Hi Joni686-- I haven't checked in to the forum for a while -- my mom broker her hip! Hope you're feeling better these days. I've been in Houston recently to a Urology specialist. Would you mind telling me the name of the cardiologist you like in Houston? I have a congenital heart condition and I may want to consult with someone in Houston. My youngest grandbaby is in Hou - 1 year old! Best, minmtn
Just a quick note to say hi! What a coinceindence that your daughter's name is Jennifer. That's what I go by. I hope this note finds you feeling okay. I was curious how old you were when you were diagnosed with the "party package" lol. It started for me at 30yrs, but I believe it was there before and I just fought it. My intial symptoms were extreme migranes, dizziness(passing out because Blood pressure drops low, hair loss, joint pain). What were your inital symptoms? Having all this it is hard to figure out whats causing what. My acceptance level is better, but still struggle during flares. As you stated my life too got turned upside down. Disbelief from drs and friends makes those who face this even more challenging. How do u handle all of it? Any words of wisdom? Thx, Jennifer
Just a quick note to say hi! Hi Joni, my name is Jennifer and I am kinda new to this site, not new to the rollercoaster ride to get diagnosed with Lupus, Fibro, Sjogren's. Was wondering if we could chat. Some of experiences seem similiar. Thanks, Jennifer
Just a quick note to say hi! I'm so glad you are back. I worry when I don't see you. I know what you mean. I too was out there trying to figure all this stuff out and was needing help.
The pic of you and your husband is precious. You made such a beautiful bride. I pray you are feeling well these days. Overall, I'm doing good. I've had trouble w/ a cough, but it's looking like acid reflux (easy fix) and I've had muscle jerks (especially during the night) - don't know what to think about that. Can't complain too much :)
You're in my thoughts all the time, but especially today. Joni I am so very glad you are back. I really missed you. Thought about you often. You are such a sweet and thoughtful person. You add so much everywhere you go.
Hi. Back on here again. Still trying to find answers to all this crap! Hope you are doing well.
Miss you, miss you, miss you :(
Would love to hear from you. I pray for you everyday. Hope everything is OK.
Look forward to hearing from you.
Hey Joni, I haven't been on here in so long. I was glad to see a note fomr you when I logged in today! Things have gotten much worse unfortunately. I wish I could say something better but the truth is the truth. (I know you know how that is) I hope you are doing well, all things considered. You are in my prayers. What is your health status? Any improvement? How is your daughter doing? I look forward to hearing back from you.
Just a quick note to say hi! Take time to look up celiac disease and give the diet a try. Research many sites and see if you get some relief!
I'll say a prayer for you right now.
You deserve a big bear hug! Thanks for the all of the sweet, kind notes. Your husband surely feels very blessed to have such a sweet and lovely wife. You too are in my prayers too. I believing for a big and better change in symptoms when you go off the Premerin. HUGS TO YOU TOO.
Just a quick note to say hi and apologize for not reply your note sooner. I've not been doing well for the past few months...so getting online has become a daunting effort.
How's newlywed life? just as sweet, loving as you've imagined, isn't it? I'm so happy for you!!! We've just celebrated our 23rd anniversay last Oct. I must say, it has been a tough journey for my dear husband, as I've been a very sick kitty for 16 out of 23 yrs. He never gave up on me. I know your husband will support you whatever it takes.
Do put up some of your wedding photos, when you have a chance. I can imagine what a beautiful bride you must be.
All my best, Joni. Stay in touch.
Just a quick note to say hi! and wish u luck
You deserve a big bear hug! So glad to hear from you, Joni. You sound so happy. And such a beautiful wedding!. Merry Christmas my dear friend. God knew He had to become like man in order to save us. What a wonderful plan...only He could thnk of.
God's blessing to you and your marriage.
Good on you! It is worth it to expend what little energy we have on the things we love. I'm learning that it is OK to do this once in a while and to expect the consequences. I hope you have a very happy life together.
Happy Holidays! Your wedding picture is absolutely gorgeous! You are glowing and it is not from a malar rash!
Congratulations sweetie! Time for a celebration... I am so happy for you Joni! I thought of you Dec. 5th and was praying for y'alls BIG day. Love and prayers, Kara
Congratulations! Time for a celebration...
wishing you all the happiness in the world, as you deserve.
Where did you honeymooned at? Hoping to see your wedding photos.
Congratulations! Wow! That is quite the news! So glad you let us know and look forward to having you back on the boards!
I had the same symptoms. After testing it was my thyroid and I was told I have Graves' Disease. After Iodine Radioactive Ablasion I am fine. (expect for weight gain)
Just a quick note to say hi! and HAPPY THANKSGIVING.
You are in my thoughts and prayers. Thinking of you a lot lately. Haven't seen you on MedHelp. Miss you, praying for you daily. Hope to hear from you soon.
Just a quick note to say hi! Are you feeling better? Read your sweet not to Nicholette. You are always so kind in the way you word things.
I didn't realize you were in realestate. Are you on disability?
Think of you often and pray for you. Pray that you are getting better and stronger each day.
God bless and keep, Kara
Just a quick note to say hi!
Hi to you too. Hope you are doing well. I am not doing well unfortuantely. I am still trying to find a doctor to help me with all my issues. I have gut dysbosis candida parasite gut inflammation from leaky gut. I can barely eat because of all of this. Please let me know if you have found any help. Can you tell me if you think the holtze clinic is worth it? Since I am housebound and in bad shape I only want to make a trip for a doctor that can help me. I am in Florida.
Thanks and it looks like everyone says you are getting married so CONGRATS!!!
Please let me know and feel better.
Hey Joni, you are in my thoughts and prayers. Praying for you in everyway. Praying that God strengthen you to do what you need to do, trusting God to completely heal you intirely and to do the work in you that he desires to do. He loves you so much. What an awesome friend he is.
Wanted to check on you to see how the pneumonia is clearing up and how the wedding plans are going. Do ya'll have a date planned?
Sorry to hear about Bailey. But I think it's great that she is right next door. She can have the best of both worlds. Sounds like they really love dogs. I believe it's going to work out in the long run for both of you. Are you feeling better about it?
God bless you my sweet friend,
Sorry to hear your breathing is still an issue. Getting by over here. Greg has left for his last trek to Cleveland. Just so anxious about whether they will lay him off when he returns. His job field has just been decimated with the recession. He is on the design side of chemical engineering and no one is building so no one needs designs.
Joni, I didn't see your post to Dr. Nicolsen either. Some glitch must have happend. Try to go back on and ask again. PlatletGal said he is still on taking questions. Perchance he is still on.
Click on the one that "Cindy" posted. I think they sent me an old site.
I'll try to send it through a PM.
I'm with you on the ol' steroid countdown, 30mg this wk (wk 4 of 12 wk run started at 60mg), hopefully this time no relapse, been on/off (mostly on) since Dec.
Understand about the doggies, very very difficult but sounds like your neighbours are good sorts. Adopting cats in need means everything to me, have 4 now which is a good number (indoor cats), had much larger number in the past but realize what I can manage best now.
Hope you feel better soon! This **** sux. Hang in there!
Thanks for the invite! Wishing you a good day...one with some energy...Wanna :o)
I'm happy to hear from you. I saw your notes about the fat finger and the flare (nothing starting with "F" is good, huh?) in the sidebar. Glad to hear you're feeling a bit better. Perhaps a swollen finger is your sign of oncoming problems like people use their sore toe to predict rain. LOL Sorry, it's not funny but we gotta laugh or we'll cry. I'm doing OK. I didn't realize how much my Dad's death and my Mom's neediness has affected me. But it's all settling down and I feel awake and alive again. Ahh. I have 2 baby chipmunks and 1 baby flying squirrel at home right now. That keeps me busy too. Good thing they're small and mobile. Continue to rest and heal. Take care, irene
You deserve a big hug! Don't know how it's affecting you this time but I hope it passes soon. I noticed a note about your swollen finger? Maybe that was just the beginning of this flare? Anyway, take it easy. irene
You deserve a big bear hug! I'm feeling good today,How are you feeling?I hope your doing well.Recently I have started buying books on ai diseases.I didn't know there were that many different ai diseases.