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Just a quick note to say hi!
You deserve a big bear hug!
You're in my thoughts all the time, but especially today.
Thank you for everything!
Welcome to our community!
You are in my thoughts and prayers.
Hope you feel better soon!
Congratulations! Time for a celebration...
Happy Birthday!
Avatar universal
05/10
Thank you for the welcome!
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Avatar universal
05/10
Hi tonya,

Indeed my mothers sister and myself. Aunt and neice. She is the youngest and I am my mothers eldest. Find it so hard to believe with all the new medical developments in genetics that more acurate studies cannot show a significant link in MS and family memebers - I believe it is there somewhere...... All the best
Sharon
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1207048 tn?1282177904
05/10
Hi Tonya!
I was just thinking about you this morning....how are you feeling? I think your pain is far worse then what I have, and I've been hoping it lets up for you!
Thanks for checking in with me :-)
I was disappointed to wake up this morning at 5:20. I was up last night past midnight (date night with the hubby, we watched The Invention of Lying). I'm having a lot of joint/foot/hand pain, maybe from being off the prednisone? I see my neuro on Tuedsay, so hopefully will get some answers. Though, I guess I'm kind of expecting more of a "Well, lets see how things go" kind of thing.
Anyway! I sure hope you are feeling better!! Thank you for being so welcoming to me :-)
~Jess
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1312898 tn?1314571733
05/10
Just a quick note to say hi!  Thank you for helping me feel welcome here on the forum, I look forward to meeting other members.  
I can already tell that this is a forum that is full of kind and helpful people.  thank you--lois
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1291505 tn?1275107954
05/10
Hi to you too:-) I'm still detoxing off of trams, so I am realllllly foggy. I'll be back on here full force soon! Thanks for the note:-D
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Avatar universal
05/10
Hi, Tonyad! It's nice to meet you and thanks for the welcome! To answer your question, no I don't have Autonomic Dysfunction. Regarding the arrhythmia problems, I've suffered from panic disorder as well as Atrial Fibrillation for the last 12 years or so.
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675718 tn?1530036633
05/10
Thank you for the note ! i lost weight taking geodon for schizophrenia but the pills gave me tardive dyskinesia so i am back on abilify. i gained 50 pounds last time so i need to watch out this time it's hard work let me tell you ! -scotty :)
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1296528 tn?1272528430
05/10
Thank you for the welcome!
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1182479 tn?1273376014
05/10
Hi Tonya

I was told by the Rhuemie, that perhaps i do not have MS, that Sarc is one of the biggest mimics, and he feels i have had this for a very long time, as so many organs are affected, but my Neurologist and Ms specialist still say MS plus Sarc,

I have to admit that i feel really good on the Prednisone, in fact the best i have felt in myself for the last couple of years,
so really do not know what to think, it is case of What do I really have, I know I have sarc because of all the biopsies i have had, it is the MS I am now doubting,

How is your Sarc going, does it bother you much, and what symptoms do you have, I see that you have lived with this for a long time, and do you know in yourself what is an MS flare and what is a sarc flare, thats what confuses me lol

Tyler
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Avatar universal
05/10
Hi Tonya, Thank you for your response! Good night!
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1182479 tn?1273376014
05/10
Just a quick note to say hi

Hi Tonya

Thanks so much for all the advice, do you have neuro Sarcoidosis too ??, i think yes we were both waiting to be DX'd with Ms and sarc about the same time,

be well
Tyler
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Avatar universal
05/10
Hello Tonyad,Happy Mothers day to you if you are mother. I just became member of this community and I have post my story. Could you please help me? Thank you very much. JS59
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Avatar universal
05/10
hi!
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911669 tn?1294102788
05/10
You're in my thoughts Tonya.

I hope you are feeling better.  Keep in touch and let me know how you are doing when you get a chance.  I had to take a few extra Neurontin myself this weekend.....BYE....

Terri
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1297647 tn?1280867996
04/10
Thank you for the welcome
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1261153 tn?1303909668
04/10
You're in my thoughts all the time, but especially today. i hope you are doing all right! one day at a time.... thinking of you!
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739070 tn?1338607002
04/10
Tonya,
I hope this finds you feeling better! As for the drug interaction, I've been wracking my brain and can't remember which drug it was that interacted.

The doc entered all my meds into his PDA and drug reference and the interaction came up due to the way the two drugs were metabolized. I believe it's one of my blood pressure meds - verapamil, Bumex, or atenolol. Sorry I can't remember:-(

Take care,
Ren
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Avatar universal
04/10
Just wanted to say thanks for the welcome to the community!
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739070 tn?1338607002
04/10
You are in my thoughts and prayers. Just a sort comment on meds for TN. The first line drug is Tegretol. I could not take it as it interferes with one of my other meds. I take Trileptal which similar to Tegretol and actually has a better side effects profile in that it doesn't need periodic blood work to check for liver enzymes (if my memory serves me correctly).

Sending feel better wishes,
Ren
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739070 tn?1338607002
04/10
I was wondering if you were feeling any better. I hope the answer is yes.


Keeping you in my thoughts,
Ren
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198419 tn?1360245956
04/10
How you making out sweety?
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739070 tn?1338607002
04/10
Hope you feel better soon! I know how miserable you feel .I hope this course of TN is short. Keeping you in my thoughts and prayers.

Hugs,
Ren
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1207048 tn?1282177904
04/10
Hi Tonya :-)

I'm doing better for the most part. The pain is pretty much gone. The one foot still feels a bit tight, but nothing too bad. Thanks for asking after me! I hope your weekend is going well!
~Jess
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1261153 tn?1303909668
04/10
i told him that i am tired of seeing dr's and that i didn't want to be a bother and i asked him how often should i come in? he said oh no you are not a bother you come in when ever you wnat if symptons get worse or you just need to come see me. that made me feel good considering the first 8 mths we fought because he said it was all in my head thanks to the 1st neurologists. i am glad he is finally on my side. thanks so much for all of your concern it really helps me get throught the day.
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1261153 tn?1303909668
04/10
You deserve a big bear hug! yes i seen the dr. when i went in and seen him i was all slurred speech and walking funny. we had a good talk. he told me that he still had not got the report from the  neuro specialist and ask me and my husband what happened. once we told him that he told us it was a waste of his time and ours for being there and that there was nothing he could do. my dr was pissed. he said no one should be treating you like that.he said he is going to give him a call because this is crap. also i asked him if he could get a copy of the video and he said he will try. he wants me to keep going to physio and he has also  getting me to go see an occupational therapist to help me at home and with my speech.
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1291739 tn?1272175114
04/10
Hehehe, I feel like I just got busted or something. This is the first night that I'm suppose to take my Avonex, and I ended up on this site trying to figure out how I'm suppose to give myself this shot....my first shot, that is. So I figured I'd go ahead and join, seeings how I'd be hanging out with a lot of folks who more than likely know what I'm going through...because no one else in family seems to, so I really had nothing to lose. I really didn't find any video's or answers to my specific question, but I found a ton of answers on YouTube. Go figure, eh? I'm still going thru them, and as soon as I've seen enough that I feel comfortable, then I'll go ahead with my first jab. For some reason, this feels like a momentous occasion for some reason...you know, like a, "Kodak Moment"AhNoMorSp
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Avatar universal
04/10
My wife's thyroid antibody test was normal.  Looking more like lupus and diabetes
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486038 tn?1300066967
04/10
thank you! i missed all of you! hope you are doing well!
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572651 tn?1531002957
04/10
Hi T- I just left you a message over at inspire - that is still one of my favorite places to visit!  have a good day and be well, L
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1290512 tn?1272061331
04/10
Thank you for your welcome! You definitely seem like a great bunch of people and what a wealth of info......having a bit of system overload lol! Will keep you posted and hope you are enjoying your weekend!
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1261153 tn?1303909668
04/10
Just a quick note to say hi!  hello i hope you have a great weekend!
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1261153 tn?1303909668
04/10
Thank you for everything! i definitely will  get reports from physio that is a smart idea. I am going in to see my dr. friday.  see what he has to say. I am going to ask for copies of the neurologist reports too. today symptoms still come and go slurred speech and walking gait. but I am trying to be strong. thanks so much for your positive words of encouragement as it really helps. hope you are doing great, and happy hump day! ( wednesday) half way there. lol... thanks again , your friend, Lori
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