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Just a quick note to say hi!
You deserve a big bear hug!
You're in my thoughts all the time, but especially today.
Thank you for everything!
Welcome to our community!
You are in my thoughts and prayers.
Hope you feel better soon!
Congratulations! Time for a celebration...
Happy Birthday!
Avatar universal
03/14
Just a quick note to say hi!
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Avatar universal
02/11
Just a quick note to say hi! From MZ33
I just wanted to say hello and I hope you
are having a good day!
MZ33
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Avatar universal
01/11
Just a quick note to say hi!MZ33
My primary care physician told me I need to
go ahead and start the process but I want to
work.My body just does not want to cooperate,
pain meds and the fog it puts me in are terrible
and I'm still in pain.Thank you for your help.
MZ33
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Avatar universal
01/11
Just a quick note to say hi! From MZ33
How hard was it to get SSD.I'm asking
because I'm about to the end of my rope.
I want to keep working but it is becoming
almost impossible.The pain meds make
me feel in a fog and take the edge off at
best. I hope to hear from you!
MZ33
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Avatar universal
01/11
Just a quick note to say hi! From MZ33
I was on the fentanyl duragesic patch 100mg
every 48 hours but I had to get off of it.
I am trying to keep working and it works very
well but as long as I was doing something
I was fine but trying to drive it made me
so sleepy I sometimes would almost fall
asleep driving.I really liked it and feel its
best help I've had.Does it do this to you or
Is it just me?
Thanks
MZ33
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667923 tn?1421462724
02/10
Hey girl, Sorry it has been so long.Did u get the SCS?I thought @ it bc I am so tired of these patches and hearing that people r dying from them.So write me and tell me if u did it and how it is. I might just go that route.Take care and I am still in PAIN..and I hate it. How's 'bout u's..Always..Karen
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611149 tn?1540336138
02/10
Welcome to our community!
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667923 tn?1421462724
01/10
You're in my thoughts all the time, and I am sorry I haven't written in so long. It's just u know how life is..it keeps u going one way or another. I am still trying to get in to see a NS...so difficult and waiting time so long. I sure hope ur doing well and things are going better 4 u. U take care and I wil get back again to say hey and check on u. Let me know how ur doing? GOD BLESS ... Karen
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Avatar universal
10/09
Sorry, I didn't realize I couldn't post my email. But please let me know more if you can. Thanks!
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Avatar universal
10/09
Thanks for your post on pellet therapy. I am also in the Knoxville area and have been looking into pellet therapy. Can I ask where you go, and also if you like them? You can email me if you prefer at ***@**** Thanks!
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Avatar universal
09/09
Just a quick note to say hi! I wanted to know if switching to pristiq worked for you? IVE GAIned 25 lbs with effexor and am sooo frustrated
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667923 tn?1421462724
09/09
You're in my thoughts all the time, but I have been trying to get my pain taken care of and find out exactly what this is...still working on it and here's hoping ur doing better...:)
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667923 tn?1421462724
09/09
Thank you for everything! You are so sweet to keep me in mind and u urself are having a bad time too. I will keep u in my prayers u are too kewl to think of me in hard times all over...Keep The Lord first and HE will take care of U...:)
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Avatar universal
08/09
Just a quick note to say hi!  I had three steriod shots in the last six weeks and they did nothing.  My surgeon didn't think they would help but they sounded so positive that I gave them a try.  It is so frustrating....good luck with yours...
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Avatar universal
08/09
Just a quick note to say hi! How is your neck
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Avatar universal
08/09
Just a quick note to say hi!  Should have reread my message that I posted...At least you can understand what I was trying to say even with all of the corrections I should have made...hee hee
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Avatar universal
08/09
Just a quick note to say hi! I have had 2 neck fusion surgery, first didn't fuse, so did a second with my bone and not doner(different doctor)..it has fused but I have a back disc above and below...so I have been in pain for the last 3 year. It is nerve pain up my head, down my back, burning feeling.  I have had steriod shots..I have had everything....now I am trying neurontin.  It just might be the answer...maybe.....I will let you know in about a week...side effects are different with different people.  I am afraid of being too excited about this..nothing else has worked.
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Avatar universal
05/09
Just a quick note to say hi. I had botox five year ago and  am sorry to say it did noyhing. In fact it made me worse. when they put the needel in it made my neck go in to more spasam. Iwas so bad it made my head feel like it was gona burst. Am sorry it wasnt a good thing for me,but it might just work for you, I realy hope it does.
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667923 tn?1421462724
04/09
Hey...thanks for the note. I hope ur doing well. I am learning a little of the lingo here. I guess.:)lol..
     Just trying to make it through some bad news My mom and I were at the doc. yesterday and she mentioned to me that her heart was beating fast. She got worse and walked up to the window, where she asked the lady behind the desk to have her blood pressure checked, but the she didn't do anything and my mom came back to set down. She had a look on her face like help me...I jumped up, in my shape, and went to the door where they take in patients and was banging on it. A nurse came to the door. I told her my mom needed her now..and she moved. She told me, but not my mom that her heart(atrial) was working to hard.That's the top part.Do u know anything @ that?Say a prayer..God Bless..K
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667923 tn?1421462724
04/09
I am really thankful to have someone I don't even know to understand how hard this actually is.I know that you are having a tough time too. I hope everything in your life is roses. I didn't get anything to confirm the screw placed on the nerve,but what doc. is just going to admit ...oh.I am sorry I did that..I am so sorry you have suffered for 3+ yrs.It's right though.Who do you know that was told by a doc that they were wrong. I just still believe that there is one..I should have mentioned the two docs that said that I didn't even need the surgery. I did show him a letter a doc. wrote for court(disability court).He saw where the doc said that "One screw was penetrating one of  the right foramina affecting the drachial root." I think that says it all.Well, have a blessed day.your friend,K
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675718 tn?1530033033
02/09
Happy Valentine's Day!
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675718 tn?1530033033
01/09
Just wanted to let you know I can relate. If you ever want to talk, you know where to find me.-drifter0213
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720490 tn?1300442145
01/09
Thank you for the message you sent me. I think we can relate to each other because of our situations. Keep in touch and thanks again!  
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492869 tn?1285018933
01/09
Welcome to the Dysautonomia community!  :)
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693770 tn?1231546485
01/09
I just wanted to send a note wishing you a Happy New Year! Hope you are doing o.k.
Keep in touch
Cathy
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693770 tn?1231546485
12/08
Thank you for your concern! I really was beginning to think I was crazy or imagining this pain. You are a lot stronger than myself to be able to handle all this for so long. Are you any better than before your surgery? Also - where did you find your lawyer to help with disability claim?
Thank you for your kind words, they made me feel better.
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Avatar universal
08/08
You are in my thoughts and prayers.
I am going through the same thing, but I've only had it since Dec. '06.
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602504 tn?1219984096
08/08
Just wanted to let you know I can relate.
I saw your mood and I honestly say I can relate to being tired of being in pain. I never had anyone to be in pain with. I have done this alone. I know there are others out there but I have always felt so alone which made my pain feel worse. I havelived with chronic pain since 1985. RSDS, firbromynangia, migraines  and most recently thyroid cancer
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