12/11
Hi!b How'd you make our girl!!!!!!?
10/11
Where ya been? How ya been? Keeping on keeping on? Thinking of you!!! - shell
09/11
So are you, Doll! And, I'm soooo proud of you, and your attitude, and your resolve to stay the course w/your meds! xoxo - BIG hugs to you!!!
08/11
Just a quick note to say hi!...Hey...I am ok...and u?...OMG it was soooooo weird...this was the first time I ever was in one...I was sitting in my house, and it was like I got dizzy, then the floor felt like it was going up anf down in a wave like pattern, then it seemed like it got windy, sounded that way almost a vaccume like sound when someone slams a door...I looked to the side and saw the curtains moving, which made me thing more of the wind, but then this branch I have was moving and my china hutch, and the chair I was in felt like someone was pushing it...very surreal.
08/11
Just a quick note to say hi! Thanks for checking on me! I noticed that you haven't been on in a while. I'm doing okay, hanging in there. How about yourself?
08/11
Just a quick note to say hi! Thanks for the thoughts! I'm not on the IVSM, but heck it couldn't hurt at this point. I have an appt to see neuro on Thursday so I'm crossing my fingers. They called me in since I'm no one's patient no dr could write a prescription for me. We'll see how it goes!
Take Care,
Chanda
08/11
You're in my thoughts all the time, but especially today. How's the seeing thing going-lol. Hope it's not too blurry. Any answers yet regarding that?
07/11
Hi Kelli! Are you on Facebook? if so, you should friend request Dr Terry. Wahls...she has alot of nutritional info to share. She too has MS. Quite informative and so positive!!! You can also google her name and sign up for her newsletter. talk soon! jane
07/11
OOPS I meant to write **LONG for long message instead of "ong "
07/11
You deserve a big bear hug! Hi Kellie! How are you feeling? I hope you were able to read my ong message I sent you....some great information. Please let me know how everything is with youi!! Keep Smiling girl!!! Jane
07/11
Just a quick note to say hi!
07/11
No, thank you lol :) It was your tracker which encouraged me to create my own which has been really helpful so I greatly appreciate it. As well, your comment hit home as it is hard to describe the fatigue or weird symptoms without feeling like a complainer or hypochondriac! And the tendency is for everyone to downplay it or say - oh you'll be better soon. So, yeah, your posting came at a really important time.
Kelley
07/11
Hey! I wrote you a long message about my neuro-cognitive testing....
-Kelly :-)
07/11
Ty! We sure are blessed! They are running me ragged more now, then when they were little, lol But, it's all good! Good luck w/your updose - I know you'll be good-to-go! (((hugs)))-shell
07/11
Aw, thank you girl! How you making out getting use to this stuff? And, your injections??? - xoxoxo - shell
07/11
I'm hanging in there with the pulse therapy (IVSM). I've plateaued on the improvement and I now seem to be backsliding a little. I noticed that my spasticity is starting to come back, along with some sensory issues. I go in Aug. for another round. Thanks for checking on me☺ It means a lot. ((HUGS))
07/11
Thanks you. :-) Yes - kind of sad that when we move to a new neuro, we have to worry about our diagnosis being taken away. But luckily I found a good neuro.
-Kelly
07/11
Hello Kelli,
Thank you so much for your note. It is great to connect with lovely people such as yourself who have the same condition. It has been a scary ride at times but I am amazed at the many positives. Early days but I look forward to getting to know you all in the future.
God bless
Alex
07/11
Hi Kelli☺ I had a few minor side effects from the IVSM. I'm not doing too bad. I get to go next month for another dosage..so we'll see how this goes. I hope your doing good ;)
07/11
Vacation has been great. Tiring, but wonderful at the same time. We head home Sunday and I should be back here regularly after I sleep it off on Monday. take care, L
07/11
Thank you for the warm welcome! I haven't been diagnosed yet...still undergoing the "wait and see your symptoms" phase :( but I'm hoping for some sort of answers soon! It's nice to be able to chat with others who understand :)
07/11
Thanks for the note Kelli☺ I'm hoping that I'll have a good reaction to the IV solumedrol as well. Keep your fingers crossed for me;) and I'm so glad that you had a good experience with it.
07/11
Hi there! What day is the nurse coming out for your 1st! It will be a breeze! Nothing to get worked up over. If the nurse is anything like mine - you can ask anything. Hope he/she is fab. Let us know how you make out. -shell
07/11
Just a quick note to say hi!
Yes I'm glad I found this site I have already learned a lot. I have been unsure if I have MS or not. My opthalmologist was leaning towards it but after reading everyones posts I've had almost everything. I just need to get in to have it checked out. it's just so frustrating not knowing for sure. Any words of advice?
06/11
Your positive attitude is outstanding!!!!! Hugs back to you, friend!!!! - shell
06/11
Welcome to our community! See you around! - shell
06/11
Just a quick note to say hi!...no worries...I just wanted to make sure I got what u were saying just in case I could be of help..... we half to laugh...other wise we go crazy : )
"selma"
06/11
Just a quick note to say hi! I am confused by ur note...can u explain?
"selma"
06/11
Hey,
I dont know how to message people on this thing so Im just gonna write you a note thru here lol I saw ur posts on the MS forum and i wanted to ask if you have looked into CCSVI? Most people dont know about it but if you google CCSVI before after you will see a bunch of MS people on utube that got the treatment done and seen tons of improvments. These notes dont let me write enough or id explain it to you but its really amazing and i think its closest thing to a cure without medicine. Youre in my prayers feel free to contact me if you would like :)
