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Just a quick note to say hi!
You deserve a big bear hug!
You're in my thoughts all the time, but especially today.
Thank you for everything!
Welcome to our community!
You are in my thoughts and prayers.
Hope you feel better soon!
Congratulations! Time for a celebration...
Happy Birthday!
Avatar universal
02/09
Just a quick note to say hi!  As unique as we all like to think we are, we all seem to share the same emotions in times of grief. You hit upon two things that I have thought about too. I think what time does besides healing, it gives perspective and understanding to this whole miserable process. Thanks for sharing and I hope brighter days are in your near future!
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Avatar universal
02/09
Hi - read some of your posts and thought I'd friend you. Be well!
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758747 tn?1234056922
02/09
Thank you for your post, I did mean EEG, not used to all these terms. lol
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397460 tn?1268533736
01/09
Just a quick note to say hi! Hi there. Did you get my pm? Some times i send them in to space! Cath
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Avatar universal
01/09
Hey Im sorry bout your partner.The question I posted was concerning my boy friend and Im just soo worried about him.Thank you for  the  message.take care.
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Avatar universal
01/09
Thanks for you message I'm sorry you lost your partner in such a sudden way too. I think it makes it harder as you dont have the chane too say what you want. I get some comfort that my mum knew she ment the world to us. Just like your partner would have known. I will prob be on here all the time venting as I find it hard to talk to my friends and boyfriend who just don't understand how hellish this is. Take care
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Avatar universal
01/09
Hi, how r u? Its good 2 hear from someone else with this condition! How are u going with it? I was only diagnosed a few months ago! I have had 2 lumbar punctures & have been on diamox since & it all seems 2 be going well so far! Im seeing my neuro again at the end of this month. I still have the papilledema which he says will just take a little more time 2 go away! Im no longer overweight & all the other symptoms have gradually faded! If u get a chance, i would love to hear your story. Cheers!
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Avatar universal
01/09
Thank you for your comment about my fiance seeing what he saw.I do believe in God And told him he was meant to see that.I believe it was because he hasn't been very supportive or understanding to the rescent loss of my Mom.He understands now how hard it was to witness my Mom pass and how hard this really is for me.After 2 months he said I should be over my Mom's passing and to snap out of it.I don't believe he feels that way now.He talked to his Dad,who is a surgical nurse and sees this sort of thing all the time,he said he feels better after talking to him.My fiance doesn't believe,my first response was Did you pray over him? That's what I would have done,he has told me that he does pray at times but say's if you really are there God,before praying.Thanks for your response.God Bless,Jen
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695116 tn?1261010496
12/08
Thank you so much for your comment on my post. I am very frustrated about all of this. My symptoms are getting worse and all doctors can say is that I have anxiety. I feel pressure behind my eyes making it hard to see sometimes...
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251395 tn?1434494286
12/08
I just wanted to stop by to see how you are doing:) Helping to answer questions here, makes it all more worthwhile when I read a post and see that you have called out to me looking for help:) It warms my heart to see the trust you have in my advice:) Thanks for that!
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Avatar universal
12/08
Hello ! thank u so much for ur answer, u made me feel much better today ! i wish u all the best and health !!! tks again
mike
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698733 tn?1231926970
12/08
You need to stop reading the posts on which something can go wrong with your heart. The people where things can go wrong have obviously had a problem there from the begininning and nothing more. Your heart is an incredibly strong muscle and will NOT give out just because its beating fast. Did you read the post I send about Palpitations? I really hope you will read it. Have you been referred to a cardio to get the all clear? If you have then you need to start trusting the docs, honestly, medical equipment these days is fantastic so please trust them hun.

Contact me if you need me XXXX
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698733 tn?1231926970
12/08
Hi there, just to let you know that you most definately are not on your own in the scary heart dept. I too am a constant worrier of this and feel petrified by any little twinge I get in that area. Please contact me if you want to share and feelings or generally have a chat.
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Avatar universal
11/08
Just a quick note to say hi!
Crystal,
The doctor did rule out Long QT. I did read about Norpace, causing syncope, but I'm still going to have my daughter try it. Thanks for your help.
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581516 tn?1326073019
10/08
Welcome to our community!  I know what you are going through.  Pulse checking seems common here.  I check my pulse as a way to make sure my heart is beating within the normal range when I feel like I am having anxiety symptoms.  If it is high, usually I'm panicking or have been walking/moving around.  Either way, the pulse goes up and I am satisfed there is nothing wrong with my heart and am still alive.  It might be helpful to journal what the situation is when you check your pulse, what you expect to find, and what your pulse actually is.
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341903 tn?1225388712
10/08
Just wanted to let you know I can relate. If you ever want to talk, you know where to find me.
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