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Just a quick note to say hi!
You deserve a big bear hug!
You're in my thoughts all the time, but especially today.
Thank you for everything!
Welcome to our community!
You are in my thoughts and prayers.
Hope you feel better soon!
Congratulations! Time for a celebration...
Happy Birthday!
1253197 tn?1331209110
05/10
Hi Mandy

Just to say thanks for your message..it is good to make contact with someone in UK as a lot of things seem to be very different in England..particularly ref. accessing drugs, DMD's, and drug trials. I am considering going on an oral drug trial and a lot of people seem quite sceptical..but i know it is my choice so I am just finding out more about it this week from an MS nurse (the first time I have seen one..so this feels like a relief). Cheerio for now

Love Sarah x
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1172359 tn?1310667693
02/10
I just wanted to check on you.  Haven't heard anything from you.
Hope all is well!
Cin
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611606 tn?1315517767
01/10
You're in my thoughts all the time, but especially today.
Many thank you for your note sent on New years Day, That was so kind of you. Our Support Group is so full of kind and loving People, just like you always are. I know I am so Blessed to be a part of it.
May this New Year Bring with it Better health, more days of feeling better with less pain and stress. I think we all can sure use a Better Year Than 2009 was.
I hope you have a beautiful day filled with Love & Laughter
Sending you daily Hugs filled with love  {{{{~!~}}}} DJ
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611606 tn?1315517767
08/09
You deserve a big bear hug!
Mandy, I think you know that when one door closes a window opens...  You will be fine.. But it still hurts doesn't it..
I am so sorry... I still remember my last day at work, (24 years ago) I though it was just a sick leave little did I know it was the end of my career that last day... But life goes on, doesn't it.. I hope you can keep your insurance... I wasn't able to do that...

Know that I am keeping you in my Prayers and sending you daily hugs {{{{~!~}}}}
I am here for you always....
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611606 tn?1315517767
08/09
You deserve a big bear hug!
I see you joined the group just before I did last year, but you haven't been around very much.. I just wanted to say hi, and let you know I am thinking about you and hoping today will be better..
Take care, and know we are all here for you..
{{{{~!~}}}}
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198419 tn?1360242356
08/09
Seeing your recent post - I remembered someone was looking for others on betaseron.  I don't know if the thread is buried now, but if I find it I'll throw it your way if you've not already seen it.  ttys, shell p.s. how you feeling?
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808815 tn?1254301881
07/09
Just a quick note to say hi!mand maggs here i was diagnosed on the 24th with rrms i had a feeling all along but just needed the professional to tell me so it wasnt a great shock i have just got to learn to live with it now all the best maggs
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634733 tn?1316625992
07/09
Hi Mand, yes that is what I meant I do have some minor local leg and hip issues but the majority of problems with my legs are CNS related and the physio can't help with that. The more fatigued I become the worse my walking and sx are. My first Counselling session is Friday, I'll let you know how it goes. I think your right to wait and ask the GP you may get a specialist physio if you mention it to them. Hope you are ok? (((hugs))) Pat x
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634733 tn?1316625992
07/09
Thanks for the note, I know exactly what you mean if you read my journal you will see. The sensory and physical often get confused and MS can affect both. My weak hip is the only physical issue the PT can find, that means everything else I feel is caused by the CNS and is not local to the leg - that is how she explained it anyway. Sounds as though you have the same issues? Pat x
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634733 tn?1316625992
07/09
Hi Mand in response to your post I too feel like you. There is a place for alternatives, for example, I have a back massage once a fortnight when I can afford it. The reflexology is nice, not sure it does anything but its relaxing if your feet aren't sensitive but I am not about to feed my body high doses of oxygen it's going through enough!! Physio sounds good though I am going to a neuro physio on Thurs but have had to pay - maybe we could swap notes eh? Good luck Pat x
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808815 tn?1254301881
04/09
Just a quick note to say hi! hi mand got my appointment in this morning its the 12th may i have to get lp and evoked potential evaluation i think this is because my eyes are strange, am happy i have it in just wish it was tomorrow,will probarbly have to wait a few weeks to see nuero again before i get results, my numbness is a pain but i can live with it so i shouldnt complain how long have you been diagnosed ,was it the lp that diagnosed you? good to hear your onl up the road keep in touch maggs.
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808815 tn?1254301881
04/09
Just a quick note to say hi!hi mand125 i am still waiting for lp appoitment i was told by nuero it would be last week called hospital girl who does appoints on holiday should get one out next week desperate to get one so i can get some answers thanks for getting in touch maggs
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572651 tn?1530999357
04/09
thanks for popping onto the expert forum and referring the person to our community - Dr. K can be slow as you obviously know and I hate to see new people just left hanging there waiting for an answer.

my best, Lulu
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611606 tn?1315517767
02/09
! Mand125's thank you so much for your kind words. I am sure that you have left your special imprint on every heart of the people who are a part of you life.
I hope the difficult winter that England has had this year hasn't effected you too harshly. From all the reports I have heard it's been very rough for just about your whole country. On the Bright side, Spring is just around the corner and it won't be long and all the beautiful English Gardens will be in Bloom, Birds will be singing and Butterflies will be fluttering by as you drink your morning tea.
I am not sure you can tell, but I truly Love your Country and the English people. I watch more BBC than I do our channels.
I hope you will accept me as a friend and that we can get to know ach other as time goes by.
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572651 tn?1530999357
02/09
thanks so much for adding to the conversation about NHS and DMD's - I of course only know what I read about it from across the pond and what acquaintances relate.  The system does sound very simple - I hope it works that easily in reality.  

Thanks again for the added information! - Lulu
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