Blank
Blank
Blank
Blank
Blank
Blank
Blank
Blank
Blank
Post It
Just a quick note to say hi!
You deserve a big bear hug!
You're in my thoughts all the time, but especially today.
Thank you for everything!
Welcome to our community!
You are in my thoughts and prayers.
Hope you feel better soon!
Congratulations! Time for a celebration...
Happy Birthday!
1815939 tn?1377991799
06/12
That is great news. I am so happy for you. Sorry about the back pain but I guess it is better than Hep C.
Blank
Report
2183226 tn?1337826880
05/12
Thanks, appreciate that very much.
Blank
Report
2061362 tn?1353279518
05/12
Thank you for everything!
Thank you so much!
Blank
Report
2061362 tn?1353279518
05/12
Just a quick note to say hi!
Thanks for the note, it made me laugh. You're more than halfwway there, it will be the end of incivek time for you sooner than you think. I got my blood test today for my 12 week RNA quanti. Will be less weirded out until I get those results, hopefully on Monday.
Blank
Report
1654177 tn?1319838494
05/12
Thanks for your notes! I actually used  FLUOCINONIDE  OINTMENT  0.05% during TX for my rash. I still have it at home, I'm not sure it's okay to put on the scalp though, but I'll look into it! The doctor told me not to put it on my face, since it may cause thinning of the skin, but it sure it potent, good stuff! I'm gonna try it, as long as it doesn't say not to use on scalp. Thank you so much!

Blank
Report
2114467 tn?1358210256
05/12
Just a quick note to say hi!
Yeah!, glad you're feeling better. I left work today thinking, I made it thru the day. Wed. seems to be my toughest day. My co- workers have no idea. Cheers to you.
Blank
Report
1815939 tn?1377991799
05/12
The first 12 weeks were the hardest. Lately I have been okay. Time flies, believe it or not. It is pretty amazing that I am doing Inj. 34 tonight. Only 14 more to go. I wish you luck with your 48 and hope it goes fast with few sides.
Blank
Report
1815939 tn?1377991799
05/12
Thanks. Things are going pretty well on my end. Will be glad when 48 weeks is up. I hope you are doing okay.
Blank
Report
2114467 tn?1358210256
05/12
Just a quick note to say hi!
Glad to hear from you. I was reading your post. It seems important that you talk to someone at the clinic.
Also, the drug cos. have hotline nurses available. You're not pestering anyone, you're only doing what you should be while on these powerful drugs, listening to your body. I'm checking up on you later, Reva.
C
Blank
Report
Avatar universal
05/12
Oh, my God, girl. I sure hope you are feeling better today. What's with the other two shots? I know so little about this, and I rely on you so much for the good, straight up answers. I am still trying to get my first set of blood work done here in town. I know I will have a ton of questions then. I am so very sorry you aren't feeling well. I know it is all part of this, but my prayers are with you. Hang in there, I know you will. Sorry you have to take more shots. So far, they haven't bothered me. No bruises, no marks, no nothing. I know when it hits me, it will be all at once, and I am staying very prepared. Anyway, my thoughts are with you today. Thank you so much for all your help. Hope you feel better.
Blank
Report
2061362 tn?1353279518
05/12
Just a quick note to say hi!
Didn't know you had low wbc's. green tea, blueberries, vitamin C are good for that. Just get real creative with the fat. avacodo are easy. I went to the grocery and found the smallest lightest things with the most fat and just eat them in combo. In the freezer section I found mini cream puffs, light and airy and not too sweet. 6 gives 22g. Udo's chocolate truffles, 1 piece has 7.7 and they are so good for you.

My treatment is going OK. my rash is back and hgb is down to 9.6. Dr. took me off riba for the rash, a bit scary, but I'm told it isn't too bad for treatment. I have a Dr. appointment tomorrow, we'll see what that brings.

Yes we will alll be much better once incivek is done. I am counting down; eleven more days.

Hope you feel better soon,
Dawn
Blank
Report
2114467 tn?1358210256
05/12
Just a quick note to say hi!
Are you on incivek? I start the boc tomorrow and had my 4 week labs just yesterday.
Hope my VL has gone down as I was at 8 M. The 3rd drug makes me a bit nervous.
Hope your WBC's bounce back up. Sounds like your dr. Is doing the right thing by watching
you closely. I'm sending you some positive vibrations!!!
Blank
Report
2061362 tn?1353279518
05/12
Hope you feel better soon!
Hang in there. Hope today brings better things for you.
Blank
Report
Avatar universal
05/12
Hope you're feeling better!!
Blank
Report
2114467 tn?1358210256
05/12
Hope you feel better soon!
Sick is not fun. Hope it passes soon.
Keep on keepin' on.
C
Blank
Report
Avatar universal
05/12
Thanks so much. Just making a list for the health food store for tomorrow. We are pretty limited in this area for store variety, but I will be sure to track down all of the ingredients. Thank you, thank you, thank you. Water going down quite well now, but, I am already wanting something with a different taste. Once again, thanks. Hope all is well on your end. Maggie
Blank
Report
Avatar universal
04/12
He Reva,
I really appreciate the note that you sent.  My husband is adjusting OK although I think he is upset and frustrated that the treatment didn't work.  He is fearful about what the future holds, since he is f4-Cirrhosis and we all know that the new meds will take a few years to go through the approval process.
Thanks for your concern.
Advocate1955
Blank
Report
Avatar universal
04/12
Thanks, Reva. I would really appreciate anything on the ginger. I bought a root at our very small health food store. Now, I have to figure out what to do with it. I have an old, old single serving tea strainer that was my grandmothers. Never throw the cool stuff away. Heard the root can be pretty pungent, so I would sure love some help on that. Wish we had anything even like a whole foods around here. Will try amazon. Thanks so much. Y'all sure are helpful and caring. It's funny that I have divulged everything to your group, and very few here know what I'm goin through. Thanks for keepin in touch...
Blank
Report
Avatar universal
04/12
Just a quick note to say hi! I must be very, very lucky. I think I have the only nurse that has gone thru treatment herself. She was chewing gigger gum at my visit. She said it helped with nausea.I can't seem to find it at the health food store in town.
Blank
Report
1815939 tn?1377991799
04/12
Thanks, lol. I know. I am hoping for SVR too. That is just sort of a saying, I guess, "If I ever have to do this again ....." And I also told that to my case manager, meaning, she has been managing Hep C patients for years, so why does she have to reinvent the wheel every time. She should know, after one time. I know after 1 time, lol.
Blank
Report
Avatar universal
04/12
Thanks Reva, good luck with your neutrophils and your rash.  My husband used Eucerin body wash in the shower, cool showers, and Eucerin cream after showers.  He also took Atarax and used a prescription ointment called Triamcinolone.  We put tea tree oil on the ones that blistered.  His last VL (drawn March 30, week 26) was DET=22).  We got the word on April 9.  We are waiting to hear from the NP if he needs to stop treatment or is able to continue.
Advocate1955
Blank
Report
Avatar universal
04/12
Hi Reva,
I'm sending you both luck and prayer!  May your side effects be few!  
Today we should find out what my husband's 26 week VL is and whether or not he gets to continue treatment.  He was UND at week 8 and week 12, but DET at a low level (<12) at week 16 and week 20.  Vertex said he could continue treating as long as his VL stays under 25.
Advocate1955
Blank
Report
Avatar universal
04/12
Hi Reva,
No, I'm sorry, I don't know anything about the process for getting financial assistance from the drug companies.  Our co pay has been hefty, but manageable.  If I were you, I would look on the drug companies' websites and see if you can find that info, or give them a call.
Advocate1955
Blank
Report
1148619 tn?1332010984
03/12
Thank you for the kind words, can't wait to see what this last week of treatment brings!!  Hopefully, higher HGB!!!  LOL   Mo
Blank
Report
Avatar universal
03/12
Hi Reva, I saw that your meds were approved.  When will you start treatment?
Advocate1955
Blank
Report
1431734 tn?1421011671
03/12
Just a quick note; glad u have the green light. the hardest part for me was the anticipation. there is so much help on this site and i know u will be in good hands. knowledge is power. best of luck, babs
Blank
Report
1711722 tn?1356487554
03/12
Hi, yes I will finish tx tomorrow night.  Will post more by the weekend, for sure!  Thanks
Blank
Report
1711722 tn?1356487554
02/12
Just a quick note to say thanks for your note!  And thanks for your comments on my photos  :)
Blank
Report
1990530 tn?1333478843
02/12
I just started Vitamin D this week I will update my journals and blood work in my Trackers

Cheers Glad to know you  :)
Blank
Report
1711722 tn?1356487554
02/12
Thank you for the note!  My elbows are not cooperating and still pretty painful, but I'm making progress.  Still have brain fog, so it's really hard to complete a sentence/thought, some days.  Take it easy Reva.
Bee :)
Blank
Report
1711722 tn?1356487554
02/12
LOL.  Just a quick note to say hi!  Thanks for your notes Reva :)  Hope to be back a bit more real soon.
Bee
Blank
Report
1711722 tn?1356487554
02/12
Thank you for your note!
Blank
Report