Blank
Blank
Blank
Blank
Blank
Blank
Blank
Blank
Blank
Post It
Just a quick note to say hi!
You deserve a big bear hug!
You're in my thoughts all the time, but especially today.
Thank you for everything!
Welcome to our community!
You are in my thoughts and prayers.
Hope you feel better soon!
Congratulations! Time for a celebration...
Happy Birthday!
Avatar universal
09/13
If anyone is in contact with the woman who has a child with Goldberg Shprintzen Megacolon Syndrome and wishes to speak to a mom who has a child with the same syndrome, please contact me. My daughter was just recently diagnosed. We live in New York. In would love to connect with other families with the same syndrome. Thank you.
Blank
Report
535822 tn?1443976780
02/11
Just a quick note to say hi! hi sent you a pm ..you okay today ...marg
Blank
Report
1110049 tn?1409402144
11/10
Just a quick note to say hi!  Hello, I live in UK too.  Sorry to hear about your daughter's illness.  Hope you find support and friends here.
Blank
Report
Avatar universal
09/09
just wanted to say thanks for the message. it is nice to know that i can talk to someone
Blank
Report
Avatar universal
09/09
got it... part of myotonic... I wanted to really understand what you and your daughter are going through to better provide support :)
Blank
Report
Avatar universal
09/09
I am doing research right now on centronuclear myopathy and only located mitochondrial and myotonic myopathy... does it go by another name?
Blank
Report
Avatar universal
09/09
hi, just read some of your posts and would love to chat with you sometime.  I find it that the more people you reach out to, the more valuable advice you obtain. To make a long story short, I am completely committed to making dramatic changes in my life from substance abuse, to therapy, to learning how to cope with panic attacks and GAD.  I am so happy to have found this forum and just know that regardless how different your situation may seem to you, there is always someone out there that can relate in some way.
Blank
Report
535822 tn?1443976780
06/09
I have PMd you ....take it to Oprah in my PM I tell you how....
Blank
Report
535822 tn?1443976780
05/09
You are welcome well I listen ,so PM me anytime you want to chat online , we have all been through something, its good to find suport I am a better person for having found others here .
Blank
Report
535822 tn?1443976780
05/09
LOL keyboard at it again,I type too fast
Blank
Report
535822 tn?1443976780
05/09
I ahve left some infromation on your journal, you are not alone in this ,get talking about it..put it out there for answers..
Blank
Report
535822 tn?1443976780
05/09
Thank you for putting your daughters illness into your journal I am going to go read it to learn more,
Blank
Report
535822 tn?1443976780
05/09
I have this crazy keyboard I meant informative ......
Blank
Report
535822 tn?1443976780
05/09
Hi I have just spotted your post Dr Nicholson was very indormative yesterday, how is your daughter doing ,I must say I have never heard of this strange sounding disease, Could you write something in your journal for us all to see, hope you are well.
Blank
Report
Avatar universal
10/08
Welcome to our community!
Blank
Report
627211 tn?1260954745
10/08
Just a quick note to say hi and welcome XD
Blank
Report