Please what type of dr diagnosed you with chronic interferon syndrome / no ones heard of it around here so many times they think I'm nuts with so many illnesses. Now I'm home stuck in bd constantly finished 48 weeks peg interferon & ribivirin that was sept 2006 I've been in bed11 years
Happy New Year to you! Trying to start things right! You left me a note last Oct (which I didn't forget but ya know...) things always get busy and tired.
How are you doing, my friend?
Hoping 2015 will just be easier!
going to send you a pm now... hugs, f
sorry to take so long to get back to you... sending you a private message actually... hope all is well, f
Looks like I went over the 800 characters with my final bit...
Someone, way back, wrote this on one of my threads - I use it as my sig - I think it sums things up:
"Intensive cytokine arousal for a prolonged period of time is bound to leave its mark on the body, mind and soul."
You’re welcome & so happy to hear that the fight is over for dx of PIS. It is crazy how we have to fight, fight, fight for nearly everything and people wonder why we are always so exhausted all the time.
I have been very lucky to have a great local medical team around me locally. Over the past few years the docs have understood that is all caused from treatment. My last psychiatrist was an angel. He really went out of his way to find me a plan of treatment to help. We ended up with Vyvanse which is a miracle drug for chronic fatigue. It is probably incredibly expensive thus hard to get on but he fought for me. Changed my life… see if it is available for you.
You're very welcome. I wish I could add more but with the chronic fatigue it is sometimes difficult & I have to be careful how I divide my time... should be on here more but...
I am sure, with time you will find your voice and be able to advocate for yourself and others but especially for yourself *which is so very important!!!
If you ever need to talk just send me a msg.
Just a quick note to say hi! Sorry about your side effects, me too, treated in uk, Aintree hospital in 2010, can I ask what hospital you went to. I suffer depression, anxiety, memory,joint pain and hand and feet nerve problems (yet to be diagnosed- my gp is rubbish. best wishes deb
Thank you for everything!
Hi, I am so sorry for what you are gong through and yes we do too rant! I get so sick of it sometimes, the way ppl snipe at each other. I avoided interferon and am now in a study with the new drugs,
I want to tell you about hep-tech-I heard of it from the hep. b forum by a guy in Italy called Stefano. It is expensive but you can apply for a reduction. It is mostly bioflavinoids, antioxidants, liver herbs etc. It really helped me. For many people it has reversed cirrhosis, but it helps with other organ systems too. Good luck to you.