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Just a quick note to say hi!
You deserve a big bear hug!
You're in my thoughts all the time, but especially today.
Thank you for everything!
Welcome to our community!
You are in my thoughts and prayers.
Hope you feel better soon!
Congratulations! Time for a celebration...
Happy Birthday!
620923 tn?1452919248
02/12
Just a quick note to say hi!...well I just want u to know I am thinking about u...take care and pop on when u can : )

  "selma"
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620923 tn?1452919248
02/12
Just a quick note to say hi!...I am doing ok...just could not figure out where u got to....hope u feel better soon.

"selma"
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620923 tn?1452919248
02/12
Just a quick note to say hi!...wondering how u r doing?....
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1663373 tn?1333639589
10/11
Just wanted to check in and see how you are doing?  Hope well!
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1759188 tn?1324681908
08/11
Just a quick note to say hi!  good luck on your surgery  i will say prayers for you. been there
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1759188 tn?1324681908
08/11
hi cherokeeluck,  im new here and i cant believe my eyes !!  for 4 yrs ive gone through everything on here and thought i was alone.  i went through the same thing with my primary, and had to find a specialist in boston and now im going through the same s%^t about after pain. i feel your anger  and pain.
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620923 tn?1452919248
08/11
Just a quick note to say hi!...so sorry u r in so much pain, but that is great news u have a surgery date!! Post it in the surgery date thread!!

When it rains , it pours...ugh
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620923 tn?1452919248
08/11
Just a quick note to say hi!  OMG...well do make sure u do the neck exercises to keep ur neck from getting too tight!!

U do not want whip lash, so u should be checked if u haven't been.

Rest up...so sorry this happened.

  "selma"
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620923 tn?1452919248
08/11
Just a quick note to say hi!...I got that from Drs a lot...we need to treat this conservatively....in fact that is y I was denied LTD, bcuz I choose to be treated aggressively...really? Jerks the whole lot of them....

I was also dx'd with fibro, and now I know most of that pain is EDS. The breathing issues can be EDS as well as I am learning as well as chiari.

When  a Dr does not work well for u FIRE him...lol..
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620923 tn?1452919248
08/11
Just a quick note to say hi!...that doesn't make sense especially when it may really be issues from chiari and not asthma at all.....u may have been mis dx'd...who knows...but breathing issues r chiari related as well as related to EDS.

  "selma"
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1663373 tn?1333639589
08/11
Let me know date and will say prayers-it is a tough road but you will be glad to have it done even though I still suffer from HAs everyday I am happy for all of the other things that I can do now!
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620923 tn?1452919248
08/11
Just a quick note to say hi!...sounds like sleep apnea...goodness that is scary huh?....I may be having the sleep study done depending on the oxygen levels in my blood after the testing last night....but I am having it done at home...not in a clinic, it is less expensive and more reliable as u r more comfortable in ur own bed....
I hope u get some answers soon....r u still on oxygen?
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620923 tn?1452919248
08/11
Just a quick note to say hi!...have u been tested for sleep apnea?....did u feel like u were gasping for breath? It is  not uncommon for those with chiari to have sleep apnea, in fact tonight I have to wear a clip on  my finger that is attached to a machine to measure the amount of oxygen in my blood, next step is a sleep study....I do not wake up like u did,  but I am always fatigued and have difficulty sleeping.

"selma"
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620923 tn?1452919248
08/11
Just a quick note to say hi! Letting u know I am back from NYC...had a good time...I have an appointment this afternoon that I was getting ready for....what is going on with u?...Sorry to see u r having a rough time....how can I help?

  "selma"
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1663373 tn?1333639589
08/11
Sorry it has been rough hope you can find answers--good luck!
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1663373 tn?1333639589
07/11
Havent touched base-wondering how you are doing? Hope as good as possible!
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620923 tn?1452919248
07/11
Just a quick note to say hi! Thanks...I know it will be fun...netime I see my DD I am happy : )

  "selma"
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620923 tn?1452919248
07/11
Just a quick note to say hi!...heading to NYC this weekend...wondered if u saw my sewing project completed?...I postyed pics in my profile page...let me know what u think : )

  "selma"
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620923 tn?1452919248
07/11
Just a quick note to say hi!...Hi...yeah, it is very hot and been going to the pool...I had a few days that were rough but feeling better now thanks for asking...how r u doing?

   "selma"
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1667208 tn?1333111449
06/11
Just depends what you are willing to live with!!! It is a hard choice to have this surgery.  There are risks and it hurts!!!  I had the leak so I got to do this twice and it is not easy but I am still happy I had the surgery!  Feel free to ask any questions :) Thanks for the nice note, it was nice to see when I got home from the hospital!  Chiari is frustrating so good luck!
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1663373 tn?1333639589
06/11
Good luck on your decision I am very glad I had my surgery as I am way better than before and wasn't functioning at all before but as I have learned through this we have many bumps in road.  I have heard great things about Dr Rosner.  I am going to Dr Oro soon if you ever have ?s on surgery would be glad to share!!
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1663373 tn?1333639589
06/11
Hi and welcome I hope this sight can give you support it has for me.  I am 4 mo post op from decompression and having tons of issues again and this has been a great support network.  Take care!
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