Just a quick note to say hi!im not sure how to know when you send a message. I'll check back soon
Hi Shelly, Argh!! I have been trying to message your for weeks but something is wrong and it won't send :-( I really need your help and some info if you could please send some info I would appreciate it soooo much. I have no idea what's going on and just need to find proper information as currently diagnosed with MSK.
Hello guys, Shelly you may remember me from years back !! I have had surgery by dr wolfe and also he worked closely with a dr here to do the same surgery! I am no on suboxone and I live with less pain than ever !! I am just tired of working and loosing my job do to a hospital stay or missing days of work for sick days! I am home now trying to work from home a little store i have. But i have to work and i just cant any suggestions ??
Hi shelly remember me?? Had lots of problems lately with msk and mostly pain and UTI's...How have you been? How is your MSK? What are the most important things you do on a daily basis to manage your msk? I am out of touch with any chat line as I seemed to be managing it (and ignoring for many years but it has over the years cropped it's ugly head and given me problems but I was taking an antibotic daily and managing with tylonol 2's and litho but have desided to go back to the basic's of what my nephologist had originally told me and am just this week starting d-mannose again and water pill K-citrate all those fun pills that I eventually stopped taking over the past 4 busy years. Anyway I would love to re-connect with you if you remember me.
hi can you please send me your email about the urinary infections please.
Please email me the link to the website you mentioned in the forum I read about urinary problems and possible bladder/ urinary tract infections. I think I have one.
Shelly, I have had MSK for 10 years, any information you can send me would be great.
Hi I was diagnosed with PCS and I am going crazy trying ti find more info. Anything you can share?
PLEASE HELP. I BELIEVE I HAVE MSK. IF YOU COULD PLEASE E-MAIL ME AT ***@**** I CAN EXPLAIN MY STORY TO YOU BETTER. ALSO IF YOU COULD ALSO SEND ME THESE MEDICAL PAPERS BY DR.WOLF AND ANY OTHER YOU MAY HAVE CAME ACROSS I WOULD BE VERY THANKFUL. i HAVE A IVP SCHEDULED FOR NEXT WEEK. BUT YOUR POSTING HAVE GIVEN ME HOPE. I SUFFER FROM THE SAME PROBLES AS YOU. THANK YOU
Just a quI would love to talk chat, reading your posts you sound just like me we have the same thing and I am at the end of my rope...please help.ick note to say hi!
I saw your comment on the PCS thread that a PT helped you with this condition. I was recently diagnosed with PCS and would like to try the PT option before having the surgery done.
Can I e-mail you to see if I can find someone in my area to contact?
Thanks for your help in advance!
Thank you for everything!
i was wondering if you could help me,my daughter has a problem is there a email address i could send the details to.thank you..hazel
Hi Shelly, thanks for passing along your resources to me when we spoke in September while I was in the hospital due to msk. I am in Michigan tonight. I have an appointment with Dr. Wolf in the morning. I'm thinking of you. I hope all is well. I will give you the update afterwards. Thanks again for your help. Jill in Nkc.
Just a quick note to say hi!hi Shelley,
Will you please call my friend Ashlee @ (850)941-8202. She has MSK and has no computer. Thanks
Hello, I was hoping to ask you a few questions regarding IC or other possible diagnosis. Can I email you directly or whats the best way to contact you?
Just a quick question Shelley is MSK soley congenital only or can it develop in later life, all I've read says it's congenital! I've got an appt for a 2nd opinion as to why I'm having relapses of sudden renal colic and producing kidney stones anyway I hope things are settling for you a little, I know you said you had some personal issues going on.........! Take care sweetie
Just a quickie Shelley to say a very big thankyou to you for all you are, do, and care for! God Bless you.........Jan
Just a quick note to say hi and thankyou Shelly for the information you gave me. I haven't been on the website for ages so didn't realise all the info was there. I recently had an appt with my consultant urologist regarding my condition obviously didn't have the information you supplied me I don't see him again for 9months, he's now referred me to a pain mgmt team, (I was overdosed during my last renal colic episode during a hospital admission with oromorph and needed crash intervention).I'm afraid to take pain meds now plus I can't function as a 'normal' human being whilst taking them! I've only ever been dx with renal calcinosis and stones, and nephrotic syndrome (idiopathic) minimal change disease. MKD has NEVER been mentioned in fact my consultant is very dismissive.
Thanks for thinking of me...I hope things are going ok for you and yours...
Just a quick note to say hi! Hi, could you send to my personal email address the address for Moark IC....i tried
moark IC ******* but couldn;t find anything. I need more info on controlling the pain at night....I find I cannot
tolerate any urine in my bladder at night and get up to pee about every 90 minutes, and of course I am so
tired the next day. Besides trying to make my diet more alkaline, and taking prelief and elmiron, I am not
seeing a really big relief in the last 30 days.
Just a quick note to say hi! Would you please give me the full email address to Moark IC....i tried putting it into
google as moark ic ******* but nothing came up.
Just a quick note to say hi! love your friend alwayswithme DINA FROM JERSEY
Shelly, I haven't heard onthe study group. i am still really intrested in it. Thanks.
Thank you so much Shelly!
I would love anything you can send my way! Especially about relief! The doctors are the worst part about this though really.. They make you feel like a crazy person! But reading everyones story has made me feel sane. Thanks for the warm welcome : )
What exactly do you do in Arkansas?
I'm actually planning to move to Fayetteville or Northwest Ark. in a year or so..
Here is my e-mail:
Just a quick note to say hi! thanku for ur reply on my post!i will check it out, :)
Just popped into my wifi source up here in northern WI to check e's, thanks so much for the backup on the bleeding post hon, it is truly appreciated!!!!!
Hey Shelly....Just to let you know that we are back up and running with the internet at home. Hope all is well with you. Hope I can still be part of the study group.....
Please send me your links on IC. Thanks. Susan Can you just post them here?