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Just a quick note to say hi!
You deserve a big bear hug!
You're in my thoughts all the time, but especially today.
Thank you for everything!
Welcome to our community!
You are in my thoughts and prayers.
Hope you feel better soon!
Congratulations! Time for a celebration...
Happy Birthday!
198419 tn?1360242356
02/13
Hi Hope! Wow! Long time, no see! She's not been on in a long time. Forum just to much for her and life too. Maybe some day she will suprise us and pop in. You'll be glad to know she's ok though :) She gave us so much for so long. I still can search the forum for specific topics, and count on her good info to bump up for members. How have you been?
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1760800 tn?1406753451
10/11
Just a quick note to say hi! Welcome to the group!
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Avatar universal
07/10
Hi Hope, I know its tough with the mil, but trust me, it will work out. Sometimes its much easier to ignore, or to walk away. I've fought with mine for 10 years, and now I'm trying this approach and so far I'm getting the silent treatment, but it is better than being screeched at or criticized. Please let me know how your attempts go (perhaps we can help each other through it?). Thanks!
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220917 tn?1309784481
06/10
Thank you for your note, Hope!! So good to hear from you!! We are very truly blessed... Take care! Peace*
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666921 tn?1254990618
12/09
Just a quick note to say hi!  Thankyou - I hope you feel better soon too - Gorbs x
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428506 tn?1296557399
11/09
It does take a long time.  I didn't believe or appreciate that when I started, I still thought a month or so and I'd be good to go.  I'm very close to 1 year of treatment and wish it would just go away!
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675718 tn?1530033033
11/09
Thank you ! -scotty
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1043834 tn?1269043023
11/09
Just a quick note to say hi! Thank you for you invite, yeah for some time now I have felt the burning. I just wanna know what it is and how to deal with it.  

Thank you again. Hopefully we will be okay
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Avatar universal
09/09
Just a quick note to say hi! so how long you been taking doxy??  i know 200mg a day they use for latent syphillis infections for two months that is what i am doing. i dont have the joint pain as bad been on it a week. must be lyme.
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648910 tn?1290663083
09/09
Just a quick note to say hi!  I am dx with Celiac Disease.  I do the gluten free diet.  If you have questions or such I would be glad to tell you what I know.  Just send me a pm.  I hope you get to feeling better soon.  Pain is exhausting...not to mention it hurts. :0)  terry
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881165 tn?1265984588
09/09
Thanks for the message!  I was feeling very small and unimportant this morning :)
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796113 tn?1251249079
09/09
I'm so happy for you,(sounds weird, what I mean is, happy that you have a diagnosis and are able to treat it),; hopefully the antibiotics will take care of the Lymes once and for all for you!

Yeah, I have a doc. appt. w/ my GM on the 21st, regarding the lung nodule.  My Mom thinks I'll have to have a biopsy in order to determine what the nodule is,(cancer,fluid,or Lyme related),blech!  

Let me know how your progressing w/ your treatment and just how your doing in general as well.

Take care~
Rose
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796113 tn?1251249079
09/09
Hey there!  What's new w/ you?  I hope things are going well.
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648910 tn?1290663083
08/09
I just read your journal entry.  I am sorry you are having so much pain.  What medicines have the doctors RXd for it?  I hope you find some relief soon.  Pain takes such a toll on every aspect of our lives.  Hugs, terry
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237053 tn?1258828426
07/09
Hope your feeling okay and the doxy isn't kicking your butt too bad!
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Avatar universal
07/09
Many Thanks

I appreciate it :)
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Avatar universal
07/09
Neurotoxins can cause all kinds of neurological symptoms, including seizures. Why is it all the drugs they give to fibro patients are for nerve system? Neurotoxins can cause damage in and of themself, (mercury, aluminum, aspartame) as well as the neurotoxins from pathogens.
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Avatar universal
07/09
More likely than not? it was the tetanus that started all this? And not something I caught from the patient. I think it (along with the mercury in it that pathogens love so much) caused latent Lyme to come out.
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Avatar universal
07/09
yes, but test was negative. They diagnosed me with "fibromyalgia." (A neurologist diagnosed it, go figure). Had bulls eye rings years ago but never went to the doctor. The fevers came before the rings and didn't connect the dots. It all started (boiling burning pain, muscle spasms spread through my body, muscle tics, continuous muscle injury all of a sudden, senstive to noise, etc) when I got stuck with a used needle at work (I was giving an Rocephin injection to an Alzheimers patient who had a bad infection) and work sent me to the clinic, and the clinic insisted I needed to update my tetanus and gave me a shot.  
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881165 tn?1265984588
05/09
Having a big flare with the Sjogren's.  Big glands, very tired, but I should start treatment Monday, so that's exciting!
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881165 tn?1265984588
05/09
How's it going?
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Avatar universal
05/09
Yeah they have me taking vit d script and over the counter vitamin B.  I need to go in next week and get tested again to see if it is still low, as well as my thyroid.  Just frustrated as I am sure you are.
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Avatar universal
05/09
And yes, Quix is a great resource! I have met such great people on the MS forum. My #1 support system! :) I am hoping to get answers this summer before I start back in my 5th semester of nursing late August. Let's keep in touch!!!
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Avatar universal
05/09
Thank you for writing me! I have been checking out your stuff on your profile. Yes, I do have the lesions. I'm 22 years old and I have yet to find a neuro who can explain the lesions to me, and based on my symptoms and clinical findings (assessment findings) it's definitely something neurological in nature. The last neuro I saw told me I may have had a stroke, and come back if the symptoms get worse...I had all sorts of heart tests done to rule out anything cardiac, so needless to say, won't be going back to that neuro. I have an appt. June 24th with an MS neuro and will see what he thinks. I suffer almost everyday from terrible balance problems, tingling/pins and needles sensations, right sided weakness, etc..I have had these problems since October 08' and am in nursing school, too.
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796113 tn?1251249079
05/09
Since I have joined up to this site you are the first person to contact me back and I so very much thank you for that!  
To answer your question:  I have not given up hope.  I don't know how long you've had Lymes,(?), and, I think that if I had been diagnosed sooner the picc line/Rocephrin treatment would have worked.

Please let me know how you are doing now,during,and after your treatment.  Hopefully I will be able to help you further with any concerns you may have,also, just because the treatment did not work for me does not mean it won't work for you.  
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428506 tn?1296557399
05/09
Thank you for everything!  Your response was very level-headed, not always my strong suite :)  Was having a rough day with work and horrible evening with symptoms, so I was reading too much into everything and feeling way too sensitive.  Thanks, and hope you can relax this wkend, read you're struggling with symptoms too.  (Lot of that going around right now!)
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884838 tn?1240849675
04/09
Hi, I am a mother of three young children. 5, 3, and 1.  I can't take this anymore.  I can't even take care of my children.  I can't stand the sound.  Am I doomed for life with whatever this dizzy/swooshy feeling I have.  

Feeling very very hopeless
amaliesam
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Avatar universal
03/09
You are very welcome.  I'm wishing you best with your appt. tomorrow.
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648910 tn?1290663083
03/09
Thank you for the invitation.  You will find that on here you are never alone no matter what time of the day as we have members from other countries.  And yes I love my doggies.  I am impressed you have done the same for your cats.  Every animal needs an angel.  I love cats too.  It is just some of my doggies don't.
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611606 tn?1315517767
02/09
You deserve a big bear hug! Please know that I am saying prayers for your pain to drop down to  a managable level. I relate to the burning pain, Please know that you aren't a lone. We are all here to give you all the support you need.
I will keep you in my daily prayers and I am sending you special gentle hugs, (the kind that don't hurt)
I hope today will be better and may it be filled with lve & some laughter too.{{{~!~}}}
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Avatar universal
09/08
Just wanted to let you know I can relate. If you ever want to talk, you know where to find me. I do have multiable systems like you and more please see my profile... Take Care OK!  I'm with you on this one....Peace
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428506 tn?1296557399
08/08
Just a quick note to say hi!  Remember me?  I'm the one with the really detailed timeline :-)  Just saw you are listed as feeling better.  Have you figured anything out, or are you just handling things well?  Either way, I hope you continue to do well.
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