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Just a quick note to say hi!
You deserve a big bear hug!
You're in my thoughts all the time, but especially today.
Thank you for everything!
Welcome to our community!
You are in my thoughts and prayers.
Hope you feel better soon!
Congratulations! Time for a celebration...
Happy Birthday!
Avatar universal
05/09
You're in my thoughts all the time, but especially today. I have been feeling the same way...I'm always in a fuzzy state. please contact me....It would be great to hear from you...Take Care..mamak  
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Avatar universal
11/08
You deserve a big bear hug!  Have wonderful Holidays OK!
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Avatar universal
10/08
You're in my thoughts all the time, but especially today.  How are you today?  I hope one day we will be free of pain... so until then lets bake some cookies..what do you think about that....Please write soon OK!  It would be great to hear from you..
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Avatar universal
10/08
Let's try this:  put this together and see if it goes:  monicalynn2 and the at sign and then comcast and then dot net.
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Avatar universal
10/08
Hi Lisa--Why don't you contact me on my e-mail  ***@****--it's easier and there's no space limit.  I'd like to help you figure out your situation.  I want to look for info about the lamictal to see about DILE.  And as for the hair--I have a friend who's experiencing the same thing.  She uses Nioxin and has had some success.  Have you had your thyroid checked?  Low thyroid can make your hair come out by the handfuls.  I also have that--Hashimoto's which made me more succeptible to the DILE.  As for me--I'm starting to see a good bit of improvement.  Mornings are worst--always achy.  Going to try to taper down to 5mg prednisone on Sun. so I can get off.  W/B soon.
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Avatar universal
10/08
You're in my thoughts all the time, but especially today. It has been about a week since we chatted. I see your not feeling well my prayers go out to you and your family.  I to have not been good.  In fact my doctor put me on a diffrent type of medication to prevent and control seizures.  The other is to help me with nerve pain.  Lets chat again and have a better day ok! p.s. I love to cook to especially when I don't burn it.  Cheers!
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Avatar universal
10/08
Hi Lisa,

I posted on Medhelp about my appt.  It went as well as I could've hoped.  The rheumy thinks it's drug-induced lupus.  I had 1 test that came back questionable--I think it was the ant--DNA one--but he said he takes it with a grain of salt because of the way the lab does the test.  He said everything else and my symptoms point to DILE.  He did more bloodwork and said as long as it is the same or better than before, he's sure of the diagnosis.  So I'm very much hoping my labs are OK.  I've been feeling better, but it comes and goes.  Some days are better than others.  Mostly I have joint and some muscle pain.  He's going to try to wean me off the prednisone over a month or so.  It take 10 mg-5 mg-10mg for a while, and then taper to 5 until I can stop.  How are you?  
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Avatar universal
10/08
Just a quick note to say hi!

Hi There,

So sorry--I made a mistake.  I looked back at my post--my appt. is tomorrow at 10.  I don't know what I was thinking when I wrote that.  I appreciate your thinking of me very much!  I'll post after my appt tomorrow.  I have to say that I finally turned a corner on Saturday and I'm feeling tons better, but I hope to get more answers in the morning.  Thanks again, and I'll talk to you tomorrow.  Please let me know how you are as well.
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Avatar universal
10/08
Greetings to you!  How are you today?  Thank you so much for your interest regarding my situation.  How do you cope in your daily activities?  Please lets chat later ok!    Take Care...
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Avatar universal
09/08
Just wanted to let you know I can relate. If you ever want to talk, you know where to find me.  Please let's chat!  And I hope your feeling good today.  Take care.....
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