others. I know if someone suggested to me that I stay in Canada 3 months, I would think they are totally out of touch...Sorry, don't want to make things harder-but maybe your DR. can help you find a closer study. In the end, if you need to go the way of standard Tx, it is not as bad for everyone as it is for some. All the best to you.
Just a quick note to say hi! I started treatment with the new drugs from Pharmassett. The study is called Quantum. Though it was stopped due to some folks having a toxic reaction to one of the drugs (ps938) in the first 2 weeks my VL went from 1.5 million to 68. I don't yet have the latest results but they think I may now be undetected. If not then I will have to take the other drug (ps 9877) and ribirvirn (sp?) My point is that the new drugs even though some had a toxic reaction (Their liver enzymes went up) do not cause the same symptoms that interferon and ribivirin do. I felt more fatigued and had heartburn but that was it. If you have not yet been treated you may qualify for the new study starting in April.
just reading your note, wanted to say hi. we have so much in common! I am 53, hep c for 30+years, viral load 17million. 1a bx:3/2
on interf, riv and inci... tonight begins week 3 for me. are you having sides? i am having siqnificant sides, hope for some relief