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Post It
Just a quick note to say hi!
You deserve a big bear hug!
You're in my thoughts all the time, but especially today.
Thank you for everything!
Welcome to our community!
You are in my thoughts and prayers.
Hope you feel better soon!
Congratulations! Time for a celebration...
Happy Birthday!
Avatar universal
09/08
Hey girl...haven't heard from you in a while!  All my symptoms have gone away......almost 2 months now!  YEA!  Hope you are doing good?  Have you checked your amylase in a while?  I am no longer on birth control, so I figured I'd get it checked at my next gyn. visit in a few months!  Take care!  Holly
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Avatar universal
07/08
I am still having problems sending mail from this to you!  I hope it is not my computer!  Did you get my other note?  I am scheduled to see the Dr. on next Tuesday, but it won't be scheduled until a week or two, this is a preliminary!  Pain is only faint, nothing like before!  I hope you are doing well!  Thanks for all the prayers!  Holly
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Avatar universal
07/08
Hey girl.....I hope your not getting multiple notes of this.  I have had some problems with the submission when I click post it.  I was just thinking of you, I received the latest call from my Dr. yesterday who stated that from the differential tests, they were able to conclude that I do not have Macroamylasemia :( and that it is the pancreatic enzymes that are high, more than salivary. He is sending me for an Endoscopic ultrasound in 3 weeks (that's the soonest).  He stated that we have ruled out all the bad stuff with the CT, but that this would help further define if I have any pancreatic damage or stomach mucousal issues....so we'll see!  Thanks so much for checking on me!  I hope you are doing good!  Holly
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Avatar universal
06/08
Hey Margie!  I just received a call from my Dr. again......I had my blodwork redrawn on the 5th just to see since the pain went away if the Amylase would be normal......well, it's lower than it has been in a while 123....but still high.  He now wants me to come in for a differential to see if it is the P or the S type.  If it is the P type, then it may be some adrenal dysfunction.  If it is the S type, well could be anything affecting the salivary glands.  Weird thing is I have had what I would classify as a toothache or slight swelling under the ear that comes and goes for some time......I am wondering now if this may not be the problem......there is no identifiable swelling.....just thought I would let you know the latest saga.  I am supposed to go in one day this week......
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Avatar universal
06/08
Hey Margie!  Just got the call from the Dr. and everything was fine!  Yippie!  They found insignificant stuff like some swollen lymph nodes in the top portion of my intestines and a kidney cyst, but nothing significant!  That's good news, but now I feel like all this has been in my head!  My GI doc did say that he wanted to recheck my Amylase levels, but feels I could just have Macroamylasia ( i know in your research you've heard of it!)  He also said, if the pain comes back (which I know it will....that we could do the endoscopic ultrasound to check for ulcers that may not have shown!  I am so thankful that God sent you to me, you have provided more support than you can imagine!!  Let's keep corresponding!  Holly
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Avatar universal
06/08
Thanks, I appreciate it greatly!  i just called the Dr. for the 2nd time to get my results and they said that he is at the hospital doing procedures!  UGH!  He likely won't be back until tomorrow!   I am so frustrated with all the waiting!!!!!!  I know statistically, everything is on my side, but I just need to know!!  Now my kids are out of school, so I have to put on the happy face and pretend that I am not stressed out! They are 9 and 7 and VERY intuitive!  I noticed that you had thyroid surgery also.  Do you still have some of it?  I have a nodule on my thyroid also!  I did some reading and the thyroid excretes high levels of Amylase also, particularly if diseased!  Do you live in Oklahoma?  Just wondering cuz I am a HUGE OU fan!  Didn't go there, but love Stoops and the boys!
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Avatar universal
04/08
Just wanted to let you know I can relate. If you ever want to talk, you know where to find me.
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Avatar universal
03/08
Just a quick note to say hi! hi ive noticed that i can actually have lovely people to talk to on here who will listen and im more than willing to listen back. About as much as i can relate is via your interest of abdo pain pancro but hey thanks for your time hope u all good and happy easter brio
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