Blank
Blank
Blank
Blank
Blank
Blank
Blank
Blank
Blank
Post It
Just a quick note to say hi!
You deserve a big bear hug!
You're in my thoughts all the time, but especially today.
Thank you for everything!
Welcome to our community!
You are in my thoughts and prayers.
Hope you feel better soon!
Congratulations! Time for a celebration...
Happy Birthday!
317787 tn?1473362051
04/16
HiFrank, hope you're doing well. Dee
Blank
Report
747988 tn?1396540478
10/14
just saying hello! hope all is as well as can be and that you're continuing to keep as busy as possible! xxx
Blank
Report
317787 tn?1473362051
05/14
Frank I think I can understand never knowing how you will feel from day to day.  I have that now, I have started to have more good days than bad but seem to over do on good days so then bad days follow, take care, D
Blank
Report
747988 tn?1396540478
01/14
well that's dexamphetamine! there's no way there'd prescribe me that and I don't think I wanna take it anyway,my speed days are long gone! I don't think it can be very good for anyone with a post viral fatigue syndrome as you'd just be using energy you don't have so surely you would have worse crashes? I spent years prior to dx overdoing it on good days and paying for weeks afterwards,nowadays I keep fairly stable by doing very little all of the time.I don't sleep for more than 2or3 hours a night,I have low grade fevers all the time and trouble regulating my tempurature-worse at night,racing mind,hypersensitive to smells/noise/movement,anxiety attacks-can you imagine throwing amphetamine into that mix?!!!? Glad it's working for you tho xxx
Blank
Report
747988 tn?1396540478
01/14
thanks Frank.As I'm sure you'll appreciate I understand the chronic fatigue thing only too well,I've not been far from my sofa since tx in 2006/7.I finally received the post interferon syndrome dx after 5 yrs of fighting for it-we shouldn't have to do that.It's a struggle to do the basics in life,never mind fight the medical profession.One day we will fight back!
Blank
Report
747988 tn?1396540478
01/14
Just a quick note to say hi! I'm just connecting with another damaged soul! thanks for putting my thoughts about tx and the medical profession into words for me,I seem to have lost the ability! xxx
Blank
Report
Avatar universal
09/12
Thank you for everything!
Blank
Report
Avatar universal
08/12
Wed 29th...........then Sept 4 last pill
Then the wait.
Blank
Report
Avatar universal
08/12
Hope you are doing well Frank!
Blank
Report
Avatar universal
08/12
Just a quick note to say hi!
Blank
Report
Avatar universal
08/12
Cool Grinders............looks like the adjustments are on top.
Blank
Report
1669790 tn?1333666195
09/11
A fixie in FL maybe, but would be a challenge in some of the PA hills.  I grew up in the Easton/Beth area.  Hope all is well with you.
Blank
Report
1638736 tn?1300458385
03/11
My husband went thru treatment last year and now has vision problems and horrible pain that moves through his body.  He has been to doc after doc and they can not find anything else wrong.  I am sure it is from the Hep C treatment and I think he should try and get on disibility.  Was it a hard process?  Please any info would be so appreciated.
Blank
Report
419309 tn?1326506891
08/10
Thank you for  wishing us luck and encouragement -- we need every bit we can get!  My best to you.
Blank
Report
Avatar universal
07/09
I checked out the Mayo clinic.  They have one in Scottsdale Arizona now too.  I'm not sure it would be the right place to go or that they could help one of us out.  As I understand the problem, most of us were treated by Gastroenterologist with Chemotherapy.   Most people that get chemo, see an oncologist.  So we don't really have a slot.
But here's the thing, many people, 34% of breast cancer survivors suffer from similiar symptoms and doctors are finally admitting it.  But is there any research on fixing the problem?  That's what I can't find.
Blank
Report
493068 tn?1224768915
11/08
Happy Thanksgiving!
Blessings,
proud48
Blank
Report
493068 tn?1224768915
11/08
You're in my thoughts all the time, but especially today.
How are you doing? How is your love?  I have not heard from you in a while and wanted to check on you??  :)
proud48
Blank
Report
493068 tn?1224768915
08/08
Congratulations! Time for a celebration...
nothing bettter than love. Glad you are doing so well. Actually where I live (deep south) it is usually real hot but it is 82 today. I love it! have fun@  :) hugs back
proud48
Blank
Report
493068 tn?1224768915
08/08
Just a quick note to say hi!
Just checking to see how you are??? have heard in a while. Hope you have a great weekend!
proud48
Blank
Report
493068 tn?1224768915
06/08
Just a quick note to say hi! Frank, the appt. card had the wrong date on it.He was on vacation! It is next Tuesday. My IM doc does believe that I have problems from the Tx. I don't expect an answer from Dr. D because they don't want to acknowledge that the Tx. causes problems. I feel betrayed in many ways because lack of brushing us off.
I will pray for you and take care of yourself! I know all about daily struggling. What did you want to add to my note?
sadd  
Blank
Report
493068 tn?1224768915
06/08
Just a quick note to say hi!
Hello Frank,
I did not get your note because I was not notified by the Forum??? I did not get to see my gastro doc because someone put the worng date on my card. It is next Tuesday...I was so upset. I was ready to get the test over with and give him my last paper work for the SSI-disabilty. ugh!!!!! I'm sick of paper work.
Thanks for asking. the TENS does help. My ortho said the bone spurs on C4,5,6 are pinching off my spinal cord so a lot of my pain is from that and I will have to go to a Neuro surgeon. So I will keep the faith and pray.
How are you doing??
sadd      
Blank
Report
493068 tn?1224768915
06/08
Just a quick note to say hi!
Hi Frank,
Just wanted to say hi and tell you I will be trying to explain what my life is like to my gastro doctor this week. I just pray he will believe me. Hope you are doing well!
Blessings,
sadd
Blank
Report
493068 tn?1224768915
05/08
Just a quick note to say hi!
What do they want to do to your shoulder?
sadd
Blank
Report
493068 tn?1224768915
05/08
You're in my thoughts all the time, but especially today.
I am wearing the TENS now....so I will let you know how it does. I have it set on 4.5. What do you have yours set on? The migraine I had radiated all done my spine yesterday..That is what happened 12 hrs after the injection of INF every time.
sadd
Blank
Report
493068 tn?1224768915
05/08
Thank you for everything!
Hello Frank was not on site yesterday...I was down with a migraine..they just knock me out now. I get the TENS today.
Blsessings,
Deryl
Blank
Report
493068 tn?1224768915
05/08
Thank you for everything!
Hello Frank,
I saw my rheumatologist this morning and he ordered a TENS and I get it Thursday.... He said I have inflammatory immune disorder?? and wants to send me to Charleston MUSC. I don't know when I'll go. I am very hopeful for the TENS.
I appreciate your hug.
sadd  
Blank
Report
493068 tn?1224768915
05/08
Thank you for everything!
The MRI at 3 months after starting INF showed both Labrums and rotators torn. On jan 4 My R shoulder was repaired so it is slow going in PT...My therapist has asked for a TENS for me and I hope I get it today. Did it help you? How can I help with the 60 minutes pursuit?
Blessings,
sadd.
Blank
Report
493068 tn?1224768915
05/08
Just a quick note to say hi!
Hello Frank,
My last 2 days have been bad...I tore both my tendons in both shoulders while on the treatment..I had surgery Jan.4 and I already have bursitis in my R shoulder again and just had a bursectomy with repair of the Labrum and Rotater cuff. My pain is back and I started Soldyn 2 weeks ago for the ocular and facial inflammation I get now. So yesterday it caused my skin to turn dark and severe stomach cramps and I am worried it has done something(more) to my liver. Any way I cried all weekend. Thanks for your concern! It means a lot to me. Take care!
Blessings, sadd
Blank
Report
493068 tn?1224768915
05/08
Thank you for everything!
Thanks for your note...it helps to have valadation with others like me....I was so hurt when I was sent to Duke to see a hepatologist and he said everyone gets back to normal and it just drove me almost over the edge. My regular gastro does think now that something happened to me after 2 years...He sees the notes from the dermatologist, orthopedic, rheumatologist, ophthalomologist and phych doctors. I only had just a IM doctor before the treatment.
What problems do you have?
sadd
Blank
Report
493068 tn?1224768915
05/08
Just a quick note to say hi!
Frank,
Just wanted you to know I too feel like I'm still on the treatment. My doctor said I would be better in 3 months...that did not happen so went to Duke and Hep doc said I don't see anyone with these problems. I would never make up these horrible pains and weakness. I have way to much to do to whine and complain but these side effects have ruined my life!!!!!
sadd
Blank
Report
475300 tn?1312426726
05/08
Just a quick note to say hi!  Hi Frank, I am really amazed at how many on this forum are from Pa, me included.  I hope all is well with you.

Denise
Blank
Report
Avatar universal
04/08
Just a quick note to say hi!
Blank
Report