Thanks Eva....but how are you? Many of my MVD contacts are either able to exercise sometimes,not at all, then back again to minimal,with nurses monitoring etc then back to not being able to start again.So the docs do see this as progressive with degrees of this dysfunction.The cardios are getting smart to monitor these patients in a better than a regular gym.Our 28 girl with MVD is at Emory for cath this Monday.She used to ski,catch and brand cattle,jog and swim.Now she's on oxygen.So age doesn't count.Hope you are very well.
Hi Eva. Hope you remember me. I just wanted to give you the link to the Emory documentary that they did on my heart story.
It's only 3 1/2 minutes long but it has gone on You Tube also.
Hope you continue to do well. Most of the ladies I know that have tried the cardiac rehab have not been successful but as we are all still learning, this MVD or endothelial dysfunction is a progressive disease so we can show up anywhere along the spectrum fo symptoms and difficulties.
Here's the link: http://emoryhealthcare.org/interventional-cardiology/conditions-diagnoses.html.
And I wanted to add that we all should move and enjoy it!! When you can't have it,it really becomes quite a loss.One MVD friend wants to go up to 'some' ladies and scream "get up and move because you can!" Have a great weekend and drink some good wine. It's heart healthy. Best wishes from across the pond.Joan.
The exercise dilemma for MVD is a catch.With meds,some women can return to exercise then there are others,even in a controlled setting of a cardiac clinic that cannot return to exertional demand of exercise.It is believed that it depends on the amount of damage that is done in the microvessels' endothelium.The endo just can't open.But for some milder MVD,the endo continues to function to allow a lower level of exertion.We are made to move so this is hard on my friends that were tri-athletes.Also,we have caused damage by trying to exercise as the docs say to,but we cause more ischemia.I miss my bike the most!
You have to send me a message first with the email account I gave you. But let me try this to theheart.org but enter this in http address line as you would to search something.
The heart dot org/documents/sitestructure/en/content/programs/1184681/1184681.html and see what happens.
Do you understand the word 'edgy'? It's like that bad feeling you get when you know the chest tightness can go worse,or get better.I've had a few bad days like that,yesterday went outside my physical exertion limit and last afternoon laid down for a nap and was awoken with the feeling of a knife in my back! So nitro spray,xanax.I feel OK today.May I send you a link to a very excellent doctor class explaining the ischemia? This site doesn't like personal emails so you have to run the entire names together:j jahnke( then the "at" sign) mind spring (that's one domain word),then the 'dot' or 'period' with the first three letters that mean commercial. This is a valuable class given to doctors. I'll be looking for your email so I can send this information to you.Joan.
How are you doing? Let me know. Joan.
I wanted to add that I am in South Carolina, USA so we have a time difference.I'm originally from Newfoundland, Canada. I'll try to keep up with you and answer promptly. I know this microvascular dysfunction very well and there are plenty of scientists around the world looking at the possible causes for this heart problem that seems to affect women, especially of a certain age. You describe your signs very well.All the women I know with this are very healthy, not abusers of any tobacco or booze, good diets and are smart.How does your heart react to an emotional event?
Your answer leads me to this thought: ask about cardiac microvascular dysfunction.You describe what I and several other women have; it is hard to diagnose and manage.You are not de-conditioned and even if you were, you would not have those signs.The PVCs could indicate lack of oxygen to your heart micro vessels when it is related to exercise. I had that.And once I was treated, the PVCs went away. You must stop worry about PVCs and look beyond them for a reason.Read my journal here at joanincarolina.There are plenty of very good European docs that can help you. I'll bet EP is not the route to go.Ask questions, let me know what you think about my medical history.I am a cardiac nurse by training so let me know if something is not clear.Joan.
Eva; just a question for you.How do you do with exercise?Shortness of breath? I am not an expert or MD but have heart experiences.
Just a quick note to say hi! My name is Matt and I am a fellow sufferer of SVT and various rhythm disturbances, I am also a cardiac technician here in London , England if you would like to chat anytime email me on ***@**** and we can have a good discussion, you are not alone Eva,