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Just a quick note to say hi!
You deserve a big bear hug!
You're in my thoughts all the time, but especially today.
Thank you for everything!
Welcome to our community!
You are in my thoughts and prayers.
Hope you feel better soon!
Congratulations! Time for a celebration...
Happy Birthday!
1225331 tn?1333369369
03/11
And you haven't had MS for very long either! I sometimes wonder if it's these dang spinal lesions that we have. And I've read if spasticity or weakness were your 1st symptoms, then that's not a good sign. Sorry - maybe there's something they can do?
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198419 tn?1360245956
03/11
OOps Jensy, criss-crossed ya! xoxo - shell!
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198419 tn?1360245956
03/11
Excellent simple explanation/descript of RLS and myoclons Jens! Happy Weekend! - shell
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900662 tn?1469393905
02/11
Thank you,  No the Dr has said that..
I fully expect to be on DMD'S after my next  DR visit .

thanks
John
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704043 tn?1298060444
02/11
Just a quick note to say hi! so this pill is helping you?  i made a nother thread,on gilenya-lol,  well anyway im excited, but does it cost you? iv seen like its free, butthat number  877-408-4974  - they can tell me?   thanks!
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Avatar universal
02/11
Just a quick note to say hi!
and thanks for your post!  We have a lot of similar experiences it seems!
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279234 tn?1363108849
02/11
Thanks for the info. I went looking for it in Heather's old post, but gave up LOL. Plus I have 2 sick kids right now..Great info BTW. Thanks again for the help.
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198419 tn?1360245956
02/11
Hey Jens - you up to visiting a new member? I mentioned aricept but her doc didn't seem to agree.....  http://www.medhelp.org/posts/Multiple-Sclerosis/Help-Please-I-am-new-/show/1449669#post_6601058
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900662 tn?1469393905
01/11
Just a quick note to say hi!

Has your doctor uttered the dread acronym yet?   I'm not sure what you mean.
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198419 tn?1360245956
01/11
You were on Aricept weren't you Jens? A member Angela asks about it, and I told her I'd hit you up...... ttys, -shell (I bumped it)
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Avatar universal
12/10
Wanted to add you as a friend since I don't know anyone with this condition and am trying to reach out to others going through this same condition. Thanks
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Avatar universal
12/10
Hi I also have spinal myoclonus and palatal myoclonus and would really like to connect with you on these conditions. Mine has totally spread these last 2 weeks. Please feel free to write to me. auntlolo Take care. I understand what you are going through.
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1225331 tn?1333369369
12/10
Nice masks!  :-)
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1216899 tn?1288573925
12/10
I just wanted to tell ya that I started taking Cymbalta about a week ago for the pain of spasticity. I gotta tell ya, I sure am starting to feel better. Like 75% of the pain is gone, and all of the muscle pain is gone. It's really kinda weird, cause I can feel my body being spastic, just without the pain. I don't know about the long term effects of this stuff yet, but I'll let you know.

Hope your doing well
John
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1312898 tn?1314571733
12/10
You're in my thoughts all the time, but especially today.  Thank you for all the work you put into our community, and I always enjoy looking at your masks.   hugs,  Red
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620048 tn?1358021835
12/10
Hi, i will have to look that one up...but I am having hives again so maybe its not the copaxone after all.  I see my MS dr on the 13th and will talk with her.

OMG, i just read that you make leather masks, that is cool.  Do you have a website?
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648910 tn?1290666683
11/10
You're in my thoughts all the time, but especially today.  i hope you have a wonderful holiday.  hugs, terry
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1511858 tn?1290481059
11/10
Thank you for everything! I justread the reply I sent to you and realized some of my wording was wrong and it didnt make alot of sense,bottom line short and simple due to my thought process lol I left the hospital walking and was happy and have been walking up until last attack and was walking again in 2 days alot different then what I said. still working on how to use this page but think you might have ms? good luck to you and god bless
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1510510 tn?1290079424
11/10
Thank you for your nice post and looking at my mri pics.   i've actually added more will you take a look?  Thank you for letting me look at yours it helps.  I'm so brain dead it takes me forever to upload. download.... whaterload... lol I have some with those white thingys lol  i'll post more.  Looks like another long haul for me.  
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900662 tn?1469393905
11/10
Thank you  for looking at my post.
Just when I thought I knew about my DX something new pops up..
They didn't say how many leisons tho. I know of at least three in the brain

John
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1216899 tn?1288573925
10/10
It's my sister in law and husband, and they are in the Dallas Fort Worth area. I haven't been there yet, but my wife has. It sounds like such a great State.
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645800 tn?1466864555
10/10
Jen,

  Yes that is me on the MSWorld forum. Got  a great post over there about the monocular DV by redwings.

Dennis
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147426 tn?1317269232
09/10
My hand controls are the Monarch.
http://mps-handcontrols.com/products/hand-controls/right-angle/
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147426 tn?1317269232
08/10
As usual I can't find the paperwork for the carr hand controls.  I'll keep looking or have the movility company send me the literature.  Quix
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1312898 tn?1314571733
08/10
Just a quick note to say hi!  Haven't been able to play with glass and fire but I still hope to be able to get back to it!
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1312898 tn?1314571733
08/10
Just a quick note to say hi!  How is your mask business going?  I hope you have a great weekend.    Red
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Avatar universal
08/10
I feel your pain! The fatigue is so exhausting.  I sometimes thinking won't make it through my day.  
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Avatar universal
08/10
Thank for the reply to my post. I've had brain fog since I first realised something was wrong and thought I was actually having a stroke, It does suck your right. Makes it hard to get through a day at work when it is so unpredictable. Sometimes when I'm speaking with someone and I have it I think to myself do they notice I'm so spaced out !!!
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1281603 tn?1283802299
08/10
Thank you for saying what I was thinking!
"I think if you want the opinion of a doctor, you should probably ask your doctor! "
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1216899 tn?1288573925
07/10
Hey jen, I was googling jaw spasticity, and came across a post that you had written in another forum. I am really getting hammered right now with it. I was wondering what you found out that relieved the muscle pain around the jaw bone. So far I'm on Valium, and it is barely working. Is there anything else you know of?

thanks
john
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147426 tn?1317269232
07/10
Jen, I hope you are getting photos of the weird swellings.  Otherwise they might not believe you.  Weird is right!  Quix
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1312898 tn?1314571733
07/10
Just a quick note to say hi!  Wow,  those are just awesome.  I love them!  I know where to go if I ever go to a masked ball or other cool party:-)
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