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Just a quick note to say hi!
You deserve a big bear hug!
You're in my thoughts all the time, but especially today.
Thank you for everything!
Welcome to our community!
You are in my thoughts and prayers.
Hope you feel better soon!
Congratulations! Time for a celebration...
Happy Birthday!
Avatar universal
05/12
Hi Deb How are you doing. Sorry not been in touch but having many issues since operation. Would love to explain but not enough space here. Hope things are improving for you. Let me know? Love x Jo x
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Avatar universal
03/12
Deb, Got sent back to hospital as got infection in wound SIGH anyway on mend again now but nurse coming to dress/drain away nasty stuff every day.....but how are you? Have you spoken to Dr yet. I hope you haven't bottled out and that she has been supportive? Let me know cause I'm thinking of you. Good luck you know its possible... Love Jo x
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Avatar universal
03/12
Hi Deb, sorry for my absence I ended up having emergency op and now have 12 inchs less small bowel!! Wow wouldn't wish that on my worst enemy but hopefully now they have removed lots of scar tissue I will be better than I was before. Obviously had LOTS of pain relief but although had oralmorph for the first few days only resorted to regular paracetomal and Ibuprofen after. They were giving the option of codeine but I noticed I was not the only one to steer clear of it AND dispite all thats happened I know my head and body (whats left of it) is mine again and not Mr Codeine's property anymore! Update me on you please Deb? Love Jo xx
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Avatar universal
02/12
Thing is its not all in your head......its them in your head...thats the whole thing. Its body and mind. You must get support from someone who understands (whoever that is might need some searching out) If I had the money and didn't need to work I'd come and squat in your life & maybe even bully you a bit :-( This is so important....now I have so much more control I know how ridiculous I was being. I still get anxious and twitchy muscles but its so much less and I know what it is. It might not be brilliant but I have a glass of wine & it gets me thru. What can I do to get thru to you? Have you ever thought of spiritual healing/faith healing? It really relaxes and helps me Love Jo x
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Avatar universal
02/12
Deb are you ok? Let me know you're alright? Worried about you.......Josie x
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Avatar universal
02/12
Hi Deb, so hows it going? Great to hear you so positive. I've had a nightmare & been in hospital again. They now think its adhesions from previous op/radiotherapy BUT hear this I was in so much pain that one night I was given 2 Tramadol (opiate)+2paracetomol and incapable of refusing cause I just couldn't take anymore. I was given 2 more the next night and I guess I was glad of it but its taken me days to feel free of 'that doped dazy feeling' and the lethargy returned, in fact I had a mini withdrawal all over again, but thank God the pain has subsided for now and I don't need them at the moment. But I still have a tightness about my lungs that I thought had gone. So PLEASE go seek help, its really really important Love and Light Josie x
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Avatar universal
02/12
Whats a little embarassment when its a route back to being well. I think you should go for help now. Do you have to pay for health care over there? We don't, but often have to wait ages for hospital apps, we can pay to go private for speed. So I do realise that help might cost you but surely it has to be worth it....maybe just seeing your Dr is free though? I just don't want you wasting your life anymore. Its so frustrating I want to help! Apart from my being poorly thispjast 2 wks (maybe related) I just want to say I feel so much more alive and young again....which has been worth all the nasties. You maybe cant do it without being 'watched'....might help? x
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Avatar universal
02/12
Hey my mate please DONT give up. You know they mess with your mind and your body, they have shut down the natural feel good factor and it will take a good while to reactivate itself.....ie didn't need to be working cause the opiate had taken over so it shuts down. This is seriously complex stuff. I have got a totally inflammed/sore/swollen digestive track. Have been in agony but now it is calming down. I personally think it could well be yet another reaction by my body to the withdrawal. Hurt so much I cried for days cause I didn't know what else to do, plus that old anxiety returned, thats why I think its to do with the demon codeine. Have you got support. You need it cause of the way it messes with your head x
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Avatar universal
02/12
How you doing? I ended up in hospital so thats why you've not heard from me! Long story but I needed pain relief and its been real hard but I've managed it. Still need to find a codeine substitute cause nothing but opiates seems to do the same job :( Still in pain now ?inflammed intestines? ?Gall stones? Just too scared to risk it. Hope you're ok?!!  x Josie x
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Avatar universal
01/12
Thanks for that little insight honey... I'd surely try to stop anyone else falling into the trap if I could. Have had a couple of bad days with tight chest and a feeling of stitch/cramp around my heart :( but today I have been brilliant. Felt good enough to go sign up to a diet group plus made up an hour on my flexi time at work! Thats amazing in itself! I had a reply on the forum sounds like the residual effects can last for a couple of months. I hope you're still managing to taper ok. It has to be the answer with larger consuption. I simply dont think I could have coped if the withdrawal were any worse than it has been. Actually thought I might die a couple of times; real scarey. Don't give up Normal is a buzz in itself xxx
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1576513 tn?1327896759
01/12
Hi, hope you are ok, how are you going with the tablets?

Take care
Cindy
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Avatar universal
01/12
Still doing ok Pebbles? Fri and Sat weren't to special for me but today Sunday has been quite abit better. Actually enjoyed being driven to a pub for lunch and seeing all the beautiful countryside. I was feelin dizzy in the car before. I just wish I could speak to someone who has come out the other end and know that it can take a while to be totally 'repaired' I might try asking on the forum. Some people seem ok after a couple of wks and somewhere else I read months. Anyway still hating the tablets but had one split second yesterday where 'ONE' might have seemed the answer but I had a glass of wine instead! Seemed to relax me. Best wishes :)
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Avatar universal
01/12
Hi Are you still doing ok? How do you feel while socialising? Alcohol I mean! Dont let it lower your resistance! Sat morning and feeling ok....it seems to get bad for me lunch time to early evening, then I perk up again!? Just trying to see past the next few weeks. Looking at box and hating it. Truly have NO desire to pop the wretched things so something has defo clicked in my head. Still not sleeping all night so now its the wkend I was up putting on washing at 430am! Thought I'd be useful while well. You need to chat to Locknessmonster to give a boost. Fingers crossed for you :)
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Avatar universal
01/12
I'm so proud of you. I'd never heard of tapering till after I'd gone cold turkey but I dont want to go backwards now. Today (Thurs here) has been bad for me ;dizzy, tight chested no energy and funny heartbeats not to mention the headache.....dont understand why one has to go backwards, I'd hoped it would be all improvement! Anyway I must stay positive as I'm not messing up now!! Hopefully you wont have this rubbish so try to be strong. 'Speak' soon....hopefully I will be in a better place then! :)
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Avatar universal
01/12
Hay Pebbles
Haven't been doing to well the last 3 days i dont know why but i have gone back to the normal amount which is a total of 40 a day and i dont even know why im doing this after going so well for a week and a half and i was feeling good that i was finally trying to give up. so im back at the begining again. I feel really disappointed with myself and just wish i had the will power to stop taking that few extra and keep on tapering. Im sick of travelling all over the countryside for chemists too and sick of spending money on them. Hopefully tomorrow ill have the will power to start tapering again. How's your tapering going? hopefully better than i am.    
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Avatar universal
01/12
Note 2....Forgot to say "it" even surpresses good feelins so you stop reacting in your relationships to everyone. You become detatched and people start to think you dont care.Work is sending me to a in house (Naval) Dr to see if they can help. I think its only me that can help by being strong but at least it might buy me some time and stall possible dismisal....... Good luck my friend :)
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Avatar universal
01/12
Pebbles Tapering is good....please just try, keep it up. I cant believe how YUK  this is considering I was on relatively small amount but for a long while. PLEASE look online and see what damage it does.It is so scary but you need to know. You have loads of life left to live AND in the real world. Real is good. Real is better than what you're doin. 'Feeling' is better than the false stuff we have been livin in. It is amazing but weird to feel a LITTLE bit normal again. Hey normal is more fantastic than hiding in that evil tablet! Wish you weren't the other side of the world cause I want to come and convince you. Wanting u2 keep trying even if its a few days, then having to start again. Every step helps, but feeling is being alive again. Still dizzy & still not sleeping proper but smiling x
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Avatar universal
01/12
Day one without Steroids has been mixed. Didn't sleep hardly at all, went to work slightly anxious but no pains... by lunch time it was all flooding back and depression setting in, jittery and had to go shopping for cat food! Nearly dumped my trolly and left the shop but managed to stay and pay. Got home safely and grabbed a beer, thankfully things started to calm. Not sure if they have helped or not as obviously they just masked the w/d to a degree. Tomorrow is another day & I only hope it gets better. Slightly confused. Thanks for listening. Tell me bout you? Please dont give up. I'm really scared Ive got permanent damage to lungs, heart and brain. Read too much on net. How stupid I've been. Keep trying you!!
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Avatar universal
01/12
I'm so so sorry you keep caving in.....but the withdrawal has frightened me that much that I look at the packet of the little devils and hate them. Just to let you know I have had my most normal day today; had forgotten what it felt like. However last day of steroids so am I going to suffer withdrawal from them? Are you getting help from your Doctor? They suggested the short course of steroids. They are there to help and theres no shame in admitting or asking for back up. Sorry I don't know your situation. I am thinking of you and sending healing vibes I hope! There is light at the end of the tunnel, its just getting far enough into the tunnel to see it x
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Avatar universal
01/12
Hi Pebbles, well I do feel like I'm going mad and have been very tearful today but at the moment am on a short 5 day course of a steroid called Prednisolone, which I believe is supposed to reduce the inflammation in your body caused by the codeine and therfore kinda break the circle. Dont know if it will help but desperate as Im in big trouble with work for my sick leave now. Dont know why I was so stupid. Didnt even realise what was causing my problems just was taking them to keep me at work. instead of which they were making me more sick!!! Not sure how this site works so forgive me if I get it wrong.....brain not working too sharply at moment! Keep your chin up at least we have one another on this site Someone mentioned Tramadol it gave me bad itchy skin and horrible dreams Take care
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Avatar universal
01/12
Couldn't stand it any longer and caved in. I wish there was an easy way to do this, going c/t is just too hard. You read a few stories of people succcessfully going c/t and i just wonder where they get the strength and determination from, I can't even go one day without feeling like im going insane from w/d.  Sorry to hear its not a good day for you, I totally understand where you are coming from and we have to try and not beat ourselves up when we do slip up. I know how disappointed you feel with yourself when you have all the right determination in the morning only to stuff up later on in the day, but like you said tomorrow is a new day and because we want this so bad we will get there sooner or later. There is no failure in trying. Sending you positive vibes for tomorrow :)
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Avatar universal
01/12
Wishing you good luck today and if you have any problems you can unload them on me as it would get my mind off my own situation for a while, but if you dont that is wonderful as it means your doing really well.
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Avatar universal
01/12
Hi pebbles today ive decided to see how long i can go without having any today, so far i haven't given in to the urge and by this stage im usually on to my third dose. I know i am going to give in sooner or later prob more sooner as ive just started to feel all antzy and just cant get comfortable, but thinking about it all the time isnt helping. I like you, haven't felt any wonderful affects off them for years and am only taking them because i feel i need them to cope and because you feel like crap if you dont take them. My aim today is to see how long i can go before i give in, even if i only manage to take 18  tablets today instead of the 36 at least id feel like i was trying. Its the back ache that gets me running back for them, and you just cant get comfortable in any postition.  
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Avatar universal
01/12
I was taking the same amount and on some bad days i would take fifty but that was when you could buy them in packs of 48 and my personal favourite the 72 pack which in one chemist i could by two packs of 72 at once by saying i was buying them for someone else. Im now down to 36 a day on a good day i can get by with 30. I am now thinking about going to a doctor and seeing what he recommends ive read some people are given methodone (not sure ive spelt it right) to help with withdrawals but isnt that addictive too? I would hate to get off one thing only to be addicted to something else. But when i do finally get the courage to go ill ask my doctor about Tramadol. Wishing you all the luck today i admire your strength and courage although you may not feel it yourself to me your doing amazing.
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Avatar universal
01/12
Just a quick note to say hi! and thank you for your friendship and support. It is such a relief to finally have someone to talk to who knows what i am going through. I am interested in how you are coping with the Tramadol and would you recommend it, and if you ever need an understanding ear to talk to i am here for you aswell. Thanks again locknessmonster
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1576513 tn?1327896759
01/12
Hi Deb

Hang in there, don't put too much pressure on yourself with regards to the codiene, it will happen.  Its a big step and its really scary to make the decision to stop or even cut down.  I went down a whole tablet this time which is 30mg, but I think its too hard so I will go back to half a tablet from now on. I had a terrible night last night, hardly any sleep and then had to go to my in laws with my husband today for morning tea, of course they don't know anything about this, it was so hard to sit there and be pleasant.

Let me know how you go with the tramadol, it will be interesting to see if it helps.  Remember I am here if you need any advise.

Cindy
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1576513 tn?1327896759
01/12
Hi, how are you going, let me know.

Cindy
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1576513 tn?1327896759
01/12
Hi Deb
Just checking how you are going, hope you are ok.

Cindy
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