G'day Janey poo
Oh, it is so nice to see you picture. Yes, it's been a long time for too. I hope I never forget those dark days of MS and wonderful supportive community made up of gorgeous girls like you - as someone famous said it was the best of times, it was the worst of times.
I'm coming to the end of a month long holiday and boy did have some fun with wife and 3 kids as we visited my Mum and siblings some 17 hours drive away. It was a huge Christmas with 27 people and I'm seriously going to lobby for catering next time. I had alarms set to go off every 15 minutes to remind me to turn this dish, peel that, turn the turkey etc. Good thing there was alcohol on hand to put in the trifle and some left over to get me through.
I'm still blessed with great health. Alex xoxoxo
Bless you my dear. Hope your studies are nearly done and your enjoying life with that gorgeous husband. I've run away for all things MS because since my brain operation in Oct I have been feeling unbelievably well. I have been totally rescued. Keep warm over in your cold winter, we have the opposite over here, approx 105 or so in your language tomorrow. Alex xo
I thought I replied to you but I see that I did not. :(. I'm so glad you are doing good and copaxone is kicking butt!! I'm on rebif now and it is going well. little flu like symptoms but I do get site reactions. I feel great right now though, really great! I feel like I did before I got Dx! Isn't remission good?? :) I'm still in the same lab, working away on muscle diseases. I'm still really loving it too.
Glad you are doing well lovely, you are never too far from my thoughts :) xxx
Hows life in boston?? Hows school? Hows life?? Just a quick note to say HI!!
I can only imagine the heightened sense of urgency in Boston right now has to add to your symptom. Here's hoping it is not a relapse..........
I thought it was weird we weren't friends either. Thought we had been from the get-go. Thank you for the wishes and hugs!
Feel better hugs to you!!
Glad to hear you are safe! Sorry to hear about the leg aches, know them well unfortunately :-(. Go tomorrow for my pre-op for my knee surgery next week. Actually looking forward to a little new pain to get rid of this 9 month old meniscal tear pain that is irritating a nerve in my lower leg!
Got to go see my Mom for her 90th birthday last week!!! Wore me out but wouldn't have missed it for anything!!!
I hope you feel better soon and your leg pains recede soon.
BTW, we aren't friends. I thoughts we were but when I went to send you a note you weren't on my Friend List. So, I'm sending an invite :-)
Take care and feel better soon!!
You're in my thoughts all the time, but especially today. How are you feeling? I hope better. You weren't near the marathon I hope. Please let us know if you are okay.
I've been lucky with the Copaxone. Even the worst side effect is not so bad -- just scary the first time it happens to you. If you ever have that side effect -- an ice pack on the back of the neck helps with the hot flushing part and a heating pad is helpful when the chills start, then 2 Motrin and go to bed. LOL! And I always skip one day of injections afterwards -- but you're supposed to talk to your doc about that.
Wishing you all the best!
Thank you Jane :), I have also not been much around, but I miss you all. Thinking of you a lot. Hope you´re doing good in school, do you like the city? Also I do hope you health is ok, and not being in the way of your success! :)
My best regards,
It's a distinct possibility :-) Before my last infusion by blood tested positive for JCV. My LP was negative so I'm OK on Tysabri for now. But he says I' a good candidate for BG 12, which has a much friendlier safety profile. I've got my fingers crossed for FDA approval. If it's approved I'll vote for switching. No more trips into the city every fourth Sunday!
How's your bicoastal life? MS behaving?
Boo hoo was right but happy days are here again. Weather has been stinking hot and I attribute this to exacerbating my misery. We've had a week of 40+ celcius temps and then it feels like a month or more of 30+ temp days which means I haven't been doing my regular exercise. I finally started walking yesterday and went again today and I'm very happy again. Never again will I fall into the trap of thinking I am cured. It is just one day at a time. I am so happy to hear of your good progress. Won't be long now before we hear the pitter patter of tiny feet? Sorry, once you're married everyone must just hound you for salacious details of your personal life. Be well xo
Helloooooooo Janey poo. How the heck are you? I hope married life is just blissful and your MS is stable. MS is a funny disease isn't it. Just when I thought I had beaten it bam down you go with a relapse. I am on day two of feeling good after a surprise relapse that has lasted nearly six weeks. It rocked my world totally and gave me cause to consider my eating plan, going back on drugs etc etc. But happy to say I am back on track Hey I got feeling back in the lower half of my stomach just before the relapse.Very mild tingling now down to my ankles which from there is numb and tingly. I really hope you're doing well you good thing. Blessings Alex
Hey Jane, hear anything about this event? Looks like it might be fun! http://www.acceleratedcure.org/news/events#Mar-02-2013-0700
How did you make out with the blizzard? You were posting so I assume you have power, or at least I hope you do ! Stay warm. Stay safe.
Just a quick note to say hi! Great to see your name on the boards!!!! Not that I've been that active. Wish I could blame grad school and being a newlywed as my excuse,lol :-)!
I hope everything is going well for you and your newlywed husband.
Thats great news Jane! Really pleased to hear you are having fun in grad school!! How you handling the weather? It's alittle different right? I totally agree with you about MS, I do my shot but other than that I try to forget it. I think even if rebif does make me sick with flu-like symptoms, theres lots of advise and support here so I'll be ok. Just hope it works ! I want my MS to be good and stop progressing! The really good news is that clinically I'm doing great just got to show some MRI improvement too :)
HEY JANE!! Sorry I've been quiet for so long! How did the move go? Hows school? How you getting on with your shots? Sorry to hear you had some new lesions and I will be keeping all my fingers and toes crossed for march!
I'm kinda sad copaxone is not working for me. I really like it! I have pretty much no issues with it at all. I just hope that rebif will slow my MS and hopefully not make me too sick. I will def let you know how I get on!
I do have exciting and good news, we bought a house!!!! :) Hugs Kat x
Thanks for stopping by to say HI and check in. I have been a major stranger lately, which is bad of me. I need to come back to the site more and read stuff, keeps me staying positive and motivated. Such good people around here...
Just a quick note to say hi! How are you doing these days. Anything new with the job or classes?
Did you feel that??? It was a hug from me in UT to help you through a rough day. Hang in there...
Thank you for the kind thoughts, they are very much appreciated as is your attention to my status. I hop all is going well for you and your new hubby and new life!
Thank you for the note! Doing my best to stay reasonably well and keep my mind on useful activities. Hope to see her early next week between my doc appts. and hers.
Thak you again,
Don't look now - I hate to tell you your summer is also almost over. BAck to the grind for us both.
Wow thats so exciting!!! Where did you go on your honeymoon?? Bet you are so excited to start school!!!
Yep I'll be staying with copaxone till christmas and then we will review again with another MRI, how fun! :) I am feeling great though, eyes fine and my fingertips aren't numb anymore!! still get pseudo numbness now and then BUT I am feeling pretty great lately!!
Good luck with school and keep us updated!
Congratulations! Just saw the note that you were married last week!! I think I need to keep up more with the posts :)
Congrats and hugs!!
Thank you for for the kind words and well wishes. I hope your week is a good week as well!
miss you!! just wanted to see if you had your follow-up appointment? You'll be moving soon right?
Thanks Jane - so are you all set for the big move?? I'll be thinking of you - I think it is amazing that you are taking on this challenge and I know you will do great!
Just a quick note to say hi! Thank I need them. I am pretty sick.
Glad to hear you´re having a wonderful time, busy planing. I´m just fine enjoying the summer like you :). Keep on having good time and enjoying live.