04/13
Hey there, hope you are feeling better, it does take a while to recover
09/12
Just a quick note to say hi!
I was thinking you must be about done with your TX now.
I am happy to report 3 weeks post treatment I am feeling great!
Hope all is well with you.
08/12
I just saw your reply to me on a post concerning why tx is harder with cirrhosis but I know you began your own post and Hector rode in with another wonderful reply.
Hope you're well :))
08/12
Just a quick note to say hi! I didn't answer your post because I don't know the answer. I have often wondered the same thing and am glad that you asked.
08/12
Hi,
I hope you are doing better today. I notice it comes in cycles for me. I go for or 4 days where I feel like I just can't take another minute, then a few days reprieve.
One day at a time, waiting for the little breaks that come.
I am thinking of you and sending lots of positive thoughts your way.:-)
07/12
I agree 100% . After a poster gets advice I just try to inject a smile here and there. I always try to answer a poster if I can but you are right gee ..a laugh once in awhile never hurts anyone.I realize maybe my sense of humor is not for everyone ,however I really am not intending to offend folks either..Guess MH or others just see it differently sometimes ..Hope you are doing well and thx. much for the note
Will
07/12
Thank you so much for the kind note. It is very much appreciated.
I hope your tx. is moving along without too many problems and I look forward to hearing about your success down the road
Will
06/12
Hi,
Just letting you know (if you didn't already know) that I too am genotype 2.
Riba and GL7977 approaching 12th week and undetected from week 4.
I feel the sx of the riba, but of course I am sure it is not comparable to the sx of triple tx and SOC.
05/12
Just a quick note to say hi!
05/12
I uploaded my 2002 & 2012 biopsy reports to my personal page if you are interested.
04/12
Hi,
I don't think I responded to your last note, so apologies either way. lol
How are you doing? How is TX and your response to it?
I am okay. I don't think the riba is too bad, not at 800 mg., but I still have ups and downs. I don't even know what is attributed to the virus, the drugs or life in general.
I was <25 at my second week. My fourth week results will be in a week from Tuesday. I hope to be undetected. We will see.
All the best to you.
04/12
I uploaded 6 photos I took this morning of NM winter in April. 3 photos of the equines & 3 views from the house. I think you'll like them! :-)
03/12
Hi, thanks for the note and checking in, hope your feeling alright. We are both doing our shots on Tuesday's interesting in a cool way and the same trial arm! What are the odds of that? I sent you a message also.
03/12
I meant to keep a journal, but was too busy staying up late talking on the site 'keeping my mind busy with like-minded souls'. AND it really really got me through. Once I got through 4 weeks, I started counting months instead of weeks (5 more to go!) I drank lots of water, especially on injection days, and found having smaller meals more often helped too (i.e. I made myself have morning/afternoon tea, even if just a snack or a smoothie). I was Geno 3 early cirrhosis, so had 50/50 chance - managed the RVR after 4 weeks which made it 80%. I'll be sending virtual hugz tomorrow and thinking of you, and being part of the trial, you should be well looked after xxx
03/12
Hiya - I wasn't diagnosed with tendonitis or fibromyalgia - just lived in excruitating pain for about 9 months - dr gave me antiflams but I opted for a naturopath. It also happened before tx so was related to the HVC then, or to my thyroid which was subclinical hyper and flared up before, during tx and after because of a toxic nodule that was there pre tx. Lots of weird stuff, but would do it again in an instant! And I'm better now that I have been for a long time .. touch wood!
03/12
Good luck in your trial! I am in the same trial I think. Fission? I was fortunate to get in the all oral arm. Thanks God , as I dont think I could have dealt with the SOC. Please let me know how you guys are doing! I am in week two and feel fine! I havent got my first blood draw results yet.
03/12
Sent you a message.
Thanks for your kind note.
03/12
We get a lot of these weird OCD types which is why I always check profiles.
Sometimes they'll post on Hep C, STDs and HIV, all the same question.
They need to get a life.
What I've learned is sometimes, it will sound like one of them, when it's just a very naive person. Gotta be careful!
OH
03/12
I surely will and you keep in touch too. I am afraid of the Riba. Ppl keep talking about Riba rage and I really do not want to be angry and raging. I hope it won't be an issue. Some ppl feel it is only like that when combined with interferon.
All the best to you
03/12
Hi, I was in a simlar situation and got into a study trial for the new oral drugs (previously with pharmasset and now gilead) There was some concern about my cirrhosis but they pushed me through, keeping a close eye on my platelets.The study was temp stopped but will resume on March 15. I expect a cure as does the Dr. which wouldn't have been possible if I previously used the inteferon combo. If there is anyway you can get to SF (Quest Clinical in SF) for the study in March, I would go for it, otherwise see if you can find one using 7977 and riba. It is the less destructive treatment out there. Good luck
