lapis's Profile
03/12
Omgoodness....sorry about that, but that's about the best laugh I've had in a bit. (((HGUS))) sista!!
03/12
I'm sorry...do I know you?? Yeah, baby....know and love!! That's what I'm talking about!!!
03/12
~~and who are you?~~That just about cracked me up!!! Hope you are doing well. Sending Hugs and Love!!! Isobella
03/12
Doc says it takes some time to compile the data as you would know ,however they usually don't take till it is all done to inform patients. Waited this long so I will wait patiently some more :0)
Will let you know when I get some info.
Will let you know when I get some info.
03/12
I liked your story about talking about hep C, you and I are on the same page.
Maybe I should design some kind of bracelet or symbol for a Tshirt or something, once I'm off tx.
Get the word out and about :)
Maybe I should design some kind of bracelet or symbol for a Tshirt or something, once I'm off tx.
Get the word out and about :)
03/12
Just a quick note to say hi! I am off my meds,getting rash treatment for 3rd week.Thinking much clearer.Thinking positively now.Tripped up at the finish line Not all is lost.I lost 20 lbs. I have a new face and outlook.Will see dr Tuesday to find out what happened.
01/12
Hitting a high point because she's getting close to the end of triple. That 20 grams of fat is tough! Yup, travel this week! I'm so excited!! We'll talk soon. I hope we get to work together in the future. (((HUGS))) Izzy
01/12
Thanks for thinking of us. Now we wait again. I never imagined this would happen. It was like Day 1 of Diagnosis all over again. I hate hepatitis. Please keep her in your prayers....we should get the newest results in about 10 days ;(
12/11
Hey there... Have fun this weekend ! Is this another speaking engagement? I will send a msg. this weekend... :)
Will
Will
11/11
You're the best! Sorry our conversation was cut short, but honestly, tensions were high here yesterday as we all pretended things were normal. I keep thinking back to the first time we actually spoke on the phone...I was refinishing furniture like I was on a crack high and you were so calm. All this time later....who'da thunk we'd be where we are today. Thanks so much for being you. I can't wait to see where we end up.....Love ya!!!!! ps- the furniture is a beautiful reminder of those times, lol! xoxo
11/11
Thanks Lapis, but we're actually 5 days out. Drugs were shipped yesterday. Tuesday is the big (BIG sucky)) day. We have to catch up...I can't wait to hear about your recent West Coast trip. We need a phone date....Love yas!!!!!!!
11/11
I just got that note u sent me in September because I used Mobile version most of the time so I forget to check in at fullsite. But thanks and I've sent a friend invite. I am hopefully gonna be on treatment by end of this month I keep having to push back for 1 more thing LOL.
Ninjamonkey
Ninjamonkey
10/11
Thanks for the note. I guess some of my posts are a bit graphic and detailed, LOL, but that's the way I am. I probably would not have stocked up on all of the heavy stuff if I had not been so sick and weak with the systemic vasculitis in 1993-94. I have a very good memory of that experience and how weak and tired I was (my hemoglobin went down to 9 due to hemolytic anemia). It was an effort to lie on the couch and keep my eyes open or even to get up and fix a can of soup. So no way am I going to be hauling 25 pound boxes of kitty litter in and out of the car, LOL. This time I wanted to be prepared. I think the forum is a great help. I have learned so much since i joined. We are lucky it is here for us.
10/11
Awww, thanks. This has been a better week. Can't say for certain but I think my emotions are more crazy when I take neupogen. This week I didn't have to.
Generally, I'm upbeat and excited. In a weird way it's been good to have something to focus on other than my sxs.
Tomorrow I get my 4week lab. If I am und, you will hear me screaming and see me dancing way up in the sky!
OH.
Generally, I'm upbeat and excited. In a weird way it's been good to have something to focus on other than my sxs.
Tomorrow I get my 4week lab. If I am und, you will hear me screaming and see me dancing way up in the sky!
OH.
10/11
Hi S. Nice to hear from you and that is super that you are continuing to be out there speaking on this.Please let me know how that is going ...look forward to hearing from you as always. Best ...
Will
Will
10/11
Thanks to you and everyone who has cleared yet comes back to help us get through tx
I don't know if I could do this without the support of all of you.
Dee
I don't know if I could do this without the support of all of you.
Dee
10/11
Hi, thanks for leaving me a note and good suggestions on what to let the outsidders know,,, it is tru tooo, cuz, I ,along with so many other chronic ailments, I have a tumor marker on my liver.... sooo, the answer is what I shall give... well, glad to hear that your still rollin with the ball ....can't wait for mine to pop !!! and can say 'ALL DONE"" ahhh, how nice that is going to be for 'ALL of US..... !!!! so keep on smilin ..... even when ya don't think you have the strength....a smile goes a looong way.....toodles & again ty along with (((hugzzz)))
09/11
Thank you for responding to my incivek post! Your response was the one that really helped me the most. I have not been feeling great but was really comforted by your results and your continuing dedication to helping those of us still treating! I hope to follow in your footsteps. I went back and read your journal entries and it was good to read. Thanks again, you really helped.
G
G
06/11
Thanks, I did have a nice birthday. I'm hoping for new great things in my 50's! A new beginning. Susan400
05/11
Hi Lapis, he's doing OK, he had his pcr done " on the side" at 4 weeks minus 2 days and it shows a VL of 50. At least he's responding some what, even though he's not UND. He's also dizzy a lot even though his blood counts don;t show anemia. Thanks for asking!
05/11
Congratulations on your 2 year SVR!!! I will be having my annual physical next month and hope to get the same news. You were one of the special people who helped me through the tough times of treatment and just wanted to thank you again. God bless.
Peter
Peter
05/11
Hi Lapis,
It's my boyfriend who's treating, not me. I'm very involved in his care so am interested in meeting people who are treating also. He's finishing his 2d week and is better than he thought he would be - just tired at times. Thanks!
It's my boyfriend who's treating, not me. I'm very involved in his care so am interested in meeting people who are treating also. He's finishing his 2d week and is better than he thought he would be - just tired at times. Thanks!
