Hi Ive had most of the same symptoms as you and its torture. My tsh is 4 but dr. wont treat me since its w/in "normal" on labs , though I hear anything above 3 is out of healthy range. What med do you take for your low thyroid?
I also tested negative for Celiacs on the blood test and oppted out of the biopsy as I was terrified of being medicated & having things shoved down my throat. I have gone gluten free never the less and 80% or more of my panic attacks have disappeared along w/some other improvements.. I learned that oats DO have glute/at least commercial ones like Quaker oats has 300-2000 ppm of gluten and it only takes as little as 20-50 ppm to effect a person w/gluten allergy. I also was amazed that even Doritos has wheat flour. What the? But Im glad i went Gluten Free!
Hi, I'm Australian, and was diagnosed with coeliac disease four years ago. It was very simple - they did a blood test at my local clinic, then referred me to a specialist, and I had an endoscopy in which they confirmed that my villi were being worn down by gluten. I am really surprised that your doctor wouldn't test for you. Cutting out on gluten is one way of staying well, but if you don't have coeliacs you miss out on some nice things! I hope you are able to find out for sure soon.
Just wanted to let you know I can relate. If you ever want to talk, you know where to find me. I read your post and it was like listening to my own medical history! Holy crow!! The few things I haven had are the rash and osteoarthritis...Although I have been told I have arthritis. I have terrible pain, I also get migraines as well. I started following this idea after looking as the symptoms of gluten intolerance. See my sister was very ill as a baby and had celiac, so the possiblility is there that I have it. Now I see my daughter starting to have some of the same issues that I have and she is only 16. Please let me know how things go. I see the GI doc with my daughter on thurs. I am going to bring all this up to him and see what he says. I wish you the best of luck. Keep in touch!
Hey, I also ran into both resistance and the lack of knowledge. I am sorry to say that I never did find one that knew much about it, but luckily had a doctor that would at least order the tests. The endo may be hesitant because he doesn't know much about it, but it may be better to get the blood tests first. There is an antibody blood test as well as a genetic test that a doctor usually will order. If either of these are positive, them a endoscopy is usually the next step; if you want to. It may just be easiest for you to go completely gluten free and see if you start feeling better.