Just a quick note to say hi! I saw your post about Dr. Rosner. He did 5 procedures on me in January 2001; I believed he saved my life. I had Chiari 0 -- no herniation. My cerebellar tonsils were wrapped around my brain stem was compressed severely. I was bed bound, couldn't sit up or stand up w/o fainting, along with about 100 symptoms. I did improve after the surgery, but I now know I have Ehlers Danlos Syndrome (a connective tissue disorder that causes Chiari) & Tethered Cord Syndrome--which also causes Chiari. I will have surgery soon for TCS to release the spinal cord from being pulled on 24/7. This may be your problem. TCS and EDS were not known about until 2005. I'd like to give you reliable websites & info to help you.
Welcome to our community!
Just a quick note to say hi! So glad u r feeling better....but I hope u pop on from time to time to give updates : )
Merry Christmas & Happy New Year !
Thank you for everything!
Wishing you and your family a very Happy Thanksgiving!
Happy Thanksgiving! I hope you have a wonderful pain free Thanksgiving! ((((HUGS))))
"The Marine Corp Brat"
Happy Thanksgiving! " selma"
Thank you for everything! i really appreciate it!!! i hope u have a goodday!!!
Thanks for the kind note!!! Hating how much this has been, really hope I am done soon. Could be much worse I guess!!!!! Hard to remember how lucky I am some days! -zygy
Thank you for responding to my post. i appreciate your opinion. that is neat that you were originally from syracuse area.
hope all is well with you.
yes i am , i have an appointment with him 16 October. Im glad you are seeing him too. How long have you been seeing Dr. Rosner
I know that visual issues are a "Chiari" symptom, but that is really all I know (it isn't and wasn't a major problem for me). With that said, the best way to research using google is to do an advanced search looking only at PDF format (which means each link will be a PDF file). PDF files tend to be professional most of the time. It really helps speed up the process. If you copy this link into your google search bar, you will get an idea of what I am talking about.
chiari 0 visual disturbances filetype:pdf
Best of luck. Not knowing was the hardest part for me.
Just a quick note to say hi!
Welcome to our Chiari community! : ) "selma"