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Just a quick note to say hi!
You deserve a big bear hug!
You're in my thoughts all the time, but especially today.
Thank you for everything!
Welcome to our community!
You are in my thoughts and prayers.
Hope you feel better soon!
Congratulations! Time for a celebration...
Happy Birthday!
Avatar universal
09/09
Your about as thrilled as I am about Crystalens. They never tell ya anything until it goes south!
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Avatar universal
09/09
I went for my 2nd opinion Monday, another very well respoected eye "hospital" and staff. I got " everything is fine surgically, there's nothing the other doctor could have done better or different and I wouldn;t do anything internally to your eyes. Just let time heal it. Sooo...... I got what I expected... no solution, but at least he confirmed that the first doctor could not be doing anything else, so at least  I  don't have to second guess his assessment. Oh well, I guess I'm just stuck with it!
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Avatar universal
09/09
It DOES seem that getting that second opinion is impossible, though. I sent out five email request to local doctors for a second opinion consult and got zero responses. It's funny, because when I sent out request for initial consult to several of these same doctors before deciding on my current MD, they responded immediately! Apparently, they LOVE to court new business, but hide when it comes to critiquing another local doctor's work! I guess they fear retaliation.
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Avatar universal
09/09
I guess that is about the range of options available. I'd add
5) seek out second, even third opinion -- someone else [MD] MUST have experienced similar results before. What were their solution(s)?
If the pilo isn't causing any negative side effects, I would try that suggestion first. You've got nothing to lose to try that. If that doesn't work, and no one else can provide alternate solutions short of surgery, only then consider that. I say that because as you know, there is little recourse if the outcome is not what you expect. As for living with it, I personally believe in putting a time limit on it so at least you feel like you're working towards an end instead of just hopelessly hanging out there.


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Avatar universal
09/09
Just a quick note to say hi!  I'm not sure if you contacted me in error, but I' am interested to follow your story re crystalens - I had one implanted 6/18 and only have clear vision at 12" . Take care.
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Avatar universal
09/09
Yes. I know exactly how you feel. I am going to wait a few weeks to make a final decision on explant... because of the risks, and because the best possible outcome won't be as "versatile" is I could get with these Crystalens. Most likely I will ask to get the right eye IOL explanted and replaced with an aspheric mono, set for near/reading. The right one is more maddening than the left... fluttering wavy lights, along with lousy accommodation and starbursts. With that arrangement, I'm hoping I might be able to still not use glasses, as the left eye crystalens can work for distance/midrange.(?) and I can get some peace by closing the left eye! Anyway keep me posted on what you decide and I'll do the same.
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Avatar universal
09/09
if you don't mind me asking, why are you unable to use glasses? What do the contacts do that can't be done with glasses? Just curious, as it sounds like maybe from some other complication?
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Avatar universal
09/09
Have you talked to Baush & Lomb about your troubles?
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Avatar universal
09/09
I get similar feeling in right eye, and turn off the lights to right side of vision. Left eye doesn't flicker... just ridiculous starbusrts day and night! I just wish I could find some doctor who has seen this before and can say "I know how to treat that" instead of "this is the first I've seen this". Makes it seem hopeless and creates a lot of anxiety. Well, at least you can close one eye and get some relief(?)
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Avatar universal
09/09
Just a quick note to say hi! Dude, I feel for you. I had both eyes done in Florida with HD-500's. I would KILL for my Old eyes back, I would sell everything I own. I run Dozers and Hoes to make a living, done , finished, at 50. But my 30 year Old Doctor makes in a week, what I make in a year. You would think she would get it right, All other Doctors that I have been to say's I was never a canidate. I'm working as hard as she does to make money, finding a Lawyer, and I will and I will win. So think the Doctors at OSU. Go Bucks!
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Avatar universal
09/09
Also, didn't you say you only had one done? How does your doctor expect you NOT to compare if you see out of both everyday? Or did I misunderstand?
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Avatar universal
09/09
So does my father. But... I think his idea of good vision and mine may be different. I always had 20/15 or better vision at all "ranges" up until 2-3 years ago when the cataracts developed. My expectations, I guess were that these lenses would be "close", and by picking the area expert, minimize the complications risk. Like you, I was the unlucky one to get the complications! The most alarming aspect of all this is the presentation of expertise on the front end, and then "wow, 'never seen anything like this before" on the back end! Since there was nothing out of ordinary about all my eye measurements, this seems highly unlikely that I'm the only one with this outcome! Now I'm finding out that several other patients are experiencing the same (a lesser degree) starbursts after the YAG.
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Avatar universal
09/09
Also, is your pilo dose really .5 %? Mine says .0125%. If that's the case, no wonder it doesn't do anything. Did your doctor start you at .5 % or step it up after trying lower dose?
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Avatar universal
09/09
I'm in Florida... you'd think that would be ideal... so many cataract patients to work on! The monofocal with a monovision near/far arrangement seem to be less problematic, but less range. At 44, I wasn't ready to settle for that. Looks like I'll be forced to anyway! I really don;t want to do anything more until I get some definative answers as to what the heck is going on... not "let's try this"

I really need to find a Crystalens expert -- as do you, but how the heck do you flush them out?
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Avatar universal
08/09
Both eyes were myopic after the IOLs. Great for reading, not for anything else. Doesn't take too much to correct, though -1.25 in left, -1.50 in right. However, the right eye never seems to accomodate at all, so I only use a contact in left eye, leaving the right nearsighted for reading. Not as bad as I thought the monovision would be. Intermediate and distance are great with correction in both eyes, with expense of poor reading. Still contemplating explanting - at least in right eye since it doesn't accommodate anyway. Got the pilocarpine 2 days ago and it hasn't done a darn bit of good except give me a "brow ache". And still trying to find a 2nd opinion doctor who has expertise with CHD500 IOL's to see if there is any other solution other than explanting.

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Avatar universal
08/09
It would help if I included the link !
http://www.visionsimulations.com/index.php?option=com_content&task=view&id=56&Itemid=149
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Avatar universal
08/09
We may be talking about the same thing... here is a great simulator for viaul problems. Check out the starburst simulator - see if you have this. How would you describe the arcing? For me it's like a "ring of fire" semi circle around points of light.
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Avatar universal
08/09
I just read your post re using pilocarpine -- thats the med the dr wants to try. I tried alphagan but it did nothing. There's a mixer in CA that he says will custom adjust the dosing to find the right "just enough" to do the job. How has it been working for you? Does it help with the halos and or starbursts, etc?
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Avatar universal
08/09
will do. Dr wants to try some strong glaucoma medication first to see if pupil constriction will help. I'll gladly give that a try before opting for explant... more risky and he cannot re-implant another crystalens because of the way it is explanted. For these, the dr cuts out the middle portion, leaving the hasps in place. He would only be able to put in standard monofocal. That defeats the whole purpose of getting the accomodating ones.
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Avatar universal
08/09
Will you speak to another doctor?

Have you thought about speaking to a lawyer?
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Avatar universal
08/09
I too am non-religious, and I am always charmed and fooled into thinking that the religious ones will be more sincere.  Only to find that their belief systems allow them to avoid taking responsibility and facing issues.  You've got to find someone (else) good asap.

Who is your doctor?
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Avatar universal
08/09
How'd it go with the doctor?
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Avatar universal
08/09
P.S.  That database idea is a good one!  It's amazing they don't.
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Avatar universal
07/09
Thank you!
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Avatar universal
06/09
Just read your public post.  Which office in Beverly Hills were you talking about?  My doctor is in Beverly Hills and I also talked to--and paid dearly---another doctor in Beverly Hills.
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Avatar universal
06/09
Hi,

Not sure of my size pupil size dilated.  I was told that my pupil size is 4, but I assumed that meant undilated.  Supposed to get Crystalens in one eye only on 7/7.

Thanks for your note.  Good luck!
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