Blank
Blank
Blank
Blank
Blank
Blank
Blank
Blank
Blank
Post It
Just a quick note to say hi!
You deserve a big bear hug!
You're in my thoughts all the time, but especially today.
Thank you for everything!
Welcome to our community!
You are in my thoughts and prayers.
Hope you feel better soon!
Congratulations! Time for a celebration...
Happy Birthday!
Avatar universal
10/12
Check your reg email.....
Blank
Report
198419 tn?1360242356
05/12
Nice to see you, Moke. Hope you are ok :( Miss you. (((Hugs))) - shell
Blank
Report
572651 tn?1530999357
10/11
Happy Halloween!  That darn work sure does get in the way of fun.  I haven't visited the woodpile yet this year, but will heed your warning when the time comes.  hugs. L
Blank
Report
572651 tn?1530999357
10/11
Just a quick note to say hi! It's always good to see you pop up around here.  We don't see you often enough.
Blank
Report
198419 tn?1360242356
09/11
Thanks, Moke! You know it's a good day when you can sit w/your feet up at the end of the day in new jammies! woo hoo
Blank
Report
611606 tn?1315517767
08/11
You deserve a big bear hug!
Hi Sweetie, How are you. ?? Now that I have a New computer, I'll become a real pest. Seriously, there hasn't been a day to go by that you haven't walk into my thoughts. I hope you'll forgive me for not being around.
Have a Beautifu Day and know that I am sending you Love filled Hugs. {{{~!~}}}} DJ
Blank
Report
198419 tn?1360242356
06/11
Popping in to say hello!!!!! How you been doing? xxoxoxo- shell
Blank
Report
1372734 tn?1309950237
04/11
Just a quick note to say hi and thanks for your reply, the csf is what carries the messages around your brain to your body I think??? If it gets a total block the only thing they can do is decompression surgery on your brain to restore flow, I have been told to watch out for blackouts,severe head pain and arm pain as this is an indication that my diminished flow has stopped.  If they dont do surgery you can develop a syrinx in your spine and left untreated can cause paralasis.  its a frightening thought, I dont want surgery but dont want paralsis either, hey guess only time will tell, but im feeling rough when I exert myself and have for the past 6 months guess this explains why.  Oh gosh the waiting game continues, just hate it.
Blank
Report
1372734 tn?1309950237
04/11
Just a quick note to say hi Honey, just an update on ns apt today, went ok they have identified that I have a restricted csf flow in the posterior (sp) of my forearm magnum this is where my heniation is. they want me to go back in 3 months when by this time I should of heard or seen the senior nl to get the low down on my bloods and his opinions.  Heyho another waiting game.  But no mention yet of phyce evaluation, but expecting it......
Blank
Report
1372734 tn?1309950237
04/11
Thank you for everything honey what you suggest is exactly what im going to do just to proove that hey u are wrong and I no my body better than you, seriously how can you make up collapses, numbness,awful body sensations and incontinence, plus many many other symptoms.  Thanks for your kind words just wanted to share that you are not alone.  Im dreading appointment tomorrow with ns.  After tomorrow im throwing the towel in for a while if its all negative as I just cannot do this anymore.  Hope you are well
Niki x x x
Blank
Report
1372734 tn?1309950237
04/11
Just a quick note to say hi and hope you are well and onto the neuro chase again!!!!!   Well im having a nitemare a senior nl is now deniying my chiari is causing my issues and has made 3 suggestions but the worst is that he says i may have stomatization disorder, (mental illness) im devastated as I truly no 100percent that my symptoms are real my husband backs me and says that he see's the struggles I face.  So honey like you its back to the neuro rollercoaster ride yet again.

niki x x x
Blank
Report
739070 tn?1338603402
03/11
Thank you for my birthday wishes!!! I had a great day! I appreciate you remembering me. BTW, when is YOUR birthday? I know so little about you except that you're one exceptional person.  

I hope things are going well for you! I'm glad you are still there in the shadows and didn't leave us!!!

Take care,
Ren
Blank
Report
198419 tn?1360242356
03/11
:( I understand
Blank
Report
1168938 tn?1327154232
03/11
Just a quick note to say hi!
It was good to hear from you, I am so pleased your sister has given you an opportunity to take a step forward with your life, they say everything happens for a reason so you must have been meant to help out in her enterprize :o) Hope you are doing well at the minute.
Hugs
Suz
Blank
Report
198419 tn?1360242356
03/11
Your turn to not give up Moki-girl! Come to the states! Whatever it takes! You have friends here :) - (((Hugs)) - shell Wante you to know I was thinking of you.
Blank
Report
1168938 tn?1327154232
03/11
Just a quick note to say hi!
Just passing by to see how you are doing.
Hugs
Suz
Blank
Report
Avatar universal
02/11
Thank you for everything!
Blank
Report
667078 tn?1316000935
02/11
Just a quick note to say hi! Thank you so much. Your dogs are wonderful.

Alex
Blank
Report
1168938 tn?1327154232
02/11
Just a quick note to say hi!
I've had 2 labs, 1 golden retriever, 3 german shepherds (2 of which were police dogs..my ex was a policeman),1 Westhighland white terrier and 1 cocker spaniel...they were all my babies over the last 25 years...alas my last one the spaniel passed away last year...I miss fur, muddy footprints and tripping over them!
Quix is brilliant, I love to read her adventures with the raccoons, cats and mice she has a way with words.
I hope your spirits are lifted a bit by all your messages.
Hugs
Suz
Blank
Report
1168938 tn?1327154232
02/11
Just a quick note to say hi!
Well wouldn't you know it I had a labrador called Bella.... that means we have got to be friends :o)
Suz
Blank
Report
198419 tn?1360242356
02/11
seems to happen especially to us brouds, broads...
Blank
Report
1372734 tn?1309950237
02/11
Just a quick note to say hi Honey and no probs, just thought it may have given you a boost to carry on, my journey is 3 years to date testing for MS, they say im all goos there, no leisions etc etc, then stumble on chiari, although chiari 1 definite they do think there are other neurological issues, praying these will not take another 3yrs to diagnose.  But looking back my journey started 10 years ago, as this is where my balance issues started, and now escalated to huge manifesto of symptoms.  Anyway keep me posted as I will and best of luck Honey.

Hugs
Niki x x x
Blank
Report
1372734 tn?1309950237
02/11
Just a quick note to say hi! Im a member of both ms forum and chiari forum,put a post on recently about hope.  Try to find it, Hope it helps.  It stinks how we are treated.  I agree with quix and other members its time for you to right to the authorities,make complaints etc etc etc.  Thinking of you
Niki x x
Blank
Report
Avatar universal
02/11
Hope you feel better soon! and glad you will stay i love reading on here cos im pritty fed up my self waiting to see doc's so hang on in there x
Blank
Report
279234 tn?1363105249
02/11
Glad I got a chuckle☺ I was hoping for that.  I'm here for you if you need a shoulder of another limbolander..okay. BTW we can have as many pity parties we want being Limbolanders, just as long as we reach out to our support system when we hit rock bottom. I'm glad everyone & Quix added their words of wisdom ( as always) and I would have ratted you out in a heart beat if it would mean that you would stay. (((HUGS)))
Blank
Report
1168938 tn?1327154232
02/11
You deserve a big bear hug!
I knew exactly what you were going through and it *****, glad you are sticking around. I've been knocked back by my last neuro and can't face carrying on at the minute with endless tests and then being told to 'go home and live with it'!
We all go through this I'm sure, it's like you say sometimes we need a reminder that people care, to give us that boost we need :o)
Hugs
Suz
Blank
Report
739070 tn?1338603402
02/11
You deserve a big bear hug! Just wanted to tell you that you are an integral part of the forum and I hope you don't leave on a permanent basis. I realize you have been in limbo forever and I at least know what 5 yrs. of limbo feels like...NO FUN!

Sending huge hugs of support to you. Take a break if you need to but please remain a member!

Hugs!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

Ren
Blank
Report
Avatar universal
02/11
You deserve a big bear hug!
lots of hugs from lots of us.........pls, pls, pls do not leave usssssssssss
Blank
Report
667078 tn?1316000935
01/11
Just a quick note to say hi! Thanks I will see the Neurologist PS on Feb 10th that is not far away.
Blank
Report
1519634 tn?1368800800
12/10
Hey there!  It's a pleasure to meet you and I'm glad I got a chuckle out of you.  Being able to laugh is what it's all about.  ;-)   Whoa!  Two foot snow drifts where you are?!?!  They say it is going to feel like zero degrees outside tonight here in N. KY tonight... but I'll take that over two foot snow drifts any day!  Stay safe and warm.
Blank
Report
198419 tn?1360242356
12/10
Yikes! 2 and counting!!!!!! Oh my! hope you got bread and milk! xoxo
Blank
Report
648910 tn?1290663083
11/10
Just a quick note to say hi!  Just thinking about you and wondering how life has been treating you?  Hugs, terry
Blank
Report