04/12
it's always good to see you pop through. Enjoy your TX spring - we're now waiting for it in Ohio after 80 degree days in early March!
02/12
Thank you, i keep being told to stop worrying as its my own fault if i get ill through the worry, but its not something you can just forget about for 3 months
02/12
It sure is good to see you around here more - If you feel inclined and would like to share, I would love to see you post an update on your CCSVI treatment since it has now been a year. Or am I messing up the date? So sorry the flu hit you so hard. hugs, L
02/12
Just a quick note to say hi! I appreciate the Welcome. I'm still trying to learn how to navigate around via internet. I'm so but I'll catch on. I look forward to talking, sharing and the encourtagement that will be offered to each other. May your day be filled with His many blessings.T:)
07/11
Thank you for answering my question on IVIG. I'll drop you a line once I find out if I'll be getting it or not. I know my neuro wanted to give the steroids a try first, so we will see☺ Thanks again
06/11
Just wondeirng about the CCSVI treatment and the heat - are you seeing any improvement? best. L
05/11
Escape service? What a great idea and a cool name. I could escape like that. Good luck.
05/11
I would love to downsize but I'm not sure I have the energy or the time to spend clearing out all the nooks and crannies in this house. Good luck with the house building.
05/11
You are so kind to say the nice things about the flowers here but the truth is I am no expert on anything. I just have way too much spare time and can be here often. When you get the time, how about starting athread on your CCSVI experience and update? I hope you continue to feel well.
03/11
nice new pic! Glad to read you continue to feel better. -L
02/11
Thnking of you today - good luck in CA - I hope this gives you relief and stops your progression. hugs, L
02/11
Hi Khiba. I saw your note about going to CM for CCVSI. My friend's husband had the procedure back in January and is doing fantastic. Slow progress, but its moving in the right direction. He was pretty bad off too. I hope your procedure goes well and it would be great to hear how you do. I am also tired of all the drugs I'm taking and everyone thinks I'd be a good candidate for it too. So, I'll be watching out for you and saying a prayer on the 16th that all goes well. Be well. -Julie
09/10
Just a quick note to say hi! I read about your SI joint injections and just wanted you to know how happy I am for you!!!!!!!!!
What a great relief for you. It is these kinds of stories that we need to hear every once in a while to keep our spirits lifted.
I am SO excited for you! I how things go smoothly for you as they work out your treatment for you1
Warmly,
Ren
04/10
Just a quick note to say hi!
I have had one treatment since your encouraging email and I have another starting tomorrow. Last time I drank so much water I thought I was going to float away. I also reinforced to my husband that I needed to rest! (He is the type that wants me to get out of bed to make dinner & help w the children) I got a prescription for Maxalt for the headaches and that helped a lot at home. The 2 days after treatment are always the hardest for me with the migraines. But I still try to push fluids and keep the Maxalt close by. I was encouraged by your email. Thank you for your support and friendship.
Thank you again for everything! All my best to you - Keely
03/10
Just a quick note to say hi!
Hope you have a good week, just posted some family photos take a look...my little grandbaby will make you smile
God Bless
Amers
03/10
Hi there! Keely is looking for some help w/IVIG, thought you could check out her post. I'll alert her that you're on it! Hope you are doing well! - Shell
02/10
Hi Khiba,
Just wanted to let you know that I finally figured out how to track the different things I was looking for. Thanks for your help. I appreciate it. Hope you day is going well. Talk later. Greg
02/10
Thank you for everything!
Hi Khiba, what a blow it is when your health is not so good. It can be very difficult to come to terms with health problems and make adjustments to ones life. I hope that you will come to terms with it soon and be able to move on so to speak.
When I was diagnosed with CFS in 1993, it took me four years to come to terms which didn't help my recovery. Sadly I'm unwell again, although the presentation is very different this time with lots of nerve damage, so I think it's MS... I have adjusted very quickly this time, as I can't see any point in fighting it. I'm just going with the flow, in a manner of speaking and hope that DR's will soon discover what's going on.
Any way, take care and speak soon. xx
12/09
I'm glad you're enjoying the journal. I really hope this CCSVI theory pans out. It would help so many people. How are you doing? I see you're doing IVIG. I hope that works well. Have a great holiday and I hope 2010 is a wonderful year for you.
12/09
Just a quick note to say hi! thats good that the tyhroid treatment working well, i;m up and down spend half week in bed half not! trying alternate treaments like tigar balm and triggar point massage got one tomorrow. x
12/09
Just a quick note to say hi! how are you doing? samx
11/09
Just a quick note to say hi! That is good news.
11/09
Just a quick note to say hi! It is still hard. I worked in the Veterinary field for over 20 years and I still find it hard. I have one I have had 11years, one 10 years. They are both old and wobbly. Hang in there.
Alex
11/09
You're in my thoughts all the time, but especially today.
11/09
I am so sorry to hear you have all made the decision to put your beloved pet down today. It is always a difficult decision even when it is the most humane thing to do. The memory of your pet will always be there so he is never gone from your heart and mind. Love and hugs. Julie
11/09
You're in my thoughts all the time, but especially today. I am so sorry, I know how awful this is for you because I had to put my second cat to sleep last week. I lost both of them in one month over past a year. Only time will ease the pain of this loss. Know that my thoughts and prayers are with you..{{{~!~}}}DJ
11/09
So sorry to hear about your dog - regardless of the circumstances that is always hard but the compassionate choice. - L
11/09
Just a quick note to say hi! Sorry about your dog.
Alex
11/09
Just a quick note to say hi!Hi its been a while, back around again. How you been i've not been on in a few months. sam x
11/09
Thank you, I am looking for some kind of free download to create CD's with pics that i can add music to or special effects...do you know any?
11/09
Just a quick note to say hi!
Hi Jessica, I've written a note or two but unsure if you ever rec'd them. Really hoping you are well. I am good. "Could be worse" I'm not good at negotiating this site. I never feel that I ackomplish what I intend. My nickname Aliveinme may seem as if I'm talking about the MS being alive in me. I meant something very different.
God bless you.
Sandi
10/09
I saw your mood post....I'm sorry you had such a rough time with the Solu-Medrol. I hope you are feeling better SOON!
Hugs,
Ren
